View Full Version : Home Treatment
dominski
09-05-2003, 08:27 PM
To all who are interested:
I beleive I found a successful treatment for my symptoms after several years of suffering. I started a regimen of Vitamin E, Flax Oil, Virgin Olive Oil and fruits and vegetables containing Lycopene.
It appears to be working and my symptoms are 98% gone. I can't tell you how good it feels. I still have slight symptoms from timt to time, but I am hoping this too will stop by December.
The bottom line is that helping to increase your Omega 3s (fatty acids) really helps the skin and immune system. At least in my case.
If anyone is interested in the details I will be glad to share my experiencees and successes.
John (jadominski@aol.com)
PJ Leary
09-05-2003, 09:39 PM
Hi John,
Welcome to the board, and thank you for sharing your sucess. :) We like hearing about that.
I am glad you are having good results with controling your p through dietary suppliments. There are many threads here on this topic. I am sorry to say that most folks with p are not as lucky as you are since this is an auto-immune disease.
However, this board itself is a testament to the fact that different things work in varied ways for all of us.
Take care, and I wish you continued relief.
SouthpawGrammer
09-06-2003, 08:52 AM
YES!
good for you! welcome to the board!
http://www.smilies.nl/beerchug.gif
dominski
09-06-2003, 09:08 AM
Hi PJ,
I wouldn't write off the benefits of increasing your skins properties just yet.
I am not a doctor but from what I have read on the subject, some researchers are looking into the fact that mold may play a role in this malady.
Also the nature of our diets today allow for the comsumption of Omega 6 fats tha are over a thousnd times more than at the turn of the last century. The large consumtion of Omega 6 fats apperas to inhibit the absortion of omega 3s.
I also understand that Omega 3s are the only fats are body does not rpoduce internally, requiring the intake of these essential fats to help maintain our skin.
And lastly, if I were suffering from p, and nothing else seems to be working I would be trying any options available. Whats to loose.
Now I am not saying that this will work for everybody but it may provide some relief. There is a good article in the Washington Post dated 8-19-03 that speaks of the fifferent properties of a healthy diet based on the Omegas.
Its really alll about improving your diet which can in some cases improve your overall health and reduce some heath related problems. It's is more of a holistic approach - solving a problem by fixing going to the source versus the symptom which appears the way many doctors approach this.
John
GitOverIt
09-06-2003, 09:53 AM
Hi John.....and welcome....I too have chosen not to go the drug therapy route....prefering to use what I can to control the P, such as dead sea salts, EFA's, Noni juice (when I started Noni juice I noticed an increase of healing of the plaques) also home made lotions from a variety of oils etc.....I would say that I've had P for many years once I read the descriptions of the different types...guttate being the one I've had the longest period of time...didn't know what it was til I read about it on this site...scalp P for about 4 years and plaque P since Jan....also inverse P for years (didn't know what it was either) once I found out what these skin problems were, I started a heavy duty program and must say!!! NO SCALES!!!!! now!!! only pale pink patches that fade a little more every day....still have scalp P but working on that too.....guttates are getting smaller also.... I will email you what I've used and would be interested in what you have come up with...cheers...Sally :D
Hi Dominski,
I'd be interested in hearing about your regimen and success story with the home treatment.
I am sort of new to the P thing...though I first had it 6 years ago after a bout of strep...finally went away after 6-8 months of variety of light treatment and topicals...Now I have it again--after strep, but this time it seems more persistent. I am using some topical stuff--steroids but am interested in modifying my diet to see if it will help...need to modify my diet anyway and lose weight..so what the heck...should I e-mail you for specifics?
CBX
dominski
09-07-2003, 09:10 AM
Hi CBX,
Send me an e-mail at jadominski@aol.com and I'll fill you in on the details.
There is really not much effort to it, and like I mentioned it works for me and appears to work for at least one other sufferer I know. My results appeared within three weeks of implementing.
Look forward to hearing from,
John (jadominski@aol.com)
PJ Leary
09-07-2003, 09:04 PM
Frankly John,
Your assumption that I have not considered or tried alternatives in diet is rude at best. Your further assumption that I eat a poor diet is quite insulting ( except for the 'tinis ).
