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misales
04-03-2005, 08:04 AM
From our good friend Mike Paranzino

http://www.psorcurenow.org/jointhebattle.php

This is absolutely free and easy to do. I just did it myself. If you're busy like me take a few minutes while you're surfing and you can send your opinion about psoriasis funding to your representatives.

Mike advised me that this will make an enourmous impact. If you're like me you might not have time to write a lot of letters and put them in the mail, but this makes it so easy it's actually not hard to express your opinion.

It is not a form letter as there is an area where you write in your own message.

Take advantage if you have an extra 5 or 10 minutes today.

I have to say that I am impressed. This is the first time in my life that I have used or seen something like this.

RichJ
04-03-2005, 06:07 PM
hi brad
thank you for the wonderful info. i try to do 2 times today. i will do it again tomarrow. it's a better comp to do things on. o i feeling like good.

have a good night all

richard

misales
04-03-2005, 06:16 PM
Hi Rich, it is good info, i'm not a really good letter writer, I only usually write just a few a year.

If you get on a good computer and even have someone help you just do step one, it's pretty simple and you will send your psoriasis letter to your representatives with a few clicks on the keyboard. very easy and you're in business, all free of charge.

It is a form letter but you can add your own feelings into it too if you want as there is a box where you can add your own personal message. Mine got sent to two in congress and two in the Michigan Senate.

Thanks for trying, I'm sure you will get it to work. Sometimes these computers have a mind of their own.

GitOverIt
04-03-2005, 06:57 PM
I sent mine ....but our senator Birch Bayh has a new program so it didn't go through but it did send me an email telling how to resend it...So I did...the only thing was...I couldn't copy and paste....I had to retype the whole thing....I added to it telling them how children are affected by this disease. It was a very well written letter whoever created it.

makeitgoaway
04-03-2005, 07:09 PM
Bump!!!!

This is so easy to do. Please don't delay!

ARL
04-03-2005, 07:52 PM
Brad,,,somewhere I already did this,,,and I rec. an email thanking me....

misales
04-04-2005, 05:00 AM
But as far as I know the letters to representatives is. If someone else had it I'm not sure, but I think that this part of the website went live yesterday.

misales
04-04-2005, 06:21 AM
http://news.yahoo.com/news?tmpl=story&u=/usnw/20050404/pl_usnw/psoriasis_group_launches_online_advocacy_center_to _help_psoriasis_patients_reach_out_to_congress301_ xml

Mybadgenes
04-04-2005, 06:52 AM
I did it!! They made it sooo easy for me. Thanks,

Juanita

RichJ
04-04-2005, 09:03 AM
hi brad and steve. remember it's me tring to do this. i will get it soon. me and computers never see eye to eye. the guys at work are driveing me up at tree. darn it. lol all

have a good dday all

richard

linda77
04-04-2005, 09:07 AM
how smart you are!!!! i sent a long letter telling them how much we need funding....i sent requests to 6 more of my friends and family to do the same...thanks for the oppretunity to help

SandraJean
04-04-2005, 09:12 AM
I just did it too. Very easy. I also hand wrote a letter to all of my state people about a month ago, but haven't heard anything yet. I also let them know in my letters that I will be coming down for CHD.

Thanks,
Sandy

rosy3939
04-04-2005, 11:46 AM
Suggest you guys check out the home page of NPF's board. They now have posted an electronic letter writing campagin. I guess who is ever running this went live today. Both sights started on 4/4/05.

Please register on the NPF sight as soon as possilbe. It is a great begining!

Mitch

RichJ
04-04-2005, 11:59 AM
thank you mitch. i didn't know the npf had one. i will do that right away. thank you for all you do on here.

have a good day all

richard

gickster
04-04-2005, 12:21 PM
thanks... sent it just now..

~gickster

SandraJean
04-04-2005, 12:43 PM
Thanks Mitch,

I will send it in right away.

Sandy

abbyroad
04-04-2005, 05:50 PM
that's was great info Brad and Mitch....
sent out the letters to "Lady Di" Feinstein and Barbara Boxer and also sent this link out to my family and friends...
thanks!
Abby

RacerX
04-04-2005, 06:33 PM
Sent my message. That was too easy!

MrsPriz
04-04-2005, 06:51 PM
Easy as P I E!!!

Mmmm pie....