Let's all welcome, Spoo!

[MikeK]

Hi Everyone,

Lisa introduced herself to us in Steve's (makeitgoaway) Pustular P Poll. I figured that she'd get a better response if her story was told in a brand new thread. Here's a copy of her introduction to us:Yes, I smoke...:(..I have only now begun to have pustular outbreaks but have had severe psoriasis since age 17 and pa since age 34 (i'm 37 now). The strange thing is that I have been on Remicade since Feb 2004. The pustular flares begin around 3 weeks after my infusion and last until after the next infusion. I am pretty sure my derm will take me off the Remicade after my next appt. I believe I am making the antibodies now, hence the pustular flares. Anyway, this is my first post on this site. Would like to get to know other people dealing with the same disease as I am. Good luck to all.
LisaSource: http://www.psoriasis.org/forum/showthread.php?p=206272#post206272.

Thanks everyone!

Mike

[RichJ]

hi spoo,
sorry i can't help much but welcome to the p family. you have met some of the wonderful people on here and will find alot of great info. welcome and nice to meet you.

have a good night all

richard

[bratsareus]

Hi Lisa, and welcome to the boards. Hope your doc figures out how to help you.
Patty

[rosee_posey]

Originally Posted by spoo
Yes, I smoke.....I have only now begun to have pustular outbreaks but have had severe psoriasis since age 17 and pa since age 34 (i'm 37 now). The strange thing is that I have been on Remicade since Feb 2004. The pustular flares begin around 3 weeks after my infusion and last until after the next infusion. I am pretty sure my derm will take me off the Remicade after my next appt. I believe I am making the antibodies now, hence the pustular flares. Anyway, this is my first post on this site. Would like to get to know other people dealing with the same disease as I am. Good luck to all.
Lisa
*******************************************
Hello Lisa,
I'm sorry to hear about your appearance of Pustules. That must be really heartbreaking after enjoying a remission with Remicade for a year and a half. (I am assuming you had a complete remission. correct me if I'm wrong.).

I am a little confused. You may have the Remicade antibodies now, so it may not work as well as it used to, but why can't the docs just up the dose, shorten the time between infusions, or add Methotrexate in the mix? Have you already played with the dose since you achieved remission? Just curious.

I have Generalized Pustular Psoriasis and found that MTX as a monotherapy did a great job at keeping the pustules away (but left me with large amounts of plaque). Along with Remicade, I have had a remission from 2001-2003 (with 12.5 mg MTX/week and 8mg/k Remicade), and when I got my Remicade back in 2004, they were able to put me on the same dose of MTX, but this time on 5mg/k of Remicade, and I enjoy the same remission I had 4 years ago.

Have you considered Humira? Since it's fully humanized, you won't have a problem with antibodies being formed.

I hope they find an answer for you. PM me if you'd like to talk.

Hope this helps,
- rose

[wildflowerAnn]

Rosey Posey, Your post makes me happy. To hear that you had years of remission gives me hope. The itching is uncomfortable, but when the skin turns bright red and the pustules appear, the burning feeling and swelling of my legs and feet are absolutely intolerable. I now keep a hospital bag packed and ready to go, just in case this happens again.