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July 2009
The days are heating up and so is psoriasis advocacy. Grammy-award-winning singer LeAnn Rimes returned to Washington, D.C., on July 8 to advocate for psoriasis research. We joined LeAnn on Capitol Hill, working our way through 11 meetings with members of Congress. LeAnn commanded attention with her clear message to lawmakers that we need greater government investment in psoriasis research. Join LeAnn in advocating for a cure by visiting your members of Congress while they are home in August. Need a little inspiration? View our gallery of LeAnn's second visit to Capitol Hill.
Best regards,
Dan Farrington
Chair, Advocacy Committee
Board of Trustees
Sheila Rittenberg
Senior Director of Advocacy
& External Affairs
LeAnn Rimes on Capitol Hill—again!
LeAnn Rimes returned to Capitol Hill on July 8, to urge legislators to support the Psoriasis and Psoriatic Arthritis Research, Cure and Care Act (H.R. 930/S. 571) and ask for $1.5 million in funding to start a national psoriasis patient registry, at the Centers for Disease Control. Read the full story >>>
Access to care: Family fights pharmacy's error
When Miriam's son, Zach, developed severe plaque psoriasis that covered a significant portion of his skin, initial treatments did not work.
His dermatologist prescribed Zach a biologic medication. The specialty pharmacy sent a letter to Miriam stating insurance covered the medication. Then the company reversed its decision and said the medication was not covered, leaving the family with a huge bill. Continue reading this story >>>
Don't forget: Meet your members of Congress at home
Anyone who's serious about changing public policy should circle August on the calendar as a time to connect with elected officials while they are home on congressional recess. Consider August as a time for"field research" for members of Congress—they want and need to hear from you! Consider attending a town hall meeting or set up an appointment locally this summer and ask your members of Congress to co-sponsor the Psoriasis and Psoriatic Arthritis Research, Cure and Care Act (H.R. 930/S. 571).
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