Learn a little about folks before you go on the offensive in the future.
I have had severe p & pa for about 27 years. There is not much I have not heard of and researched to improve my health and quality of life. You come off like an upstart, and insult me without knowing anything about me. Frankly, John, you piss me off.
Your further assumptions about what I should be willing to consider just make me madder. It is not as though we have become involved in a lengthly intercourse on the subject of approaches to treatment of life long chronic illnesses.
Now, I gave you what I thought was a nice welcome to the board. I may not agree with you, but I was polite and sincerely pleased for your sucess in dealing with your p on a very safe level.
You owe me the decency to return in kind.
makeitgoaway
09-08-2003, 04:58 AM
I wanted to say the same to another newbie a few weeks ago who was sure that all I needed was a little sun and a few trips to the tanning booth. This person had about 3-4 posts at the time, had no idea who I was, type of P, past treatments, successes/failures, etc. It really ticked me off. I started writing a lengthy response, but then chickened out because I was afraid how I would come off. I just told him that different things work for different people.
PS - I am not anti-newbie! Just think a little before you post.
chaimFL
09-08-2003, 05:06 AM
I will remain skeptical of people who insist on getting e-mailed in order to provide there new treatment options. If it's so great there should be no reason it cannot be posted here with with valid retail establishments that the product can be purchased at. Caveat Emptor!!!!!
HI Folks,
Just read all your replies and am a little concerned that we may be a little hard on Dominski. Though I am new to this message board, everything and everyone (including Dominski) I've read here has been very friendly & informative. I feel like a part of a nice club!
I only asked Dominski if I should e-mail for details on his home regimen because I don't know how involved it is and the length might be too long for a posting here. But by all means, Dominski, please feel free to respond with your plan/regimen here for all to read and investigate....
Just little ole me putting in my two cents...
Thanks!
Cathyb
pminear
09-08-2003, 01:34 PM
Why does everybody get so darn offended so easily around here?
chaimFL
09-08-2003, 01:49 PM
It's the usual sign of a spammer to introduce a product on the very first post, does not name the product, and only gives the information by email. Many of us have been here for a very long time and see the same scenario with each and every spammer. No one means to be mean or rude, but if a product work for me, I would say "I've had good results with suppliment x and I found mine at drug store y" and leave it at that.
GitOverIt
09-08-2003, 02:51 PM
Next!!!!
beladonna
09-08-2003, 03:40 PM
Im sorry...I have to say something in defense to PJ.
She was quite nice in welcoming(as always) dominski to the board as she is with everyone new.
I read the posts here and my first impression of PJ's response was open-minded to say the least. She simply stated that it is a scientific fact that PS is an auto-immune disease and that alternatives will not work for everyone, but welcomes therapies that work...whether alternative or not. That is what this board is all about...
But......
To imply what have we got to lose...is kind of a really bad point to make.(Boy, have I head that one before)
I cannot speak for everyone, but for someone was has suffered 20+ years, I can be safe and assume most of us tried everything!!!
Speaking for myself only...All I ever got from altered diet remedies /supplements is a few pounds lost and a better bowel movement. And I tried alot of them...Gluten free, lecithin, fish oils, body wraps...all kind of herbs...Im a walking jungle filled with twigs and crap...!!!!!!!!!!
I am not against alternative...By golly, I wish something natural was a cure-all...Dont we all? And.... Its everyone right to try what they want...But it is not really fair to imply that we dont try...
And if you have a good remedy that has worked for you...then post it here and let us decide...Its only internet eitquette and it should be honored. Not such a big thing to ask...just my opinion..
Peace everyone! I love you all!!!!
:D
PJ Leary
09-08-2003, 06:03 PM
Hi guys,
Thanks for sticking up for me. I still stand behind what I said. Newbies, feel free to post, and do some reading too before you go off all half cocked insulting the folks here, myself included.
Steve, what you said makes me twice as glad I posted my thoughts.;) Not too many stupid people here, nor too many intolerant ones either.
Chaim, you are perfectly right about the warning signs, and I hope it all is innocent. But you are right, after being around here for a while....well.:o
Bella dear, you make an excellent point, and thanks for your support.
pminear, We really don't get upset all that easily. For goodness sakes, I've survived two teens, and have two more up and coming. If I got hot under the collar at the drop of a hat I'd be in the psych ward by now having a well deserved long rest.:eek: I have learned to pick my battles, so to speak.
