In spite of the burden psoriasis brings and recent important strides in psoriasis care, psoriasis research does not receive the federal funding that it deserves. With only about $1 per patient spent by the federal government annually on psoriasis research, developments have not kept pace with the needs of the millions of Americans affected by this disease.
The National Psoriasis Foundation is committed to building a greater federal government investment in psoriasis research to improve access to treatments and move faster toward a cure. Through education of policy-makers, legislative action and grassroots activity, we know it is possible to strengthen and expand psoriasis research and access to care, and that a cure is on the horizon. Long a "silent" community, we are now active in Washington, D.C., and in federal congressional districts around the country, advocating for changes that will catapult us forward toward better treatments, a cure and improved quality of life for everyone affected by psoriasis.
Public policy agenda |
110th Congress 2nd session (2008)
|
 | 2008 ask sheet: House and Senate (171k PDF) |
110th Congress 1st session (2007)
|
| 2007 ask sheet: House (120k PDF) |
| 2007 ask sheet: Senate (110k PDF) |
109th Congress 2nd session (2006)
|
|
National Psoriasis Foundation 2006 public policy agenda (91k PDF) |
109th Congress 1st session (2005)
|
|
National Psoriasis Foundation 2005 public affairs agenda (191k PDF) |
Legislation |
110th Congress (2007-2008)
|
| Psoriasis and Psoriatic Arthritis Research, Cure, and Care Act (PPARCCA) of 2007
This bipartisan bill calls upon the National Institutes of Health (NIH) and the Centers for Disease Control and Prevention (CDC) to build their work in psoriasis and psoriatic arthritis by:
- Expanding biomedical research
- Building CDC data collection / patient registry
- Calling for a federal summit on psoriasis
- Requiring an Institute of Medicine report on access to care
Psoriasis and Psoriatic Arthritis Research, Cure, and Care Act of 2007 bill summary (93k PDF)
Full coverage of PPARCCA
|
|
|
109th Congress (2005-2006)
|
| House Concurrent Resolution 340 (H. Res. 340) |
|
H. Res. 340: Expressing the sense of the Congress with respect to the effective treatment of and access to care for individuals with psoriasis and psoriatic arthritis, and for other purposes. (28k PDF) |
| Senate Resolution 420 (S. Res. 420) |
|
S. Res. 420: Expressing the sense of the Senate that effective treatment and access to care for individuals with psoriasis and psoriatic arthritis should be improved. (30k PDF) |
| Senate Resolution 206 (S. Res. 206) |
|
S. Res. 206: Designating August 2005 as Psoriasis Awareness Month (21k PDF) |
Federal funding for psoriasis
|
110th Congress (2007-2008)
|
| Congressional correspondence |
| House "Dear Colleague" letter calling for increased funding for psoriasis and psoriatic arthritis research at the National Institutes of Health (NIH) (53k PDF) |
| House sign-on letter: Labor Health & Human Services (LHHS) appropriations Feb. 22, 2007 (7k PDF) |
|
NIH response to Rep. Jim Gerlach, R-Penn. March 27, 2007 (326k PDF) |
|
Letter from Rep. Gerlach, R-Penn., to NIH, requesting psoriasis audit Jan. 17, 2007 (356k PDF) |
| National Psoriasis Foundation correspondence |
|
Written testimony from the National Psoriasis Foundation to the House LHHS Appropriations Subcommittee regarding FY2008 funding for psoriasis and psoriatic arthritis research March 30, 2007 (127k PDF) |
109th Congress (2005-2006)
|
| Congressional correspondence |
|
House "Dear Colleague" letter calling for increased funding for psoriasis and psoriatic arthritis research at the NIH March 16, 2006 (160k PDF) |
|
House sign-on letter: LHHS appropriations March 8, 2006 (183k PDF) |
|
Letter from Rep. David Scott, R-Ga., re: House LHHS appropriations bill report language March 31, 2006 (301k PDF) |
|
Letters from Sen. Edward Kennedy, D-Mass., to Centers for Disease Control and Prevention (CDC) and National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) March 29, 2006 (776k PDF) |
|
Letter from Sen. Chuck Grassley, R-Iowa, to CDC March 16, 2006 (68k PDF) |
|
NIH response to Rep. Jim Gerlach, R-Penn. Jan. 3, 2006 (85k PDF) |
|
Letter from Rep. Gerlach, R-Penn., to NIH, requesting psoriasis audit Dec. 1, 2005 (124k PDF) |
| National Psoriasis Foundation correspondence |
|
Written testimony from the National Psoriasis Foundation to the Senate LHHS Appropriations Subcommittee regarding FY2007 funding for psoriasis and psoriatic arthritis research April 26, 2006 (242k PDF) |
|
Written testimony from the National Psoriasis Foundation to the House LHHS Appropriations Subcommittee regarding FY2007 funding for psoriasis and psoriatic arthritis research March 30, 2006 (273k PDF) |
Issue briefs, facts sheets and white papers
|
110th Congress (2007-2008)
|
|
Analysis of 2006 NIH Psoriasis and Psoriatic Arthritis Funded Research (721k PDF) |
|
Psoriasis access to care issue brief (301k PDF) |
|
Psoriasis and co-morbid conditions issue brief (325k PDF) |
|
Psoriasis and mental health issue brief (298k PDF) |
|
Psoriasis research issue brief (397k PDF) |
|
Research activities at the National Psoriasis Foundation (314k PDF) |
| State fact sheets |
109th Congress (2005-2006)
|
|
Psoriasis access to care issue brief (1.7m PDF) |
|
Psoriasis research issue brief (244k PDF) |
Federal agency and regulatory advocacy
|
| Psoriasis Foundation comments on NIAMS Long-Range Plan April 20, 2006 (5.3m PDF) |
|
Letter from Psoriasis Foundation to Food and Drug Administration (FDA) re: oral tazarotene Aug. 24, 2004 (118k PDF) |
