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View Full Version : Newbe needs some advice


lpagano
07-27-2006, 03:26 AM
Annemarie introduced herself over in Conversations. I thought I would start a new thread for her over here as she may get lost in the shuffle over there and needs some help. I have never moved a thread before, so I hope I did it right??

Hi all.........Im a thirty year old female from the uk i ve just joined in a deperate search to know there are other people out there suffering with this horrilble disease.I ve had this for ten years now and even though it clears sometimes it comes back ten times worse, Im real lucky with friends and family but not so lucky with the boyfriend side of things. Im controlling it with skincap on my face and arms can t afford to buy the amout i need for my body all the time.
I ve never met any one with this and would to like meet someone who understands. I socialize, and on face value people think im normal but after a while they notice so i run one way and they run another!Im trying to deal with it as best i can but it s hopeless don t think i will ever lead a normal life im tired of it all can t bear the thought of living like this but what choice do i have.
The doctors here don t know what to prescribe , i ve had all the steriod creams and seen a specialst a number of times and they don t recommend anything but going to live in a hot country as that seems to be the only think that works. Well if they pay for it great! my bags are packed.
I hope you are all well and would love to hear from you xxx

Allie
07-27-2006, 04:02 AM
Lillian -- GOOD JOB, it worked!!

annemarie,

I am so sorry to read of your current flare. It is hard to feel all alone, but now you found us & will hopefully find the relief most of us have found here.

Does sun help or hurt or p? I find sun & water to be the best treatments to get my skin under control so the topicals become more manageable.

Good Luck!