View Full Version : Dr. Pagano's book
spellinbee
12-16-2003, 03:36 AM
I have P for over 20 yrs and have tried all sort of medications..including chinese herbs for years but no improvement. I had recently read Dr. Pagano's book and was wondering if anyone has followed his diet + treatments(spinal adjustments) and actually got positive results. Please pls help and give some advice here. Thanks
chaimFL
12-16-2003, 04:32 AM
I've heard many people have had good results with Pagano's diet, but it is not easy to follow from what I understand. Diet has never affected my P and I've tried omitting dairy, wheat, and sugar (at seperate times) and not once did my P change. Of course I was somewhat relieved because I really love food!! :D
i did that diet for over 2 years. i also layed in the sun. i was 30% covered or so when i started . i was p free in 9 months stayed clear for over 2 years . but major depressed all the time. eating drinking and rasin hell is what life is about for me. so i cant really say it was all the diet cause i sunned also .
spellinbee
12-16-2003, 06:44 AM
well, i have stick to what my chinese doctor told me. No shellfish, no drinks, no seafood (not even fish), no lamb, no this and no that.(similar to Dr. Pagano's) Basically i've been only eating veggies and some pork +chicken.
I do have some hesistation about the spinal adjustment that he mention in his book cos i can hardly relate skin to my spine.
thats a bit different then pagano's. on his chicken and fish and the rest veggies that 80 -20 is the hardest part of that diet .
spellinbee
12-16-2003, 07:21 AM
To me, sun does the magic. I took a special vacation just to see if sun works for me (too embarassed to do it in my neighbourhood). I went to the beach for 2 months. stayed at a beachside hotel and everyday I will go out to the sun for 20-25 mins. I didnt put any cream nor did i took any medications. My p cleared up after 2 months but it only last for another 6 before it bounced back.
thats why im not on that diet now all my friends and family has me convinced it wasnt the diet it was the sun. and most of the people here dont think diet is the key. im still not sure besides i live in louisiana on a river, seafood is a big part of my life its everywere i go here .
Eve-Maridy_R
12-17-2003, 09:50 AM
Note from the Psoriasis Foundation Member Services Coordinator:
Dr. Pagano’s book, Healing Psoriasis—The Natural Alternative, is based on the theory that psoriasis is caused by thinning of the intestinal wall and elimination of toxins through the skin. Spinal adjustments, diet and internal cleansing (enemas) are prescribed. There is no scientific research that indicates that this is the cause of psoriasis. In fact, we know that psoriasis is actually an immune-mediated condition.
There have been several studies on various diets and psoriasis and so far none have guaranteed predictable results. This is not to say there is no diet that will work, as evidenced by comments received over the years regarding Dr. Pagano’s regimen and others. There may be certain diets that help some people, however there are people who say that in spite of extensive manipulations of diet they have not been able to isolate any dietary influences. This includes people who have tried Dr. Pagano’s regimen.
Please feel free to contact our Patient Education Support Specialists for additional information toll-free at 800.723.9166 (M-F, 8am – 5pm PT).
We are here to help!
Sincerely,
Eve-Maridy Rice
Member Services Coordinator
erice@psoriasis.org
Kudos to NPF Member Services for a very well written, measured response and concise summary. Eve, you're a better person than I am hahaha.
It's Christmas time so I will suspend my comments about Messr. Pagano, but I am hoping that those bells which I hear off in the distance are sounding the death knell for the leaky gut syndrome.
Cheers and Merry Christmas!
Bob O
Resist
12-18-2003, 11:12 AM
I personally don't believe these special diets work. I base my belief on what I've researched on these boards and others. Now if you have a flare up based upon eating certain foods then that is different and you should stay away from that type of food. But I have tried a lot of those special diets and none worked for me. I think emotional stress plays more of a role in flare ups and control of Psoriasis. It would most likely be more benificial to practice some form of relaxation technique.
Whatever you do try to be scientific about conducting the diet. Most people get positive results initially because of their belief in the treatment (the placebo effect).