I picked this one for a reason. That said, my title is true as well, I am still more than willing to be friends, I was not looking to chase anyone off. Just set some ground rules for friendly correspondence with me.
dominski
09-08-2003, 08:45 PM
Sorry to ruffle so many feathers,
I have to admit this is my first time using a message board. I did not realize that I was coming across as a spammer. Let me make one thing perfectly clear - I am not a spammer -just an over zealous believer in treating the underlying short commings of our modern diets. Which in turn affects your skin, etc.
I will explain what I use so as not to cause any further consternation.
My reference material in part is an article in the Washington Post, dated 8-9-2003, in the Health section, titled 'The Omega principle'. The artcile explains about the Essential Fatty Acids and how our modern diets lack many of these EFAs known as Omega 3s. The body gets plenty of Omega 6s in the form of fats such as Soybean oil, which happens to be in just about everything. SO much so that as of 1900 our intake has increased a thousand fold.
Another book that I reference in my daily diet is by Dr. Perricone of Yale University, Titled 'The Wrinkle Cure". In this book one of the points made by Dr. P is that you can use supplements (i.e. vitamins, nutrients, and certian vegetables and fruits to impove you skin's foundation'.
This in tun will help to alleviate and in s ome cases prevent symptoms and ailments of a less than perfect diet.
That's all I meant by e-mail me for details.
I truely believ that if you want to get good results you need to address a problem at the source and not the symptom. I can't say for certain that what I am doing with my diet has directly helped my condition, but it sure is coincidental that after about three weeks of implementing changes to my diet, I started to see some improvement in my condition.
This is not black magic I speak.
Again, my apologies to anyone I may have misled.
John Dominski
PJ Leary
09-08-2003, 09:56 PM
Dear John,
While I did not see an apology , I will forgive the oversight. Perhaps you did not have an opportunity to read my response.
If you are not a spammer, you continue to be a welcome member of this board. You have addressed that concern initially with the post about your regimine. Thank you.
If you are really concerned about tackling the disease at its source, I would suggest that you do some intensive research about the biological medications available. Such research will show you that DNA research has lead to alpha-tna ( tumor necrosis factor ) inhibitors and suppresors that are life altering medications for many of us.
I assure you that we are well informed.
chaimFL
09-09-2003, 04:49 AM
I get VERY disturbed when I see that people think that diet or omega 3 or 6's have anything to do with psoriasis. We have exact information regarding the cause of p and it's symptoms. Don't get me wrong the EFA's are good for skin, but it's not bad skin that causes p lesions.
GitOverIt
09-09-2003, 09:38 AM
http://www.omega-3info.com/research.htm
Here is an interesting site about EFA's and how we are effected by lack of them in our diet also a blurb from their page about the research.
"Scientists made one of the first associations between omega-3s and human health while studying the Inuit (Eskimo) people of Greenland who suffered far less from certain diseases (heart disease, rheumatoid arthritis, diabetes, psoriasis) than their European counterparts. Yet their diet was very high in fat from eating whale, seal, and salmon. Eventually researchers realized that these foods were all rich in omega-3 fatty acids, which provided real disease-countering benefits. "
http://www.omega-3info.com/fattyacids.htm
If we looked on EFA's as something that is working at the cellular level rather than as a lotion (palliative effect) we might better appreciate the value of a healthy approach....
I have proved for myself that something I'm doing is right...
I hope you read both short articles to better understand the EFA's
and the essential need for them....I prefer to use the words "Healthy Choice" rather than Alternative Medicine.....lest someone may think I'm off to have a cup of Mistletoe tea or.. use, heaven forbid, snake oil venom....
yep! I've been insulted also for trying to offer another means to the elimination/remission of P.....
None of us are experts here just a bunch of (sometimes) very nice, friendly people whistling in the dark.....so if anyone finds some help for the rest of us..."I, FOR ONE WANT TO READ IT".
Spammers excluded of course
It's easy to be an Angel....if nobody ruffles your feathers
anon
iwant2benormal
09-09-2003, 11:09 AM
dominski, i have to stick up for you.
