CAPITOL HILL DAY '05

[bella247]

I AM PASSING ALONG PJ'S POST ABOUT THE DAY HERE.....EVERYONE NEEDS TO SEE THIS!! (THX pj)
Capitol Hill Day

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Hi,

I wanted to take a moment to point out that this coming CHD may be very important to all of us in ways we had not forseen prior to the recent news out of the U of Texas. We have all understood the vital need for more research funding for psoriasis and psoriatic arthritis for some time. However, in light of the recent developments, I believe it is important to re-double those efforts.

We have a great deal of power as a huge mass of the voting public. While last year was a great start with more than 35 individuals coming togeher to lobby Congress with the leadership and assistance of NPF, that is not nearly enough poeple to attract the kind of attention I believe we all want this disease to have.

Please stop and think what it would be like on Capitol Hill if we were just 300 strong. That is a clear message. How about a thousand? Hard to ignore us flaking in the hallowed halls then. We need to come together as a strong force this coming April and join with NPF to accomplish our legislative agenda. Never has it been more true that the squeaky wheel gets the grease.

So, please, everyone who can make a commitment to attend, post here. Likewise, if you need some help in getting there but are willing to attend, please post your concerns here.

Personally, I will be there. I hope to see you all there too.

This post is not a consideration for the contest that NPF is sponsoring. I hereby formally remove myself from any such consderation except as I might gift it to another.

[makeitgoaway]

Thanks for posting!

I'm looking forward to being there this year.

[ouchyk]

Bumpin' it up..........

http://www.psoriasis.org/resources/advocacy/chd_2005.php?PHPSESSID=4282fb2aa234ae11b4a98f8ed9e a860f


Karen :)

[TravelingFrog]

Such a noble cause! I must check my schedule......

[ouchyk]

Bump.........and link........

http://www.psoriasis.org/forum/showpost.php?p=138607&postcount=151

[bugg]

im making plans to attend if any one wants to ride from Roanoke Va to D.C i'll be driving there and would enjoy the company!!! just let me know... Pm me or email juliebugg65@cox.net
julie

[bella247]

im making plans to attend if any one wants to ride from Roanoke Va to D.C i'll be driving there and would enjoy the company!!! just let me know... Pm me or email juliebugg65@cox.net
julie


Julie! I wish i could ride down there with you!!! That is awsome that you are going! I may not be able to ride, but i will definately see you there!!

take care and smile

Bella

[bugg]

Hey Bella,
i wish you could ride with me!!! cant to meet you and karen!! and everyone i havent met yet... come on yall join us !!!! as one said if we all flake together we CAN make a difference!!!
julie

[jshearer]

YOU can make a huge difference at Capitol Hill Day. 7-year-old Keira was the perfect example last year. (http://www.psoriasis.org/resources/publications/200501_chd.php)

The younger generation within the psoriasis community will especially benefit from increased research funding in the long lives they have ahead of them. Increasing research funding now will help bring about a greater understanding of psoriasis, leading to better treatments, and hopefully a cure.

The US Congress controls how the US government spends all those taxes that Americans pay. Last year, the government spent $28 billion on medical research. Only $5 million went to research on psoriasis and/or psoriatic arthritis. With your help, we have the ability to increase the amount the government spends on psoriasis research. Just imagine the benefit to the psoriasis community if the government doubled or tripled the amount they spent researching the disease.

Please join us for Capitol Hill Day 2005. If 7-year-old Keira could make a difference, YOU CAN TOO!

If you have any questions, please don't hesitate to contact me.

Thanks,
Joey Shearer
Advocacy Coordinator
National Psoriasis Foundation
advocacy@psoriasis.org

Click Here for More Capitol Hill Day Information (http://www.psoriasis.org/resources/advocacy/chd_2005.php)

[ouchyk]

bump...............

[Sprite]

I would love to be there, but limited funds and one of the days is a School Day!

I will be there in Spirit, I Promise!!!!!

Sprite

[bella247]

Restrictions are understandable....