SouthpawGrammer
12-18-2003, 02:02 PM
Originally posted by BobO
Kudos to NPF Member Services for a very well written, measured response and concise summary.
Bob O
Agreed 110%
Keep up the great work! your a star!
Love Paw xxx
Patchsigns
12-22-2003, 05:53 PM
Dr. Pagano is basing his studies on Edgar Cayce's readings. He's kind of fine-tuned what you should eat and what you can't eat. Plus spinal manipulations, right thinking, sun and excercise. I am about halfway finished reading his book. Those things that he says we shouldn't eat are precisely the things that I've always eaten...probably overeaten... hmm...definitely overeaten.
Edgar Cayce kind of invented the phrase "You are what you eat".
And the real kicker to this, who we call America's Sleeping Prophet, is he had psoriasis, too. Isn't that ironic?
Pagano's message, which he basically is just echoing Cayce's, is to have an 80 % alkaline diet to a 20 % acid diet.
Maybe there's something to it... The pictures in his book is dramatic. I think there might be something to it...just as our stress seems to trigger our flareups. Wouldn't it be nice if there could be a study based on his (and Cayce's) findings?!
Let's not give it a total thumbs down until there could be some impartial studies into these theories. We have suffered with this disease for, some of us, over half of our lifetimes.
Think how frustrating it is to deal with this disease day in and day out...for over half of your lifetime!! What if the findings were true! What if we could clear up our psoriasis with diet, spinal manipulations, right thinking, sun and excercise? Wouldn't you follow it?? Wouldn't you?
Can the NPF fund a study into this?? I don't want to live with this disease. I don't think any sane person does. This is such a frustrating, heartbreaking disease....
Joe
chaimFL
12-22-2003, 06:07 PM
Hey Joe!!
There is really no reason to "fund" a study in regards to the Pagano diet....mostly because we aren't studying anything that is not readily available to us as it is. There are many who have tried this diet and it's components...some with great success, some with minimal results and others with no results. If you have the resources to and drive to strictly adhere to his VERY strict diet then by all means go for it!! I've been incouraging people to try it and give us a week by week run down on the results of using Paganos diet without any supplimental medications (because that is the real test..no topicals, no sun tanning, no salt soaks, not MTX....etc). I've tried experimenting with diet and have decided that it does not affect my P enough for me try such a strict diet.
PagaNO and his Leaky Gut Syndrome do not deserve the dignity of a discussion on a psoriasis message board, because they are both profoundly irrelevant to the topic of psoriasis.
GitOverIt
12-22-2003, 10:09 PM
I have Pagano's book "HEALING PSORIASIS The Natural Alternative"....He gives some very good advice and its not all on diet...a good part of it is, but, he also includes external applications...so a study on just diet using his book would not be a complete test without trying everything he recommends including natural sunlight and ultraviolet light, epsom salt baths, resinol, (something I've used for inverse P) and many other external applications.
I would hesitate to say that because we (you), I, doesn't accept or believe in something doesn't make it true or false....just because ONE doesn't believe in something doesn't make it an impossible.
Probably the most important claim Dr Pagano talks about is the acid/alkiline balance in the diet.
I don't understand the belligerence behind the attack on Dr. Pagano...."live and let live" is a good motto to imbibe.
Resist
12-23-2003, 03:17 AM
I would hesitate to say that because we (you), I, doesn't accept or believe in something doesn't make it true or false....just because ONE doesn't believe in something doesn't make it an impossible.
I don't understand the belligerence behind the attack on Dr. Pagano...."live and let live" is a good motto to imbibe.
And......just because someone believes something to be true, doesn't mean it is true.