PJ,
you're real nice and all, and i might be hated for saying this, but you'll hearing insults where there are none. he didn't imply any of those things, and if you were to read it again, may be you would realize it. it kinda got me mad that everyone is against dominski for some info he is sharing. this has happened a few times before, too, with others. clearly, everyone's lips seems to be puckered up to your butt, pj. i like you, you're a nice lady, but thats the way i see it. i know you are the don and whatnot, and i am sounding quite mean, and i know it, but a lot of you guys here are in cahoots, always against "spammers". please recognize that some aren't, and hold back from your quick judgement. just cuz all y'all say that "signs" are there and you're just cautious from previous experiences doesn't make it right to attack people. and that is what you are doing. no one knows the real reasons for our p, and no one really knows what works for different people. god knows we've said that enough already.
i know you try to help everyone, pj,
me included, but i think that you're getting irrationally irritated. and then once you say something, everyone else seems to listen to you. that's cause you come off as the "don" here, and there's no fault in that, i know you're knowledgeable and all that good stuff, but you should recognize that dominski does not owe you an apology. he was fair and forthcoming with his treatments, and clearly, there is no spammer in him. plus, he was not insulting you. i know i am being repetitive, but i don't really care.
anyway, i thing everyone has been on edge, and everyone should calm down.
this is getting ridiculous.
chaimFL
09-09-2003, 11:37 AM
That was uncalled for to say the least. First of all PJ never called Dominski a spammer.......I did, and I stick to my guns for now because I haven't seen evidence otherwise. Secondly, we know what caused psoriasis and to say we don't is only making a false statement in order to make a point that would otherwise not have any validity. Psoriasis is an autoimmune disease and it's cause by a malfunction in our immune system, which is governed by our many different genes, cells, and functions within our body no of which can be altered my taking omega 3 or 6 fatty acids. If it were that simple none of us would suffer now would we??
iwant2benormal
09-09-2003, 12:08 PM
then that spammer part is addressed to you. and we don't know. just cause they tell you why we have p, you believe it? if the answer to p was that simple, then shouldn't the biologics work for everybody, and not just some? you're believing everything that they tell you and call it facts and text book. in actuality, no one really knows. it might be a completely different cause 15 years down the line, when they learn more, and it could mean that we were chasing the wrong goose the whole time. and this goose could be the wrong one too, 50 years down the line. there's no certainty, and to tell me there is absolute certainty about the origins of p is to make a "false statement in order to make a point that would otherwise not have any validity".
its like when everyone believed that the sun rotated around the earth, (the great aristotle's theory) and it turned out wrong. everyone back then probably told copernicus things in the same vein that you said to me. and copernicus turned out to be right. thats just a testament to how wrong any scientific "fact" or "theory" could be.
secondly, dominski already posted the requested information. and as cbx said, she/he requested that it be emailed for fear of length. plus, he's posted in other threads too. and also, he told you what x was, he did not give you a brand name, or tell you to call any numbers for that specific brand.
stop being so stubborn about this; he's clearly not a spammer. it's only so obvious. he's merely found something that works for him and he wants to share it. just cause you don't think that this treatment is "complicated" enough to work, does not mean that it doesn't work for people.
this same thing happened to sadskin too, when she posted about the nut butter at walmart. she posted the same thing several times, and everyone was attacking her. calling her a spammer. for walmart?? sheesh. she was merely exicited that she found something that acutally worked and she wanted to let the whole world know. so she went a little overboard in exclaiming her success of the treatment. is that a crime?
Plus, if i found something that worked for me, i would post it on every thread from here back to 1492. i would be that exicted.
and you said my last post was uncalled for. okay, i contend that i sounded harsh. but i guess i suck at tact and being polite. there's no insult or anything in my words. i am not here for that. i just say what i feel.
and i know there are many who will lash out at me after this, so go ahead.
thats what you get for have having an unpopular opinion, be it right or wrong.
Peace
thanks john for sharing what is working for you. and i hope you continue to stay cleared up.
