Psoriasis on My Eyelids

[jbrickman]

i have a pretty bad case of psoriasis on my eyelids and in my eye lashes. what can i do to treat this?

- uv i have to wear goggles over my eyes
- corticosteroids cause eye conditions
- i am not at a point where i want to be using biologics

jbrickman

[LottieBay]

Talk to your Derm about it. I don't know of anything that is safe to use around your eyes. I had a small spot in the corner of my eye just recently and have another now on the bridge of my nose just below where my glasses sit. I'm afraid to use any topicals I have on the spots. I just keep them moisturised.

[sergecosta]

I use Protopic for my face. Works all the time! And relatively quick. Topical steroids just created havoc with my face, even the mild ones. I had a bad experience with Dovonex cream (known to bring about the onset of facial psoriasis in some people---I'm a case in point).

I also use it on my eyelids whenever it becomes involved. Works overnight for me.

[jbrickman]

I also use it on my eyelids whenever it becomes involved. Works overnight for me.

i was told by my dermatologiest not use topical steroids on my eyelids. multiple sources cite steroids as a the cause of glaucoma. check this out:
Steroids applied directly to the eye can cause a sharp increase in ocular pressure that can result in significant eye damage or glaucoma. Prolonged use of topical steroids in the eyes also can lead to cataracts. source: Medem: Medical Library (http://www.medem.com/MedLB/article_detaillb.cfm?article_ID=ZZZL7E331CC&sub_cat=37)

i guess we're kind of out of luck for treating our eyelids?

sadness
-jbrickman

[Allie]

i was told by my dermatologiest not use topical steroids on my eyelids. multiple sources cite steroids as a the cause of glaucoma. check this out:
source: Medem: Medical Library (http://www.medem.com/MedLB/article_detaillb.cfm?article_ID=ZZZL7E331CC&sub_cat=37)

i guess we're kind of out of luck for treating our eyelids?

sadness
-jbrickman
Actually, Protopic (or Elidel, it's sibling) is NOT A STEROID.

Let me repeat - IT IS NOT A STEROID. So while your Dr. is 100% correct, along with your research, your conclusion you cannot treat your face is off target.

Second, I have found (once the p is under control) using only Lancome Clarte Mousee & Lancome Aqua Hydration on my face daily keeps the p away. The flare I had over the summer was caused from a reaction to using Vit. E based lotion from the Body Shop. Drugstore brands, in general, do not seem to provide enough hydration for my skin - so since I know Lancome works for me -I suck it up & pay the big bucks for it.

[MikeK]

Actually, Protopic (or Elidel, it's sibling) is NOT A STEROID.

Let me repeat - IT IS NOT A STEROID. So while your Dr. is 100% correct, along with your research, your conclusion you cannot treat your face is off target.

What Allie said. She's 100 % correct. Neither Protopic (www.protopic.com or http://www.rxlist.com/cgi/generic2/tacrolimus.htm) or Elidel (www.elidel.com or http://www.pdrhealth.com/drug_info/rxdrugprofiles/drugs/eli1609.shtml) is a steroid. Elidel is a cream and Protopic is an ointment. They're both approved for eczema, but are often prescribed for psoriasis. They're both safe to use on places like the face and eyelids. That's the good news. Now for the bad news, both Elidel and Protopic have been given black box warnings, by the FDA, because of concerns about cancer. Since both meds are approved for eczema, here's a link to the National Eczema Foundation's statement concerning the use of Protopic and Elidel: http://www.nationaleczema.org/research/ProtopicAndElidelStatement.html. Sadly, Sal (sdanna) developed kidney cancer. :( He suspects that it was caused by Elidel, but there's really no way to know for sure. We haven't heard from him for a while, so I hope and pray that he's o.k. Here's a link to the thread where he discusses his diagnosis: http://www.psoriasis.org/forum/showthread.php?t=20144. I continue to use both medications. Protopic is one of the few meds that keeps the psoriasis in my ears under control.

I hope this helps.

Mike

[cakp12]

When my sister and I were kids we both got what I now know was most likely p on the eyelid along the lashes- we used an opthalmic neosporine- I now get a Rx for an opthalmic erythromycin- I use this when it feels like my eyes are getting involved- as a general cleaning method my opthamoligist(sp) reccomends cleaning the lash line with baby shampoo it has worked well for both my sister and myself- Good luck hope you find something that works for you

[jbrickman]

thank you all for your advice.

the contraindications of protopic makes me scared to use it. i'll take the flakes instead of the cancer.

-jbrickman

[partial]

There had got to be some way of getting UV light there, especially if it is working elsewhere.

Does anyone know if just having your eyes tightly closed during UV therapy prtects your eyes? Does the light penetrate your eyelids to the point that it can cause damage if you are not wearing gogglees?

I have p on my eyebrows, under my eyes, and between my eyes (some areas that the goggles cover). The areas that dont receive light definately are not as responsive as those that get the full effect of the light.

[jbrickman]

i have read from several sources (and been told by all my derms and docs) that uv light can penetrate the eyelids. it is imperative that one wears goggles to protect their eyesight.

-jbrickman

[purple432]

i use eliedel and, Protopic on my face and it seems to have almost cleared up but if i stop for 2 days it starts up again!!good luck!!!!!!!!