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View Full Version : APATHY = MORE SUFFERING


rosy3939
03-18-2005, 10:45 AM
"Today I try my best to transform my anger into passion and productivity. But I will not put my blinders back on and excuse everyone's self-centered pursuits in a world full of people who are suffering because of that selfishness. I am not a coward. I am not a hypocrite. And I might die an outraged activist, but one with both a clear vision and a clear conscience."

I wish I could take credit for that statement but I can't. It a young woman named Robin Horowitz. She had the words but they discribe me. It really bother me so, that the vast majority of people who come to these board don't care if others live or die let alone get relief as long as they get help for their psoriais or psoriatic arthrits.

It is a very shallow world we live in. I will continue the fight with or without you for you and for me. When I think of the apathy shown by the vast majority of the people who come to these boards the only word that applies is the word disgust.

I do know that there are many willing to fingt to make our diease more managable. And they fingt in many, many ways.

Activism is here, but it alive and well in too few people. I have seen it with my own eyes, and have spoken to many and hear their voices. But the numbers are few and far between. The vast majority who come to these boards don't care about anything but themselves. Selfish and self-certered. The evidence is plain as day and there can be no denying it.

I haven't call the National Psoriasis Society this week but I would venture to guess that there are less than forty people signed up for Capital Hill Day.

Less the 60 people took petitions to gather signatures. I understand that would take a little effort. Don't you want to effect change or do you want to continue to feel sorry for your self and let other do the work for you?

I have only seen a handfull of people who have posted their letters to their represenatives. I am sure more people did but for the rest you who have sat on you ass, don't you have a concience?

I KNOW MOST PEOPLE WILL READ AND IGNORE THIS POST. I WILL GET POST FROM SUPPORTERS AND I WILL GET THOSE WHO WILL SAY HOW DARE I.

TO THE ACTIVIST, THE DOERS THE SUPPORTERS WE MUST NEVER STOP.

TO THE LAZY, THE SELF-CENTERED, THE "ME" GENERATION PEOPLE, I DON'T DON'T CARE WHAT YOU POST OR WHAT YOU THINK OF ME. JUST GET OFF YOUR BUTTS AND DO SOMETHING. DON'T WAIT TO DIE!

"Everthing is bleak,
As I stand here alone,
Guilty of my sins,
Which can'tbe condoned.

Everywhere I look,
It's everything I see,
A monstrous disease,
The call Apathy.

I can see it inside,
It has grown to much,
Nothing can save me,
Not even your touch."

EITHER YOUR PART OF THE SOLUTION OR YOU ARE THE PROBLEM!

RichJ
03-19-2005, 12:28 PM
hi mitch
well all i can say is that i did my best. it wasn't much but i tried. i didn' get alot of people to sign my petitions. but i got some. it was worth it. i hope you got it the mail. im not saying this to make no one mad.

have a good day all

richard

Kimbercat
03-19-2005, 11:42 PM
hi mitch
well all i can say is that i did my best. it wasn't much but i tried. i didn' get alot of people to sign my petitions. but i got some. it was worth it. i hope you got it the mail. im not saying this to make no one mad.

have a good day all

richard
Richard,

Every single signature we have is one more towards our goal. Even if only each member took and signed a petition themselves, we would have 46,804 signatures (this is based on the number of members shown on this site). Some people are able to gather more signatures than others, and this is wonderful, but every single signature counts!

I would like to add to Mitch's plea requesting that everyone please request a petition, even if only you and the members of your household sign it. Our time is short, but we still need help, and if you do it quickly, you can still do your part. Please help! :o

winter
03-20-2005, 09:58 AM
I am the head of the Minnesota Psoriasis Information Group. Our group has been in existance for over four years now with a good sized membership. However, the National Psoriasis Foundation has delisted our group because we agreed that the contract was prohibitive and too demanding. I continue to have meetings and I continue to support the NPF and even ask for and get their literature to pass out at our meetings. I also keep lists of all research projects and we have many in our area so that the uninsured have a place to go for treatment. We keep lists of doctors who are interested in treating psoriasis and psoriatic arthritis and lists of agencies that will help people get coverage from their insurance companies for treatment. I have asked NPF to reinstate us. They currently are not refering callers to us and have threatened to form another support group in Minnesota. All of our work was acceptable and even praised by NPF until this contract was forced upon us to do or be delisted.

As the leader of our group, I am very much aware of how depressing and difficult it is for psoriatics - that is people who have psoriasis - to cope with the severe demands of time and money or even to be able to talk about it in front of others. My dermatologist pushed me into starting this support group and I found so many wonderful people and such relief in being able to talk with others about the problems and solutions.

kkellogg
03-21-2005, 07:08 AM
Hey peeps:

I spent the weekend thinking about my cancelled meeting, CHD, and this thread. I still haven't completely shaken my blues. I understand resistance and fear and well, apathy. It is a scary thing to finally find shelter from the storm and then have to rile yourself up again for battle. The warm quasi-anonymity of the boards is a potent elixer.

I sent petitions to everyone I could think of - my nearest and dearest. My return, though not totally meager, has disappointed me. The CHD chat disappointed me. The absence of the sample letter to congress disappoints me. Winter's post disappoints me.

But still, miracles happen here everyday. Someone stumbles on this motley crew of ours and they are saved. Saved from the loneliness, the dispair, the frustration and most of all - from themselves. This has to count for something. This has to matter. Life is a cycle, p is a cycle, and our tolerance for each other as human beings ebbs and flows. In the end, we can only be responsible for ourselves.

I am looking forward to CHD, to participating in the process, and to sharing ideas about our future.

Fight the P,

Krista

khorath
03-21-2005, 08:38 AM
Like Winter, our support group was delisted. Our group found the new regulations too demanding and too restrictive as well. But, I'm continuing on....I'm doing everything I can in the central Illinois area to get the word out. It feels like I'm alone, but that's OK.

Our last support group meeting was not well attended. In fact, I've changed our schedule to every other month. I'm hoping our Big Event (http://www.hillsidebethel.com/psoriasis.mp3) on the 31st helps. I was discouraged for a couple of months at the lack of interest or concern, especially since we had high interest and participation when we first started. I've decided to not let that affect me. I know what I'm doing is right and will keep on doing my best to educate and help others with psoriasis. I will continue to contact my representatives. I will continue to do what I am doing, even if it helps just one person.

Everyone, stay encouraged! Keep doing what you can - no matter how small or insignificant you may think it is.....