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rosy3939
03-02-2005, 11:56 AM
“First they came for the Communist, but I was not a Communist so I did not speak out. Then they came for the Socialists and the Trade Unions, but I was neither, so I did not speak out. Then they came for the Jews, but I was not a Jew so I did not speak out. And when they came for me, there was no one left to speak out for me”.
Rev Martin Niemoeller


For all those who are helping and gathering signatures, going to Capital Hill Day, writing letters to congress this thread is not for you. First to those who have taken the petitions, written letters and are planning to go to Washington for Capital Hill Day, thank you. We are know we can make a difference!

To those who chose not too help or to completely ignore the plea for help to get this petition drive project moving or refuse to write letters to their congressmen or women, I am perplex. I can’t understand why you would not be willing to help fight your own disease. This is a simple task. There is no brain surgery here.

Would you rather wallow in your own self-pity? Woe is I?

Do you only care about yourself and how psoriasis and psoriatic arthritis effects only you?

Is your mantra the Golden Rule? I got the mine and the hell you?

There are twelve of us who have started this petition drive. Karen, Bella, Rhonda, Krista, Marie, Kim, Jody, Mike, Steve, Matt, Dave and Myself.
Our screen names ar Ouchyk, Bella247, Gumbygirl, Kkellogg, Nitegale, Kibercat, Jodygk, Mikek, Makeitgoaway, Flakeymatt, Raynard the Fox, and myself Rosy3939.

If anyone us have helped you along the way and I know many have been helped, then it time for you to help us. Sitting on your hand is not expectable. There is a joy in helping others. Even if all you can only get your immediate family member and friends to sign that will help!

The Level of apathy is appalling, the lack of caring for your fellow sufferers is pitiful. The level of disdain is vulgar. It is time to wake up.

I know many of you will view this post and go about your merry way. Some will get mad and angry and some will post how dare I.

I do dare! I dare you to get off your duffs and gets involved. Take a petition get it signed, write letters to congress and get active. There will be NO cure, there will be NO better forms of treatment :confused: for our disease, there will No hope if we leave the fight to others.

Abe Lincoln said, “You have the right to criticize if you have the heart to help”. I am questioning that heart!

Mitch Rosenberg

RichJ
03-02-2005, 01:25 PM
hi mitch
i got 20 names today. my derm signed it and staff. the lady at the derm once's me to fax here a copy to put in the office. for me i not afarid to ask. that's just me. don't get mad i mean noting buy that. there is not alot that i can do but this i can. i taking it along bowling tonight to see if any one will sign it. you have all helped me so much so im trying to help you all back.

have a wonderful night all

richard

Patchsigns
03-02-2005, 01:38 PM
Hey Mitch...

You folks are to be congratulated. I've got my petition and ran off 25 copies of them along with the submission guidline to it.

I've got signatures going, as well.

Please know that you do not have 30 spaces for signatures. You have only 29. (Line #9 is missing...) So, when you calculate the amount of signatures, keep that in mind.

One other thing... to all of you participating in this petition... when you eventually send your sheets out to Mitch, please make a copy of it before you send it. Please. I don't want to put the post office down, since I do work for the post office... but occasionally, things DO get lost in the mail and every signature is so very important.

Let's unravel the mystery of this disease. We can't let the funding for research go away. And it will be a grim reality when it does and we haven't written our Congressmen, Representatives or helped with what we hope will be 20,000 signatures nationwide.

It begins with you and me.

Come on. let's do it!!

Blessings,
Joe

03-02-2005, 05:00 PM
Come on, you guys...even if you're the only one who signs it, you're contributing one signature to a very needy cause. (I'm thinking you could probably get 3, but you get the point :))

Help yourself!

Kimbercat
03-02-2005, 10:38 PM
I'd just like to add that if any of you do not know how to contact those of us who are working on this petition drive through a pm (private message), please post a message here, and we will find a way to reach you. I realize that not everyone understands how pm's work. We are all monitoring the boards for responses, so we will see your post.

If you understand how to get into chat, you can usually find one of us there as well. Please help us help ourselves. :o

JodyGK
03-03-2005, 07:04 PM
I'm cashing in all my favor cards! Got the clinical studies department of Stanford University to circulate the petition, since our support group disseminates information on their clinical studies to our members. Let's get this thing signed by our friends, families, co-workers, everyone!

