psoriasis in ears

[sarahincanada]

I was wondering how many of your get P in your ears? I do and I find it the most unpleasant of all the areas I get P in, not sure why, i guess I feel extremely conscious of it and always have hair covering my ears. I dont think the UV light really gets to that spot, so I guess I will have to use creams forever there, right now I just use a light hydrocortizone. is it common in the ears?

[LillyPie]

I get it in my ears. I was having a flare last year and my brother was riding in the car with me. He was asking how my psoriasis was doing - and then he goes "Whoa... you even have it in your ears. It must be bad right now". It was good to hear it from him than from someone else. It made me realize I should keep my ears covered a little better. Right now I am 100% clear on my body - but I've noticed a few times it is still in my ears.

[SCCatman]

I have it in my ear, but other than an occasinal ich it doesn't bother me.
Dennis

[nocam1334]

I have it in my ears as well. I have found putting coconut oil in my ears after my bath or shower at night relieves the itching and lessens the scaling for the following day. I usually do it every night. I don't know if it's safe or not, but I can't imagine it would be too bad.

Also, I live in the southeast near the coast, so I sunbathe. when I sunbathe on the beach, I lay with my head to the side (as I am laying on my stomach) to get sunlight into the ear. That seems to help a lot. Usually, it eliminates the scales and redness for a day or two. Of course, it's getting to the point where it's too cold to do that anymore, so I'll probably have to rely on the coconut oil.

[Dulane]

I have found Psorolin or Sisarosp to be very helpful for my ears...and that crunchy spot right behind them.

I suspect that the scales would come back if I stopped using them, but I'm not gonna stop and find out.

So far, it appears that these ointments are very safe.

:fingerscrossed:

[evergreen]

I get it in the ears and a couple other places that I think are the worst. I have put Olux in there...

[jbrickman]

i have psoriasis in my ears. the UVB(NB) treatments seem to be keeping it at bay (barely). when it gets really bad i apply powerful mometasone forate (a topical carticosteroid) - which eliminates plaque and redness in a few days.

anybody else notice increased wax production during flare ups? ones that lead to wax plugs and hearing loss? i'm not sure if my problem is unrelated or not.

-jbrickman

[spotsz]

Hi, I have p. in my ears, mostly as far as I can tell just inside the ear not deep, I use pro-topic, put it on a q tip and run it around the inside. It cuts the itching down and eventually loosens the scales. I dont put it right in the canal or close to it. I did have it on the outside at one time, that was terrible, its very hard not to pick or scratch but this topical seems to work, its seems its more for the sensive areas, or fold areas of the body. Keep it moist. ;)

[Evey]

Hi, I'm new to the board, but I can't help just notice this current topic. I have P in both ears. And on my scalp, among other places which I'll mention in a new post. Anyhow, I'm glad I found this board. The psoriasis is driving me nutzo.

[SNLambert]

I have just recently been diagnosed & I am still unclear on all the areas of my body that this condition might effect. I have had difficulty hearing in my right ear & assumed it was wax buildup but my internist had her nurses flush the ear to no avail. Now I'm wondering if it is scale buildup & what to do about it.

Any suggestions, input, similar experiences appreciated.

[Direne]

I also have it in my ears & bad right behind them , at times ( mostly my right ear) gets so bad that I can not hear when I have a flare up.
& yes I seem to have a lot of fluid like in my ear at flare upe

[Jillian1507]

I have p in/on my ears as well. I do find it quite bothersome because I tend to pick at them and the inside of my ears itch. I use Protopic which seems to help immensely. You could also try vaseline or babyoil....good luck....

[peggyb]

I too am a member of the flaky ear club. I have it all over my outer ears, behind them, then up into the scalp. I hate it here because when it's flaring (like it is right now), my ears get hot and they hurt. You know what though? Sometimes I still wear my hair up anyway, when it's calmed down some. I try to pull a little out around my ears in an effort to hide the p, although I'm sure I'm kidding myself, it doesn't hide anything. I hate it in the ears, but not nearly as much as I do on the rump!! Whenever I sit down I feel like the skin on my hiney is going to crack open! And sometimes it does!!!!

[jbrickman]

I have just recently been diagnosed & I am still unclear on all the areas of my body that this condition might effect. I have had difficulty hearing in my right ear & assumed it was wax buildup but my internist had her nurses flush the ear to no avail. Now I'm wondering if it is scale buildup & what to do about it.

