Look out Washington, here I come!!!

[MikeK]

Mitch is picking me up in about five minutes. I'll see everyone on Tuesday.

Mike

[RichJ]

hi mike,
have a fun and safe trip. see you tuesday. good luck. :D

[cherrysn]

have a safe trip guys~! good luck!

Good morning Rich ;)

[RichJ]

good moring cherry. the sun is out. yeah yeah. nice to hear from you. to all that are going to chd. be safe and good luck. maybe next year for me. i wish you the best.

[neese]

Mike,

Thank you for going it means a lot for you to speak out for yourself and the rest of us....

xoxo
Denise

[kimberlyjoy]

Good luck guys:)

[ladybloede]

Have a great time and thank you! I wish I could be there with you guys, you are much appreciated.


mari

[cakp12]

Thank you all for carrying our plea to the powers that be, If I had found this site sooner I would have joined you. I found it in time to get some signatures, hope it helps. I am so happy to have found everyone here and hope to meet many of you in person in Boston this summer. No one understands like someone who has been there!!!!

[Moonchild]

I too wish you all the best of luck..It takes a very strong bunch to do this for the rest of us P sufferers...


I will be thinking of all of you !

[Kimbercat]

Hi from DC

Wow! Technoloy is awesome! I have access from my room. I have never been here before, and this is the experience of a lifetime! I am so glad I came! I can't wait to start our mission here, and wish everyone could share the experience with us. We are thinking of all of you, and truly hope to further our cause.

[Moonchild]

You are one of the best Kim !!!!

Good Luck, and we will see you all when you get back.

Raise Some HELL !!!!

[abbyroad]

Good luck and have fun this weekend!!

Kim, that's great you can keep us posted like that in your room!
Have fun...
we're all there in spirit!
Abby

[ouchyk]

CHD was the most wonderful experience...I would love to see the numbers doubled again next year. What a truly AMAZING group of people. It gave me more hope than I have had in a long time that we will see P & PA researched to find better treatments & a cure.

I have a whole new perspective on what we as a NPF membership community can do by spending time with our representatives telling our stories and asking to have our hard earned tax dollars put to work for us. Also new light was shed on what goes on at the NPF there is so much more than the message boards!

It was a positive experience in every office that I visited. Many thanks again Steve for your help in Rep. Lynch's office & to everyone for being so friendly and supportive. What a great team.

I look forward to helping where I can in advocacy, it doesn't end here. Being pro-active is now part of my treatment plan!

Karen :)

[ladybloede]

That's great Karen :)

Did you say the numbers doubled from last year? How many were there?

[MelissaLynn]

Thank you, Everyone!

xoxoxo
MelissaLynn

[ouchyk]

Mari,

Last year at CHD I believe there were 30 people, this year the number doubled to at least 60. I would love to see that number grow with each year. Many of the people who attended do not frequent the boards.

We can make a positive impact on our health by being pro-active. I firmly believe this.

I'm really excited about this MOST important aspect of the NPF & I'm sure that Joey will be posting when he arrives back regarding what we can do next. :)

Have a great night.
Karen