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OUR MISSION is to improve the quality of life of people who have psoriasis and psoriatic arthritis. Through education and advocacy, we promote awareness and understanding, ensure access to treatment and support research that will lead to effective management and, ultimately, a cure.
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Psoriasis and Psoriatic Arthritis Research, Cure, and Care Act of 2007

Take action!

Urge your senators and representative to cosponsor this legislation

Attend a local town hall meeting

The Psoriasis and Psoriatic Arthritis Research, Cure, and Care Act (PPARCCA) of 2007 is one important vehicle that will bring us closer to a cure for psoriasis and psoriatic arthritis. PPARCCA is the first-ever comprehensive psoriasis authorizing legislation. In February, H.R. 1188 was introduced as in the House of Representatives by Rep. David Wu, D-Ore.-1st, with Rep. Jim Gerlach, R-Pa.-6th, and Rep. Debbie Wasserman-Schultz, D-Fla.-20th. Sen. Robert Menendez, D-N.J., introduced S. 1459 on May 23, 2007 in the U.S. Senate. Sen. Frank Lautenberg, D-N.J., joined as an original co-sponsor with Sen. Menendez in introducing the bill.

This bipartisan measure calls upon the National Institutes of Health (NIH) and the Centers for Disease Control and Prevention (CDC) to build their work in psoriasis and psoriatic arthritis by:

  • Expanding biomedical research
  • Building CDC data collection / patient registry
  • Calling for a federal summit on psoriasis
  • Requiring an Institute of Medicine report on access to care

For less than $4 million, this legislation will catapult psoriasis research forward. Because some advances have been realized in the past few years, dollars invested today in psoriasis research will take us farther faster toward a cure. Further, solving the inflammation problem at the root of psoriasis will likely benefit other immune-based diseases. PPARCCA will also shed light on the issues patients experience in trying to access the care they need. By focusing on a patient registry, PPARCCA will further provide a unified database of clinical information for researchers. Finally, PPARCCA will create a focus for federal agencies to address issues and opportunities in psoriasis.

More information

 Psoriasis and Psoriatic Arthritis Research, Cure, and Care Act of 2007 bill summary  (93k PDF)

 Frequently asked questions about PPARCCA  New!

 CariDee English, America's Next Top Model®, holds congressional briefing on psoriasis  (June 11, 2007 press release)

Senate bill (S. 1459)

 S. 1459: Full text  (48k PDF)

 Landmark psoriasis bill introduced in U.S. Senate  (May 23, 2007 press release)

 Letter of support from the National Patient Advocate Foundation  (June 12, 2008)

Information about S. 1459 including full text and sponsorship status

 S. 1459 summary and status on THOMAS (Library of Congress)

House bill (H.R. 1188)

 H.R. 1188: Full text  (49k PDF)

 Letter of support from the American Academy of Dermatology  (388k PDF)

 Letter of support from the National Patient Advocate Foundation  (June 12, 2008)

 First-ever psoriasis legislation introduced in Congress  (Feb. 16, 2007 press release)

Information about H.R. 1188, including full text and sponsorship status

 H.R. 1188 summary and status on THOMAS

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