Any suggestions, input, similar experiences appreciated.

flushing of the ear canal isn't great - especially if you are getting flushed by somebody inexperienced. if they flush too hard it can damage your ear drum! i go to an ENT and get my wax vacuumed (sounds more intense than it is). it works perfectly.

it's always an awesome experience to get your hearing back.

-jbrickman

[Hambo]

I have just recently been diagnosed & I am still unclear on all the areas of my body that this condition might effect. I have had difficulty hearing in my right ear & assumed it was wax buildup but my internist had her nurses flush the ear to no avail. Now I'm wondering if it is scale buildup & what to do about it.

Any suggestions, input, similar experiences appreciated.

I hate to have to tell you this but this disease can affect any area of your body from head to the bottom of your feet. I've had P for over 35 years and right now I am plaque free thanks to cyclosporine. Your derm won't give you an agressive Rx like that unless you are chronic like I was. As far as the ears I have only gotten P just inside the canal never very deep. Good luck!

[Glennmaroney]

I have P right in front of my ears, on top of my ears where my glasses rub and all over my outer ear, (pretty much if you can touch it with your finger I have P there in my ears). I use Denerex with 2.5% coal taron my hair and just lather up my ears good also until it starts to tingle. I keep them moist with Vaseline Deep Moisture Creamy Formula from Walmart. I buy that stuff three tubes at a time. Works great and does not leave that Vaseline residue. When it gets really touhg I hit it with Dovonex.
As a side note guys I use the same workup on my private parts. The boys sure are appreceative.

[MikeK]

Hi Sarah,

I also have psoriasis in my ears. It sometimes affects my hearing and causes ear infections. It also itches worse then the psoriasis on the rest of my body. Sometimes the itch is so severe that it keeps me up at night!

Protopic (www.protopic.com or http://www.rxlist.com/cgi/generic2/tacrolimus.htm) is the only medication that keeps it somewhat under control. (I say "somewhat under control" because the psoriasis comes back with a vengeance if I skip more then a few treatments.) Here in the US, Protopic is approved for eczema but is often prescribed for eczema. You can also try Elidel. Elidel (www.elidel.com or http://www.pdrhealth.com/drug_info/rxdrugprofiles/drugs/eli1609.shtml) is similar to Protopic in the it's approved for eczema but, here in the US, are often prescribed for psoriasis. Both Elidel and Protopic are safe to use in places like the ears on on the face. My dermatologist tells me that, here in the US, both Eldel and Protopic are safe to use on children as young as two. (Elidel is a cream and Protopic is an ointment.) That's the good news. The bad news is that the US Food and Drug Administration has given both medications a so-called "black box" warning, because of concerns about cancer in long term use. Health Canada has issued a similar warning: http://www.hc-sc.gc.ca/ahc-asc/media/advisories-avis/2005/2005_31_e.html.

Since Protopic and Elidel are both approved for eczema, so here's link to (US) National Eczema Foundation's statement concerning the use of Protopic and Elidel: http://www.nationaleczema.org/research/ProtopicAndElidelStatement.html. Sadly, Sal (sdanna) developed kidney cancer. :( He suspects that it was caused by Elidel, but there's really no way to know for sure. We haven't heard from him for a while, so I hope and pray that he's o.k. Here's a link to the thread where he discusses his diagnosis: http://www.psoriasis.org/forum/showthread.php?t=20144. I continue to use both medications. As I mentioned, Protopic is one of the few meds that keeps the psoriasis in my ears somewhat under control.

I hope this helps.

Mike

[purple432]

i have it in on and all around my ears it is horrid!!it cracks and flakes off all the time but my friends can tell when im stressed cuz it flares pu real badly!!! but they try to help me out evan if i do have the p!!

[RichJ]

I have just recently been diagnosed & I am still unclear on all the areas of my body that this condition might effect. I have had difficulty hearing in my right ear & assumed it was wax buildup but my internist had her nurses flush the ear to no avail. Now I'm wondering if it is scale buildup & what to do about it.

Any suggestions, input, similar experiences appreciated.
hi snlambert,
sorry i can't help much but welcome to the p family. you have met some of the wonderful people on here and will find alot of great info. welcome and nice to meet you. maybe some one will come through and help with your ?

try and have a good day all

richard