How We Protect Your Privacy
How will we keep your information private?
The National Psoriasis Foundation is committed to protecting your privacy and confidentiality. Your samples will be available only to researchers whose research projects have been approved by an oversight committee of the National Psoriasis Victor Henschel BioBank.
Once we receive your completed BioBank consent form, we will assign you a unique ID number, which will be listed on your sample and medical history form. Your sample and medical history form will not contain your name or any other information that points to or identifies you.
The files that link your name to your ID number will be kept in a secure location at the National Psoriasis Foundation. The bank where your sample is stored will also have a file that links your name with your ID number. Study staff will be allowed to look at this file only after they have signed an agreement stating that they will not reveal the information to anyone else.
Your name or other facts that might identify you will not appear if we present any study findings or publish results using your sample. Although all of your identifying information will be stripped from your medical history, it is still possible that the facts contained within your medical history will allow identification of you, even if the information is published anonymously.