INJECTION SITE REACTION FOLLOWUP

[1WeekAtATime]

Hey all. I have been taking Trexall for my PA, and it's making things worse, so I'm being switched to a new medicine. I haven't had the appointment to discuss options yet, but I know they want me to use Enbrel, Remicade, or Humira.

Over the summer, I used Enbrel, but had some nasty injection site reactions. The dermatologist said that if I take it and that happens again, I have to keep injecting until they've cleared. The only problem is that it took weeks to clear, and I am NOT injecting into swollen flesh.

My other options are Remicade and Humira. I'd LOVE to have Remicade infusions, but I hear the medicine stops working after a period of time for a lot of people. Otherwise, I don't care about the rat proteins or whatever is in there- I don't want to stick myself with a needle forever.

So then there's Humira, which is probably what the rheumy will want me to take. There's an injector pen now which is awesome, but I had to do Enbrel twice a week and also inject anti-coagulant into my stomach the entire summer, and I'm sick of sticking myself all the time. Also, I'm worried that if I have to do a double-dose, after 2 years I would be required to half the dose and then not feel as good, which is what someone on Enbrel had to do. If I'm going to go through the self-mutilation of injection all the time, I want it to work!

What are your thoughts/experiences with these medicines? Do all people on Remicade eventually reach a point in which it does not work anymore??

[RichJ]

hi 1weekatatime,
sorry that i can't help much but i can bump you to the top. maybe some one will come through and help with your ?

try and have a good weekend all

richard

[banditkat]

I wish I could help answer some of your questions but I just started on Humira and it's the first medicine I have tried since being diagnosed with PA in September of this year. So far I havent had any significant changes with the Humira. My p is still bad as is the PA. Dr. warned me it could take up to 3 months to notice any difference.

I wish you luck on your med search and pray that ya find something that is ouchless (easier) and works for ya.

[Tilldee]

[QUOTE=1WeekAtATime]

Over the summer, I used Enbrel, but had some nasty injection site reactions. The dermatologist said that if I take it and that happens again, I have to keep injecting until they've cleared. The only problem is that it took weeks to clear, and I am NOT injecting into swollen flesh.



I too had injection site reactions but my Derm gave me Apexi Con Cream to use on the reaction sites and it takes it away very fast. I have to use it sparingly though. Maybe you could suggest this to your Dr. It helped me and now I rarely get a reaction and if I do, it's a mild one. I had one with my last injection, but used the cream and it was gone within a few hours.

Prayers,
Tilldee

[saraande1977]

I am currently on remicade with mixed results. I started on ebrel twice weekly this past June. It didn't work at first and then it started to work and I felt great, was able to get off my Prednisone for a month. Then little signs crept up and my psorasis came back and I felt like I got ran over by a truck. I crawled back to my doctor and he said my body fought the enbrel really quick and he would have to try Remicade. I started my remicade about a month and a half ago. I feel ok even though my psorasis is starting to creep back again. My joints basically always hurt, do they ever not? I have my next infusion in less than a week and I am hoping it works. I am crossing my fingers that this will work for me.

[RichJ]

hi saraande1977
welcome to the p family. you have met some of the wonderful people on here and will find alot of great info. welcome and nice to meet you. i hope remacde helps you i wish you the best

try and have a good hight all

richard