Trying to educate others

[Torvaldr]

I think one of the hardest things for me to get across to others just how bad PA can be, and how painful. I was dealing with a nurse the other day and asked be about what it was like. So I asked her if she had ever had tendonitis. She answered yes. Then I told her to try and imagine having tendonitis in both her knees and elbows, her neck, back, hands, hips and shoulders all at once, and that it never went completely away. Some days it can just be a slight ache in a couple of places, up to being in excruciating pain in all of them. At first she seemed to think I was exaggerating, but after another friend of mine who has RA backed me up she looked like she might believe us.

But this is indicative of even dealing with some of my friends and my own family. And even more so when dealing with State Disability. It always amazes me that they really think that anyone would willing try to live on the kind of money they pay.

[Midniteir]

Yeah, I hear ya. If it weren't for the pain, it would be easy for me to forget about it when I'm not in public worrying about the site of it, the flake from it, or the itch. Bleh.

I hate that my joints have started to ache from it. The burn was bad enough. And here is another thing about it that is a pain in the butt (pun included and intended) I now have it down the crack of my butt! Always complaining to my kids when they look at me funny as I'm scratching it "I have itchy a$$ crack" hehehe. But the worse part about it, is trying to wash it with soap. FIRE! And unlike my elbows, that's not a part of my body that can fore-go washing in the shower, lol...ugh :(