GitOverIt
09-10-2003, 11:47 AM
Wow you are one out spoken girl ...good for you...and without animosity I might add......It seems like every time I try to tell about what works for me I get shot down....one of these days when I get ready to leave the board I too will tell it like it is.....I've been ridiculed and accused of believing in a "cheap books and bad movies theory, and not statistics and facts." because I feel its to the advantage of a drug company to keep us using their pharmacuticals rather than finding a cure (unless of course its a cure that has you doing repeats....) just look at the billions they are making.........and the prices they are charging............thats just the way I feel and still do!
I use only "healthy choices" (not alternative meds..thats a nasty word here......not allowed to use them) now because they are working and I AM GETTING RESULTS...never been to a derm...(that too is frowned on) only to my doc. and I think I know more than she does on this particular disease....I am 72 years old and have never had to have any antibiotics, or any other meds.....maybe because I first try the OTHER approach???? (except armour thyroid and B12 shots for a heriditary disease)
"For every disease there is a cure"
and I aim to find it for myself....
"The person who says it can't be done....should not interupt the person doing it"......................Chinese proverb
The Seeker:D
GET OVER IT
YOU GOT IT GOING ON GIRL. BLESS YOUR HEART
JOEY
tvcats
09-10-2003, 12:40 PM
Can someone tell me what Noni juice is?
GitOverIt
09-10-2003, 02:03 PM
http://www.oilsofaloha.com/kukskinhairc.html
I use this for a lotion and really like it
http://www.iwr.com/noni-juice/questions.htm
here is one site that answers questions but I prefer not to buy from pyramid groups
http://www.noni-juice-plus.com/
this is one site...describing noni
EDUCATING RATHER THAN MEDICATING...............
I didn't see this one! I miss all the fun!
GitOverIt
09-10-2003, 05:41 PM
Thank you for the nice words....I feel better too since spouting off...lol :D
Fred You are one nice guy.....and I know cause you helped me get under the line...:D :cool:
{You know the line for names to go}
I sure hope John posts again he was interesting ...I sent him email telling him to come back...he's been too quiet....
"The important thing is......not to stop questioning"
Einstein
tvcats
09-11-2003, 10:47 AM
Thanks for the link about the Noni, Sally! :D I am so silly. I thought that it was a drink. ROFL!!!
RCana
09-11-2003, 09:07 PM
I have to agree with Chaim and PJ on this one. Whether or not there were any express or implied insults contained in those messages is not for me to determine. But... both on this board and others, I continually come across posts from people who are convinced that their way is best, and that anyone who will consider anything else is, well, an idiot. (Usually implied, not stated.) These posts usually contain certain assumptions about whatever condition that board is dedicated to. For whatever reason, the nastiest of these posters usually seem to be proponents of "natural remedies". Not that I am against these, or those who use them, but its just a trend that Ive noticed. Alot of these types of posts usually include references to conspiracies by the drug companies and people blindly following doctor's advice and all. And there's usually some sort of condescending comment directed at those whose opinions differ. All that to say, that when I read Dominsky's first post, I saw certain elements of this type of post, especially when he seemed to refer to psoriasis as a "symptom". When I read his second post, I saw none of the same. But I can see why people reacted as they did to the first, as my blood boiled a bit as well.
A few weeks back, I came across one of those guys on a HBP board. (Yes, I am fortunate enough to have that too!) He was insistent that natural remedies were the only way to go, and replied to posts including medication with derisive comments about the posters and their doctors. So of course I had to get involved, and the whole thread got so nasty that I think the board eventually deleted it.
I think the thing that rubs me wrong most is when I am lectured to, and it is assumed that I am either doing the wrong thing or not trying hard enough. Now, I've seen enough things about psoriasis on the net to make one's head spin, including that it is caused by (I think) little green beads inside your kidneys, and if you e-mail someone (with a credit card number, no doubt), they'll send you some concoction that will make you crap it all out, and the psoriasis is gone. What I have read from those credible sources I have found is pretty consistent, and the most constant thing is that the treatment that works seems to be different for everyone. I also read the post that Steve (makeitgoaway) refers to and that was a classic example of what appeared to be a lecture. Steve, I almost replied to that one as well, but was having a bad day and it could have turned dangerous.
