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 A Fair Shake for PsoriasisHave your members of Congress given a fair shake? Fair Shake photo gallery >>> |
 Insurance troubles?Share your story about difficulties you've had accessing treatment. Share your story >>> |
 Do your elected officials support PPARCCATo date, 59 House members and 9 Senators have co-sponsored this critical legislation. See if your members of Congress have signed on. House co-sponsors >>> Senate co-sponsors >>> |
 Hone your volunteer leadership skills
Join us in San Antonio and develop skills to become an effective volunteer leader in your community. Learn more & register >>> |
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Join us for a free webcast on June 30, "Complementary and Integrative Care." Register today >>> |
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June 2009
Dear {NAME}, What does an elected official's recess from Congress have to do with Ellen, an advocacy volunteer, and her tireless efforts to protect her grandchildren from psoriasis? Or with 17-year old Kelsey's ongoing work to advocate for better treatments? The answer is SUMMER—and the fact that members of Congress are at home meeting with constituents and holding Town Hall Meetings. An hour of your time in August could help Ellen and Kelsey realize their vision. Summer is the crucial time of the year to connect with elected officials and you can make a difference. By sitting down with your members of Congress, attending a Town Hall Meeting, or going after that Fair Shake photo—you can change your elected officials' minds about psoriasis. You will also have fun in the process, make new friends and contribute to progress for a cure. Read all about it in this month's F.A.N. mail and have a great start to an advocacy-filled summer! Best regards,   Dan Farrington Chair, Advocacy Committee Board of Trustees 
Sheila Rittenberg Senior Director of Advocacy & External Affairs Persistence pays off: One advocate's success story When asked about being a member of the Psoriasis Action Network, Derrick T. of Fayetteville, N.C., says, "I'm a behind-the-scene guy just trying to do my part in finding a cure and helping my community." Derrick met with his congressman, Rep. Larry Kissell (D-N.C.-1st), at a town hall meeting in March. Derrick believes his persistent follow up was the key to securing Rep. Kissell's co-sponsorship of H.R. 930, the Psoriasis and Psoriatic Arthritis Research, Cure and Care Act on May 7. Members of Congress may be at home, but that doesn't mean they're on vacation!Don't let your elected officials off the hook—attend a town hall meeting or set up an appointment locally this summer and ask your members of Congress to co-sponsor the Psoriasis and Psoriatic Arthritis Research, Cure, and Care Act (H.R. 930/S. 571). It's easy:
Access to care: A nurse's triumph
Judy Tsatsos is a registered nurse who has lived with psoriasis for over 40 years. Finding an effective treatment enabled her to enjoy a more productive life as a medical professional. Imagine her surprise when her health insurance company sent her a letter stating that "this service is not medically necessary as determined by a physician reviewer"! Read the complete article.Advocacy department welcomes new staff member, Bethany Wofford
Bethany Wofford has joined our staff as Health Policy Manager. Bethany's focus is improving access to care by reforming health insurance policy to better support the psoriasis community. She also manages initiatives to improve psoriasis and psoriatic arthritis policy at Medicare and Medicaid. Bethany also works with the Access & Insurance Mentors (A.I.M.), recruiting, training and coaching volunteers. Bethany has worked in Portland, Ore., for Oregonians for Health Security, and in Austin, Texas, for the Health and Human Services Commission as well as the Legislative Budget Board. Bethany has a Master of Science in Social Work from the University of Texas at Austin. We are excited to welcome her to our advocacy team!Like what you read? Become a member of the National Psoriasis Foundation. Find out how. |
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