Sorry you can't make it SPRITE, though if you could write a letter that would be GREAT!!!

don't forget, if you can't go, you can still write!!! :D

bella

[ouchyk]

Hi Sprite,

I copied this from a post that Joey had in the psoriasis section.....I hope that anyone who cannot make the trek to DC would write to help not only themselves but for all of us who suffer. Better understanding of this disease is needed so we can have more efficent treatment. We can hopefully obtain this goal through research with funding from the NIH.

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I want to remind everyone that we're going to have a large-scale congressional letter-writing campaign in March/April. We're still working out the details, but it should be pretty cool.

I'll have more info in a couple weeks. I hope all of you will join in...

Thanks,
Joey
__________________
Joey Shearer
Advocacy Coordinator
National Psoriasis Foundation
advocacy@psoriasis.org

Capitol Hill Day April 10-11, 2005

Connect. Control. Cure.

[ouchyk]

bump................ :)

[happygirl]

I didn't know you had to register for Capital Hill Day..maybe I'm not the only one who didn't realized this.

So if you haven't registered..get out and do it now.

L.

[Patchsigns]

Bella,

I was procrastinating like there was no tomorrow. But tomorrow is going to come and before you know it... Capitol Hill Day will be passed. Please write your letters to your representatives. Please.

I've written mine this morning to New Jersey's Senior Senator, Jon S. Corzine
(502 Hart Senate Office Building, Washington, D.C. 20510), to New Jersey's Junior Senator, Frank Lautenberg (852-A Hart Senate Office Building, Washington, D.C. 20510) and to my local Representative Senator, Steven Rothman.

What do you write in your letters?? Scroll up to the post that Joey Shearer, the Advocacy Coordinator for the National Psoriasis Foundation, has dated 1-31-2005. Click on where it says "Click Here for More Capitol Hill Day Information" Then Click on the 2005 Public Affairs Agenda and print that sheet.

I wrote a personal letter about me and my struggles with Psoriasis and Psoriatic Arthritis and attached the sheet.

Please... it's for our own good. We CAN find a cure, if the money for research is provided and not taken away.

Thanks, folks! ...And Thanks, Bella for bringing this important issue to our attention!

Blessings
Joe

[RichJ]

thank you joe for away to help. im printing them now.

have a good night all

richard

[jshearer]

A heads up for everyone interested in Capitol Hill Day--we're having a Web chat about Capitol Hill Day on Tuesday, Feb 22nd at 4:00pm Pacific Time.

Our Web folks will be posting more info about this on the boards and the Web site, but I just found out the date and time, and wanted to let you guys know.

I'll be on the chat, and hope you will too.

Thanks,
Joey

[makeitgoaway]

A heads up for everyone interested in Capitol Hill Day--we're having a Web chat about Capitol Hill Day on Tuesday, Feb 22nd at 4:00pm Pacific Time.

Our Web folks will be posting more info about this on the boards and the Web site, but I just found out the date and time, and wanted to let you guys know.

I'll be on the chat, and hope you will too.

Thanks,
Joey


Thank you Joey - Looking forward to it!

[RichJ]

im going to try to get on when i get home that night. sounds like a great thing.

have a good day all

richard

[jshearer]

The registration deadline for Capitol Hill Day has been extended one week to March 18, 2005. I know several people are still making arrangements to see if they can make it to Washington, D.C. Hopefully, this extra week will help. Let me know if any of you have any questions. Unfortunately, the last day the Washington Terrace Hotel will guarantee reduced rates is still Friday, March 11. So make your reservations ASAP!

I will also be accepting applications for Capitol Hill Day scholarships (http://www.psoriasis.org/files/pdfs/advocacy/2005_chd_scholarship.pdf) up until March 18. However, get your scholarship applications in as soon as possible because scholarship money may run out before March 18.

The deadline for the Capitol Hill Day contest (http://www.psoriasis.org/resources/advocacy/chd_contest.php) is still Friday, March 11. Get your recruitment forms in by tomorrow. In the event that two people have recruited the same number of new Capitol Hill Day volunteers, the winner will be decided by whoever submitted their recruitment form first.

Thanks,
Joey

[SandraJean]

bump......

[Kimbercat]

The deadline for registration is approaching quickly. Please sign up today! We want to see all of your beautiful flaky faces in WA DC!!! :cool: