More than 3,000 letters to Congress sent so far...

[jshearer]

I've posted this elsewhere on the boards, but I thought it might be useful as a "floating" thread...

As of 8:55am Pacific Daylight Time, more than 3,000 letters to Congress have been sent through the National Psoriasis Foundation Web site.

Keep up the great work! If you have not already participated in this letter-writing campaign, please do so. And spread the word to friends and family. But please only send this same message once. We don't want to SPAM Congress--that will not help our cause.

TAKE ACTION NOW! (http://capwiz.com/psoriasis/issues/alert/?alertid=7318706&type=CO)

And stay tuned for further updates...

Thanks,
Joey

[GitOverIt]

Hey Joey!!!!!!!!!!!!!!!

great...happy to be
v
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[rosy3939]

It is a good start but only that.

Considering that` there are 47,725 member last time I checked. And each person send 1 letter to three people. That means that have been 1000 hits to the thread.

Doing the math that is less that 5% of the membership of .047725 to be exact. Not taking into account those that visit the sight and are not members takes that number down evern more.

I guess what I am saying is for those who haven't sent there letter,"WHAT THE HELL ARE YOU WAITING FOR?"

That number should be ten fold. It quick. It easy and it cost nothing!

Mitch

[abbyroad]

and I also asked my family and friends to send out as well...
hope we can get more...3000 is a great start!
Abby

[Nanicker]

I sent mine today plus posted it on another forum I frequent (I hope that's okay) and sent it to all my friends and family. If we all do that it can make a huge impact!

[MikeK]

I sent mine today plus posted it on another forum I frequent (I hope that's okay) and sent it to all my friends and family. If we all do that it can make a huge impact!The more the merrier!

Mike

[RichJ]

hi nanicker.
can i copy and post your letter and change some to look like i did it. im have been try to right some thing in that link and send it. but nothing i put makes any sence. i need a start. i don't have a copy of the other letter that i sent out. can some one help me.

[makeitgoaway]

hi nanicker.
can i copy and post your letter and change some to look like i did it. im have been try to right some thing in that link and send it. but nothing i put makes any sence. i need a start. i don't have a copy of the other letter that i sent out. can some one help me.

Rich,

If you do it properly, you do not need to write anything. There is a letter already there for you. All you have to do is fill in the blanks (name, address, etc.).

When I first saw the site I was also confused. If you logged on from the NPF main page, there were two options to click on, one has a letter and the orher does not. Which ever link you clicked on, click on the other one.

I hope this helps.

[RichJ]

thank you steve, i did it and it worked. im so glad that you know how i have problems under standing things. thank you my friend.

have a great night all

richard

[Karen_M]

Considering that` there are 47,725 member last time I checked.
Just wanted to clarify -- that nice big number you see on the forum homepage is actually the total number of members and friends combined. If you look a little higher on the page, you'll see the breakdown of Currently Active Users. Right now it's 855 (95 members and 760 guests). That gives a better picture of how many people use the Psoriasis Foundation forums vs. how many are members of the Foundation.

[Nanicker]

hi nanicker.
can i copy and post your letter and change some to look like i did it. im have been try to right some thing in that link and send it. but nothing i put makes any sence. i need a start. i don't have a copy of the other letter that i sent out. can some one help me.

Hi Rich! It looks like you figured how to do it but I wanted to let you know that if you ever need any help, I'm here.

You are such a sweet guy!

Nancy

[RichJ]

hi nancy,
thank you for offering me your help. i will alway remember that. thank you and have a good day my friend.

have a wonderful day all

richard

[slowe]

I sent mine in yesterday. I also sent the info to my parents, husband, and some co-workers so those numbers will be going up. :)

[rosy3939]

Karen thank you for pointing that out but I am still correct. There are 47,000+ member of the NPF. That is the number I used to do my math.

How many people on line or guess on at any one time dosen't matter the numbe of members is constant and only changes by new membership or those who do not renew.

I am not being arugementive 3000 letters is a good start but the number is still very, very low. I have high expectations and not willing to settle for less!

Mitch

[littleangel]

i just spammed my friends and family so hopefully they'll help the number jump a little :)

[timothy41]

Sent mine out, only takes a sec

[jshearer]

And over 4200 letters have been written to Congress...

[rosy3939]

Joey I agree it a very good start but its only that a good start. Your target number should be 143,175 letters. Three letter for every member of the NPF.

All I was trying to bring out is that number is way to small for number of members we have. There is very large number of very lazy, self-centered people who are suppose to be members who want others to do the work for them.

Hopefully you have been emailing everyone you have an eail address for to inform and hurge them all to partisipate.

Mitch

[ladybloede]

LOL I like the way Ali put it, I also spammed my friends and family! I know my mom, brother and sister have done it, a few of my sister's friends, among others. I think I've contributed about 10-15 at this point. Will keep spamming them haha ;)



mari

[RichJ]

hello all. it did work. this what i got back. i hope know one minds. if some one dose or the npf dose. i will did it or the npf can. just let me know. im happy that it worked. that all. i like went i can do some thing right. have a good night all.

Thank you for using National Psoriasis Foundation Mail System

Message sent to the following recipients:
Representative Dent
Message text follows:

richard



April 7, 2005

[recipient address was inserted here]


[recipient name was inserted here],

I am writing to seek your support in addressing the urgent need for
increased federal research funding for psoriasis and psoriatic arthritis.
Specifically, I am urging you to support a 6 percent increase in funding,
to a total of $541.6 million, for the National Institute of Arthritis and
Musculoskeletal and Skin Diseases (NIAMS) as part of the FY 2006
Labor/HHS/Education appropriations legislation.

Please contact the chairman and ranking member of the Labor/HHS/Education
appropriations subcommittee, and ask them to support additional research
funding for psoriasis and psoriatic arthritis.

Psoriasis is a chronic, immune-mediated disease for which there is no
cure. Psoriasis—and the psoriatic arthritis that accompanies it in upward
of 30 percent of cases—can cause severe pain and severely reduce a
person's quality of life. A study funded by the National Institute of
Mental Health found that psoriasis can cause as much physical and mental
disability as other major diseases including cancer, arthritis,
hypertension, heart disease, diabetes and depression.



Since 1995, funding for the National Institutes of Health has increased by
148 percent. However, funding of psoriasis research at NIAMS has actually
decreased by 13 percent. NIAMS currently spends less than $1 per American
with psoriasis on research for a disease that costs more than $4 billion
annually to treat. Additionally, according to surveys conducted by the
National Psoriasis Foundation in 2004, more than one-third of people with
psoriasis and/or psoriatic arthritis reported they were not working in
whole or in part because of their disease.

The best hope for the psoriasis community is increased federal research
funding for better treatments and a cure. Thank you for your attention. I
look forward to your reply.

Sincerely,


richard

[nla]

I did the same, sent my own letters and emailed friends and family to do the same. I am, however, quite upset at a reply I did get back. Of ALL THE PEOPLE.....John Sununu's office sent me the most generic response I have ever seen!! I am fuming!!!! It doesn't even mention the subject matter. Then it says if I am a NH constituent I will also get a written reply. I am now going to send a snail mail letter that really details how much this disease effects us all. Also, I have a good friend who knows him pretty well. I'm going to give him a call tomorrow just for the heck of it to see if he can also send something. I figure it's worth a shot.

This has definitely opened my eyes as to how important these letter writing and lobbying campaigns really are. We must make our voices heard!!

Keep up the great work everybody!
Nancy

[seedoubleyou]

I sent my letters earlier this week via a link that was posted to the site, psorcurenow.org. I also at that time entered 6 e-mail addresses of family members & friends in the spaces provided.

I DID check out the NPF link (posted the following day) and it appeared to be much the same as those on the other site. If not, I would be more than happy to do it again.