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View Full Version : Opps I posted wrong..I am new


Bassetmom
02-09-2006, 07:33 PM
Hi, I posted a message in the wrong place. I am new to this site. I have done a little reading of some posts and I sat there and cried. I do that a lot. A year ago, I had sore feet and by Fall I could not get out of a chair. My fingers started to curl and I couldn't write. I could not sit...yada yada yada...you all seem to have been there. This started with a rash that I developed when I was going through an awful stressful time. It covered me from head to toe. The derm never diagnosed it. Now I have patches of P on my scalp but that's it. Now I want to know what to expect. I am taking 16 mg of prednisone down from 20 and 12.5 methtrexate. I get a little "ewggie" the next day. What I am relieved to hear is that the fatigure is normal for PA and I am not being a lazy bum. I used to cry and cry hard everyday. I am a doer and to not be able to work like crazy is hard for me. Sometimes I just want to sit and not do anything, but the guilt stops me. I don't sleep through the night as the drugs wear off around 2. I can't move great in the am. Fortunatley I am teaching at night. I scared and frightened and frustrated. My beloved is understanding but he doesn't realize how much pain I am in. He is also use to "the White Tornado" as I used to be teased. I have so many questions. It is great to have a palce to share and learn.
Bright Blessings

PJ66
02-10-2006, 04:29 AM
Hello and welcome!!! We all know where you are coming from. It is very hard to deal with not being your old self. It took me a while to realize that. There are days that I don't do much. At times yes I do feel bad about that. I'm used to working full time and coming home and taking care of two girls and cleaning and cooking etc. I currently am a stay at home mom and I still find days that I really don't accomplish much, and it's ok. I do what I can when I can and I shouldn't feel bad when I can't do things. This is a great place to come to vent and ask ?.
Polly