New to the scene with something to say...

[JayHod]

hello everyone!
I can't even begin to express how happy I was to have found this forum! I have felt very alone in dealing with "p" as it seems to be called and as much as I don't wish this disease upon anyone I am glad to have found all you here to help each other out!
I'm still relatively new to p. I have had it for about 6 months. At first it was mild but it seems to be progressively getting worse. My days are up and down. Some are filled with hope while other days I feel overwhelmed with what seems to be a slap in the face with reality. However I refuse to give into "the dark side" and forget about all the wonderful things I still have going on in my life. Such as a new career, family and friends. I hope we can all help each other and be strong because I know I definately need everyone's help and strength here too!

[JayHod]

sounds kind of cheesey I know...but seriously folks.

[cereal]

Hi JayHod, welcome to the boards!! Sorry about the P. You've found a great place, if you have any questions please ask. We all can relate to the ups and downs of having to deal with P. Know that your not alone!! Don't be a stranger!!

pat

[tmartha]

Welcome JayHod! Not cheesy at all - I know the feeling exactly - just found this place last month and the RELIEF- people who understand! Wow. And all the information, experiences to compare...so very helpful.

What are you doing for treatment?

Tani

[JayHod]

Thanks so much for the welcome's everyone! So far this has been a very uphill battle but I do have faith that my condition will improve. I have wonderful friends and like I said I have now found this!

Starting on march 14 I'm going to start getting injections of CNTO 1275. As of right now I am not getting any sort of treatment, which has been difficult. CNTO is a study drug and I have to be off of any topicals or UVB treatment for a month before I can start. It seems like the 14th will never arrive and it is just a dream. But I do see it as a wonderful option and I try my best to stay patient and positive.

[RichJ]

hi jayhod,
welcome to the p family. you will met some of the wonderful people on here and will find alot of great info. welcome and nice to meet you.

have a good day all

richard

[PJ66]

Jayhod,
Hi and welcome to the boards. I wanted to wish you luck with your new treatment. Let us know how it goes.
Polly

[bratsareus]

Welcome to the boards!

[dan_2004]

My days are up and down. Some are filled with hope while other days I feel overwhelmed with what seems to be a slap in the face with reality. However I refuse to give into "the dark side" and forget about all the wonderful things I still have going on in my life.

Hey Jayhod

Glad you found us. I have actually been missing in actiion for some time now but have been lurking around recently once again. I saw your post and want to tell you that is exactly how I felt for so long and unfortunatly still do from time to time. I'm not sure I will ever get to accept this as a "real" part of my every day existence. I was totally free and clear after so long having "P". I was clear for about 6 months after being on Enbrel. Then it came back again. Now I am using a topical called Clobex. Seems to be a miracle for me as that with the Enbrel seems to be working again. Anyway, You are in my thoughts and prayers. Good luck with your treatments. Keep focusing on the positives going on like you said. But when the world seems dark and cold and it is hard to accept the fact that without warning or reason "P" has found yet another helpless undeserving victim in you, come back here and find comfort in knowing you are definately not alone and we all really do care.

[einna]

Jay,

Just serve a little melba toast with that cheese and we have a party. I'll bring the wine. Seriously...welcome!!!! Glad you found this place as it has saved many of us!! Nice to meet you.

Annie