The belligerence stems from all the snake oil sold to those of us that are tormented by this disease. Not that Pagano is a snake oil salesman...I'm just saying....these people pray on us, knowing we're desperate and will try anything to be "normal" again.
chaimFL
12-23-2003, 04:56 AM
The problem with the total pagano package is that we know with 100% certaintey that people can clear using UV exposure exclusively....so now why would we need to do anything else he says?? The question that no one has the answer to is whether or not DIET plays a role. Everything else he mentions is old news that has been out way before his book every existed. If I sun bath 3 times a week and use Pagano's diet....what do you think cleared me??? All I can tell you is that the UV rays are clinically tested to work, the diet isn't. BUT once again I will reiterate that I know some people who flare or flare worse because of things in there diet.....so some people do require diet modification to lessen the P symptoms....I'm just not one of them! :D
And Bob you are right that no diet has anything to do with P becasue what we eat does not cause an autoimmune disease, but it could trigger it or make the symptoms worse in some (probably few) cases.
somthing we must all try to remember is that there or people including myself that or trying to decide what rout they are gonna take to attack this desease soooooooooooooo unless your sure what your talking about some comments are better left unsaid becuse you may sway someones decesion to try a method . and although you may be trying help you could be doing harm. chaim what your saying is sure right i did both diet and sun and stayed clear for 2 years and i cant say what cleared me . mabe after this advandia study is over i will give it another gooo. the diet is very very hard to follow and with very little convincing getting a big juicy burger would be easy to do . thats how i got off it last time someone convinced me it was a bunch of bull (my family cause they were tired of eating like that im sure ) lol but here i am covered in big red spots again
and as far as a study mabe if enough people called the pennington clinic they would do a diet related study ive been calling them for years now.
Ummm... Are bodies are made of what we eat/drink/breath, so how can people say with dead certainty that diet does not and cannot effect P?
Paganos diet is extremly strict, and because of that there will be many failures but maybe if stuck to 100%....
In any case, there are a lot of helpful tips in Paganos book, he has pointed out some usefull stuff, he has put a lot of work in, helped a lot of people, slagging this guy of seems so negative and for totally the wrong reasons
On a more generally note, we do all seem to have very unhealthy diets these days and changing to a healthier diet helps your alround health, thas IS scientifically proven!
On a even more general note
Dont live inside the sentence of our own creating, we understand so little yet we block out so much
On a much more general note
I hope everyone has a really fun, enjoyable christmastime, and not one us is incapapable of doing that, so lets have it! :)
chaimFL
12-23-2003, 11:50 AM
Hey Waco...good points! I have to say though that we aren't really discussing over all health with this discussion...trust me I, for one, know that my diet needs improvement (although it is much better than it used to be). The other point I wanted to make was that you are correct that our body is made up of what we eat, BUT not everything about us is. Our genetic makeup has absolutely nothing to do with what we eat....that's actually pretty obvious and we know that psoriasis is a genetic disease...we recently have scientific data regarding some of the genes that are related to psoriasis.....so when we say that diet does not cause P (although may trigger) it is a true statement. As I have said above some people may find that diet makes their P worse, but it by no means causes their P.
Patchsigns
12-23-2003, 04:55 PM
I hope I didn't stir up a hornet's nest. But... I have never been clear of my psoriasis. Not for one minute. Not for one day. Not for one month. Let alone a 2 year span. Genetics? I understand that the NPF has found some sort of link with psoriasis and genetics. But... I can not and will not believe genetics are involved so long as my sister, my brothers and my parents and their parents and their parents' parents did not ever have psoriasis. This is my family history.
I can not accept this disease. I will not allow this disease to be a part of me for the rest of my life.
I know there will be a cure found for psoriasis and psoriatic arthritis. The NPF is really doing wonderful things for all of us.
I'm very frustrated. Can you understand that? I know this... when I experimented and tried to implement no red meat, no tomatoes, no potatoes, and stopped taking Dovonex... I thought I saw an improvement in my skin.... Maybe I was just imagining it because I really wanted a miracle to happen for me...and for all of us. But, I'm weak. I stopped after 3 weeks and my skin looked real bad again. Maybe I was imagining that, too.
Who among us is brave and courageous and willing to at the very least try a more alkaline-based diet as opposed to an acid-based diet to see what may happen??
Who among us has had a success story with his program...who among us has had complete and utter failure with no results or worse results?
Okay...bring on the hornets.
And listen... my fellow sufferers... I love all of you. Really. I don't think Dr. Pagano is the be all and end all to ending this disease but... can we hear from some of you who have practiced his recommendations... good or bad ?
