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Public Policy Priorities

Research for a Cure

• Framework for psoriasis data collection efforts (PDF): The first-ever psoriasis patient registry at the Centers for Disease Control and Prevention (CDC) received initial funding from Congress for 2010. 
• FY 2012 House LHHS Testimony (PDF): Written testimony submitted to the Labor, Health and Human Services, Education, and Related Agencies (LHHS) Appropriations Subcommittee regarding federal funding needs for psoriatic disease research.
• Comments on NIAMS Long Range Plan (PDF): National Institute of Arthritis and Musculoskeletal and Skin Disease (NIAMS) is the main federal agency responsible for psoriasis research.

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Access to Health Care

• Comments to the U.S. Department of Health & Human Services on the Proposed Standards for Essential Health Benefits: Input on behalf of the psoriasis community on essential health benefits (EHB). NEW 
• Letter to Senate leadership on the Sustainable Growth Rate (SGR) formula: Input from the psoriasis community urging a fix to the SGR formula in Medicare. NEW  
• Comments to the Food and Drug Administration (FDA) on the Draft Guidance for Industry on Biosimilars: Input on behalf of the psoriasis community on the approval pathway for biosimilar drugs. 
• Letter to the Patient-Centered Outcomes Research Institute (PCORI): Input from the psoriasis community on PCORI's National Priorities for Research and Research Agenda.
• Specialty tiers: The National Psoriasis Foundation advocates for the prohibition of insurance practices that require expensive copays for needed medications.
• Phototherapy copayments impact access to treatment: Policy brief that outlines the substantial out-of-pocket costs associated with phototherapy treatment and the impact to patient access to care.

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State Advocacy

• Get Involved in Your State: Support legislation around the country that will improve the lives of people with psoriasis and psoriatic arthritis.

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