Well this turned into a long post. (I procured another "s" key, so my typing skills have returned!) I guess the point of the story is that I dont think that either PJ or Chaim overreacted in any way. And Ill continue to believe that whether it be for posriasis, HBP or any other disease for which there is no cure, the best thing that I can do for myself is consult with the doctors and any experts in the field, and listen to their recommendations. They may not have all the answers yet, but at least they are asking the questions.
Robb
GitOverIt
09-11-2003, 09:50 PM
I, too have had the same thing happen to me...that their way is the only way and the first thing that must be done is to see a good derm...(as a for instance)... you see it works two ways.....with meds being the ONLY answer.....and I don't agree and feel I have as much right as anyone else to say so. what I have tried to say is........there are two approaches to consider....drugs or what I call healthier choices.....now if you go to a derm what is the first thing they do? a medley of drug choices....so before I would go to one I would first see what I could do about it for myself......and I am doing a darn good job...sometimes I cringe when I read about the effects that people suffer from the backlash ....I'm not cured but I have gone from a scabby,scaley, itchy case to a very mild P.....and getting better every day...coincidence...I don't think so.
as far as P being called a symtom...well! whats wrong with that.
cause and effect....you have a disease you get symtoms.....you get a cold virus your nose runs...a symtom.... anyway who cares who is right or wrong I just feel that there should be varying opinions on this site...let the members read and choose freely without the NEGATIVE repercussions....if someone doesn't like what I have to say then go to another thread! all this picky, picky crap is so annoying....its bad enough having P without going through who is getting their toes stepped on.....
airbooster
09-11-2003, 10:00 PM
I can't let this one go without speaking out. FIRST let me say I have had P since birth and that was 58 years ago. Second I have been down both roads conventional and non conventional treatment And that said I want to say this I HAVE MET PJ TALKED TO HER MY WIFE AND I ENJOYED 2 WONDERFUL HOURS WITH HER AND THIS WONDERFUL LADY HAS FORGOTTEN MORE ABOUT P THAN I AND MANY OTHERS WILL EVER KNOW!!!! NUFF SAID PJ I AM BEHIND YOU ALL THE WAY!!!! airbooster:mad: :mad:
GitOverIt
09-11-2003, 10:21 PM
"you always have to have the last word"
and this time I agree...I was going to let this last comment slide from airbooster but ....................................
this is not ,on my part about picking sides, but about making choices.......we are all adults and its beginning to sound like a bunch of school kids.....sometimes I feel the first line of a post is read and to heck with the rest of it................like I'm not getting through!....so with that I'm shutting up!
PJ Leary
09-11-2003, 10:30 PM
Fellow Board Members,
I have been silent for a while on this thread, having stated clearly my thoughts and wanting to give others a chance to state theirs.
I would like to state that if anyone can find any quote of mine where I have ever been abusive to another board member, please step forward. In fact, I have made every attempt at being proper and respectful in my posts to others, and most especially careful when I care to disagree.
I have never made any comments like the ones Normal made to me about folks
"puckering up to your butt " or any of the other rude and disrespectful things said in that post.
I have never said or suggested that I am anything more than what I am, a 43 year old mother of 4 who's had really severe psoriasis for 27 years. If you have listened, during the time I have been posting here, you will hear me say I've tried the alternatives, I've had times in my life when I didn't use derms because I couldn't afford them, times when I chose clinical trials, times when I turned them down.
I have never said I was any different or any better than anyone else here. If others choose to find solace in my responses, or wisdom and help in my advice, that's a good thing.
As much as I respect the right of anyone to post something that helped them, I would ask not to be critiscised for posting what helps in my own experience. Even if that includes finding a really smart derm.
I have given honestly of myself to this board, and shared some very personal and intimate information in the hopes of helping others. In return, I have recieved a tremendous outpouring of support and love.
This board is not a competition, or about who is right and who is wrong. It is certainly not about anything other than mutual respect, concern, support, and discourse.
The discussion concerning alternative therapies and traditional medicine is one that is of benefit to us all, and the NPF certainly has taken a leadership role in making that information availabler to us as members.
Let's, please, raise this discussion back to a respectable level of discourse.
vBulletin® v3.7.3, Copyright ©2000-2008, Jelsoft Enterprises Ltd.