SANDRA LEE
10-22-2001, 06:19 AM
Dear Shanna,
My baby also had the horrible diaper rash that spread over her entire body.Within her 1st week of life. My pediatrican was baffled.
He made a crucial mistake. He sent me to an adult dermatologist.He gave me steroids that were too strong.
At 4 weeks I took her to the childrens hospital of philadelphia emergency room.
They were in shock when they saw her. She was the only child ever admitted to dermatology through emergency.They did mouth,skin and anal biopsies and cultures. Kylynn was diagnosed wih severe psoriasis.
Kylynn is 12 years old now. Her psoriasis still covers her arms,lower legs, scalp, face,and ears. She doesn'thave the traditional psoriasis on her elbows and knees. As she has gotten older the psoriasis spotsom her body,thighs and buttocks.As a baby these aeas were completely covered.
Listen to your Dr. because he knows the proper amounts of steroids to administer. All topical steroids need to be used sparingly. They are absobed into the blood stream through the skin. Drs. are always concerned with systemic absorbation. This means the steriods being absorbed into the blood stream and distributed to the organs and so forth. My daughter has been thoroughly tested through immunology and endocrinology. She shows no signs of systemic absorbtion.These creams and ointments are a hit or miss game. Kylynn has been able to tolerate some while others burn. We discontinue use of the painful ones.I would rater her have the psoriasis than the pain.
My daughter suffers with unexplained skin infections. These require iv antibiotics.
It is thought that the psoriasis all started with an allergic reaction to a yeast diaper rash at birth. She had thrush in her mouth and throat.
Although she is still covered with psoiasis, life is good. The other children are usually curious and usually nice.When people are curious it is important that we take the time to educate them. Then the next time they see someone with a skin disease they will be more intelligent and better informed.
I have taught my daughter and her sisters to play the "glad game". Be glad for what you have and stop freting about what you don't have. This past summer my daughter was able to attend skin camp in the Pocono Mountains of Pennsylvania for free after we heard about it on the kid's website. And she was recognized in the National Psoriasis Foundation Poster contest. Her poster is now a coloring picture.And she is the only girl in her school that can spell the hard word "psoriasis".
We don't let psoriasis rule her life.
Good Luck.
Sandy
My baby also had the horrible diaper rash that spread over her entire body.Within her 1st week of life. My pediatrican was baffled.
He made a crucial mistake. He sent me to an adult dermatologist.He gave me steroids that were too strong.
At 4 weeks I took her to the childrens hospital of philadelphia emergency room.
They were in shock when they saw her. She was the only child ever admitted to dermatology through emergency.They did mouth,skin and anal biopsies and cultures. Kylynn was diagnosed wih severe psoriasis.
Kylynn is 12 years old now. Her psoriasis still covers her arms,lower legs, scalp, face,and ears. She doesn'thave the traditional psoriasis on her elbows and knees. As she has gotten older the psoriasis spotsom her body,thighs and buttocks.As a baby these aeas were completely covered.
Listen to your Dr. because he knows the proper amounts of steroids to administer. All topical steroids need to be used sparingly. They are absobed into the blood stream through the skin. Drs. are always concerned with systemic absorbation. This means the steriods being absorbed into the blood stream and distributed to the organs and so forth. My daughter has been thoroughly tested through immunology and endocrinology. She shows no signs of systemic absorbtion.These creams and ointments are a hit or miss game. Kylynn has been able to tolerate some while others burn. We discontinue use of the painful ones.I would rater her have the psoriasis than the pain.
My daughter suffers with unexplained skin infections. These require iv antibiotics.
It is thought that the psoriasis all started with an allergic reaction to a yeast diaper rash at birth. She had thrush in her mouth and throat.
Although she is still covered with psoiasis, life is good. The other children are usually curious and usually nice.When people are curious it is important that we take the time to educate them. Then the next time they see someone with a skin disease they will be more intelligent and better informed.
I have taught my daughter and her sisters to play the "glad game". Be glad for what you have and stop freting about what you don't have. This past summer my daughter was able to attend skin camp in the Pocono Mountains of Pennsylvania for free after we heard about it on the kid's website. And she was recognized in the National Psoriasis Foundation Poster contest. Her poster is now a coloring picture.And she is the only girl in her school that can spell the hard word "psoriasis".
We don't let psoriasis rule her life.
Good Luck.
Sandy