Jody

coachG
03-03-2005, 07:17 PM
I took the petition to a gym that we are training at, in Marianna Florida.....I had to explain psoriasis to a group of karatee dudes (in order to get all their sigs)......but I got them!!! :) Go US!!!!! I like being on a mission.

kkellogg
03-04-2005, 12:38 PM
Nice job, Coach!

rosy3939
03-05-2005, 02:57 PM
Bumping this to the top.

Its never top late to get involve.

Its never to nate to give a damm!

rosy3939
03-15-2005, 07:21 AM
"It is not the critic who counts, not the man who points out how the strong man stumbled, or where the doer of deeds could have done them better. The credit belongs to the man who is actually in the arena: whose face is marred by dust and sweat and blood; who strives valiantly; who errs and comes short again and again; who knows the great enthusuasms, the great devotions, and spends himself in a worthy cause; who at the best, knows in the end the triumph of high achievement and who, at worst, if he fails, at least fails while daring greatly, so that his place shall never be with those cold and timid souls who know neither victory or defeat."

Teddy Roosevelt

I APPRECIATE ALL THE HARD WORK DONE BY MADE MANY AND TOGETHER WE WILL MAKE A DIFFERENCE IN THE FIGHT AGAINST THESE DREADED DISEASES, PSORIASIS AND PSORIAIC ARTHRITIS.

FOR THOSE WHO CHOOSE TO SIT ON THEIR BUTTS, UNWILLING TO HELP, WE HOLD NO GRUDE; EVEN KNOW WE ARE FIGHTING FOR YOU TOO.

FOR THOSE WHO WON’T WRITE LETTERS TO THEIR ELECTED OFFICALS, WE UNDERSTAND. MAYBE YOUR DISEASE IS NOT BAD ENOUGH TO GET YOU TO FIGHT, WE HOLD NO GRUDGE, EVEN KNOW WE ARE FIGHTING FOR YOU TOO.

FOR THOSE WHO WON’T TAKE A PETITION EVEN IF IT’S JUST TO GET YOUR IMMEDIATE FAMILY MEMBER AND FRIENDS TO SIGN. WE UNDERSTAND IT IS AN EFFORT. WE HOLD NO GRUDE. EVEN KNOW WE ARE FIGHTING FOR YOU TOO.


MAY YOU ALL SLEEP WELL TONIGHT. FREE OF PAIN, FREE OF ITCH AND SECURE IN KNOWLEDGE THERE ARE PEOPLE FIHGTING FOR YOU, AND YOU ARE WILL TO DO NOTHING TO FIGHT FOR YOURSELF!

Mitch

MrsBowhunter
03-15-2005, 08:09 AM
So, are the names still needed, or has the date come and gone?
Where do I get a petition? I don't know a ton of people, but I'll bet I could manage about 50 names.

Natalie

mdgirl
03-15-2005, 08:11 AM
Mitch,

It is going to be a pleasure meeting you and everyone else on Capitol Hill Day. We really need our voices to be heard.

As I sit here at my desk at work..... hurting, itching, bleeding, and can't hardly move. I don't want you to feel sorry for me. Yes, I am 95% covered, but I am not cripped. I will help this cause in any way that I can. God helps those who help themselves.

Diane

MikeK
03-15-2005, 08:18 AM
Natalie: it's not too late. I just sent you a pm. Please respond with your e-mail address and I'll send you a copy of the peition. Thanks for offering to help.

Diane: You have no idea how much I'm looking forward to meeting you. I hope that you feel better soon.

Mike

rosy3939
03-15-2005, 08:38 AM
Diane I too am so looking forward to meeting you. I don't feel sorry for you.

I do which there was something I could do to help. But by going to CHD, writing letters and getting petitions sign you are advocating for your own disease. Right now that he best we all can do.

May all who suffer feel better.

Mitch

kkellogg
03-16-2005, 09:39 AM
Bump.................................

SandraJean
03-16-2005, 09:59 AM
Hi,

I just sent my petition back to Mitch. Wanted to get more names but was a little limited on getting around alot. I still have another petition that I'll see if I can get some more.

Sandy