Todays Capital Hill Day!

[misales]

I am so blessed to work the afternoon shift so I had the opportunity to see President Bush take the Oath of Office.

Why is this so important? I have been told, at Daavlin, that I was fortunate to get an agressive course of UVB at my derm. Daavlin sells uvb both stateside and internationally. I was told that in Europe they are much more agressive in treating psoriasis with uvb, however in the states, derms are scared of burning patients and getting sued so they back off. Another effect of this "backing off" means that we pay more for more and longer treatment periods (derms probably like this, more $$$)

There are risks with most of the forms of treatments, including the new ones, that we are offerred. Please stand behind me and President Bush in limiting the malpractice liability of doctors so that they can be more aggressive (reasonably now...they are trained) with our UVB and other treatments.

I voted my skin in November......did you? And for those of you going to Washington, please be sure to spread the word, give us help.

[grannyfranny]

Brad,
I agree with you. Treatment has improved a lot in the last 20 years or so.

I did get burned-I had blisters 1/2 high in the palm of my hands. I couldn't do much of anything until they healed. Vety painful, more that pp.
Did I sue-no-because I knew the risk and did the treatment. However, I do think that the technician did not do the treatment right and told the doctor. Believe me, they were scared.

This was before they had the light boxes just for hands and feet. But still, you couldn't pay me to have those treatment again.

And I did vote in November!!!!!! ;) ;) ;)

[rosy3939]

I would stand behind the president on liability insurance reform if he would stand behid the American people and support Universal Health Care, support increasing funds for medical research, allow the desimulation of information on reproductive health rights to all women and other healthcare issues.

He speech today was beautiful. Unfortunitly he didn't write it, believe it, or and dosen't practice it.

Mitch

[MelissaLynn]

Hi Everyone-
I will be there, though I am not yet registered- I soon will be.
Im still interested in "helping out" but I need to know whats going on with that. Please PM me.
For a list of Citys we fly- go to www.jetblue.com.
If you know of someone that wants to participate in CHD and is in or near one of our Citys, please contact me. The sooner I write my proposal to Jet Blue, the better. The number of flights I will be requesting is going to be based on the requests I receive. The quidlines are simple. The person must have P or PA. and they must be a verifiable member of NPF and they must submit a request to me before March 8th.

So, there ya have it. You can count me in, but more importantly, please PM me if you or someone you know of is interested in going and is in or near a city that Jet Blue serves. I will then write a formal letter of request on behalf of the Members I would like Jet Blue to help get to Capital Hill Day.
There are no guarantees, but I have excellent reason to believe this is something they will honor.
I believe its very important to have a strong voice this year, as medication cost rise, as debilitating diseases like ours continue to grow in numbers and so too does the number of people it affects.

Best to you all,
MelissaLynn

[rosy3939]

Thanks Melissa. That is great. I know for some the airline fare makes coming to Washington prohibitve. Good job! I hope you get some takers. I dfo understand that they are withing Jet Blues geographic arear.

Come on people, PM Melissa.

Mitch

[SandraJean]

Hi,

That is great about contacting jetblue! I will be going to Capital Hill days too and have already registered. I'll be coming from Rochester,New York and we are going to try to drive down there, but it would be great to have as many as we can get to come. I haven't been there before to it, but know we all need to get as much information down there as we can to help us all with p and pa. Looking forward to meeting you all down there. Good luck. Maybe if you are able to work with jetblue out in California, maybe jetblue will work out of other cities too!!
Sandy :)

[misales]

Here, no wonder they're scared........

http://www.dermatologytimes.com/dermatologytimes/article/articleDetail.jsp?id=95964&pageID=1

[raydon14yp]

When is capital hill day? If you cannot attend, all of you should send emails to your representatives, senators, and yes, President & Mrs. Bush about the perils of all the forms of p.

[ouchyk]

Here is a link from Joey;


http://www.psoriasis.org/forum/showpost.php?p=140797&postcount=160

Karen :)

[bella247]

When is capital hill day? If you cannot attend, all of you should send emails to your representatives, senators, and yes, President & Mrs. Bush about the perils of all the forms of p.


More than five million Americans need your help
The National Psoriasis Foundation will host our second annual Capitol Hill Day April 10-11, 2005 in Washington, D.C. The psoriasis community needs you to be there!

Register now – Schedule & more details

2005 Public Affairs Agenda (191k PDF)



What is Capitol Hill Day?

You visit the offices of your U.S. Representatives and Senators to tell them and their staff about psoriasis, psoriatic arthritis, and the importance of increasing funding for research and ensuring good access to medical care. You build personal and political connections that will help more than 5 million American men, women and children diagnosed with psoriasis and psoriatic arthritis.

Why should you go?

It's important! Over the last 10 years, Congressional funding of the National Institutes of Health has increased 148 percent, while psoriasis research funding has decreased 13 percent. You will make a difference! In 2004, volunteers met with more than 40 Congressional offices. It's fun! Connect with like-minded Foundation volunteers from all around the country. It's easy! No experience is necessary and the Foundation schedules your appointments. In 2005 we may find the Congressional "champion" we need to really advance our cause!