Joe
chaimFL
12-24-2003, 06:00 AM
Hey Joe!
This is not a hornets nest issue...some of it is a matter of opinion and some of it is a matter of fact. The fact part is that this condition is genetic....there is no dispute for that unless you can scientifically disprove what has already been scientifically proven. I think what you are missing is the fact that a "gene" still only shows you are more susceptible to a condition (predisposed if you will), but is not a guarantee that you will develop the condition.....does everyone who is predisposed to cancer or heart disease (based on family history) get either of those conditions?? No, but we know that there is a genetic link nonetheless. You mentioned that your P improved some when you changed your diet.....that proves what I have said before that some people's diets can cause there P to be more inflamed because you didn't say that it actually cleared, but rather improved. My stance on any treatment whether it be diet, natural, medical...etc is that if you believe it you will try it.....so why don't you commit yourself to 3-6 months of a very strict Pagano diet?? Give us a week by week run down on your results and maybe it will encourage more people to do the same. I do have to say that for me to be convinced of any drug's, natural therapy's, or diet's results there has to be clearing of at least 50%. My reasoning for this is the fact that if you take regular Vaseline (pure petroleum jelly) and apply it to every lesion twice a day for a month (maybe even less) you will see that the scaling will go away and the redness will go down to a pinker color and feel much smoother and there is no question that Vaseline is only helpful in the treatment of P and not a cure or a miracle so results for what's supposed to be a wonderful treatment should have better results (for at least some patients) than plain old Vaseline.
Even with a genetic tendancy towards getting P, it is not inconceivable that, given the right nuitrients and food balance, the body can look after itself and right whatever is wrong with it. Our bodies are absolutly astounding in their capabilities, the best scientists in the world can only see the tip of the iceburg of our existance, and im sure they would agree with me on that. I think we underestimate ourselves way to much
I think our minds have much more power than we give them credit for, just look at the placebo effect for example, thats our mind on its own, making us better at least in part, if we could harness that power, again it is not inconceivable that just using mind power alone we could heal ourselves, we just live in a skeptical society, and skeptisim on its own is a huge limiting factor in fufilling our potential. science is ownly scraping the surface yet we use it as a ground for our skeptisim
I'm straying from the point, what i mean to say is, there is no proven reason for paganos diet not to work (as a cure)
In my case, im am trying the paganos diet to an extent, i have turned pretty much vegan anyway, but sometimes the pleasure derived from a nice meal outways the slight worsening of the skin because of it, i will probably follow it a bit stricter after christmas.
Anyway, i plan to continue with a healty, natural, fruit and veg diet, to continue exploring my mind (through meditation and looking into deeper levels of existance), and continue with my creams (which only ever help me to an extent). I honestly believe that this P will be gone over the next few years, i will keep you informed!
Patchsigns
12-24-2003, 05:01 PM
I'll tell you one thing. This is a very interesting thread. A long, long time ago (about 20 years ago) I committed myself to being a vegetarian for only one year. It wasn't to clear psoriasis. In fact, I wasn't really aware of any possible connection with diet at all. I did it for spiritual reasons.
I noticed that my psoriasis was worse after the year... far worse. I wasn't a very good vegetarian, I must admit that. I just basically didn't eat meat.
I'd like to believe that there is something...anything...out there that would cure it.
I admit that I'm a weak person. I don't even know if I could follow his diet at all to the nth degree. Probably not.
Be our test, Waco. Let us know what happens. But, if it works for you... what a joy it would be to be psoriasis-free! Chaim... how do keep your P in check? What's working for you? What have you noticed that doesn't?
Hey, God Bless you all and thanks for letting me howl at the moon.
Merry Christmas to you all.
Lotsa love,
Joe
Maybe the 'p gene' means that poor diet will give us p, people with a different gene, diet will not give them p. So if you have this gene and eat a poor diet, you get p. If you have this gene and eat a good diet, you wont have p. If you dont have this gene weither you eat a healthy diet or not you wont get p. That theory covers both issues and is not ilogical.
ChaimFL, with all due respect, experimenting with diet may not of worked for you purely because it was not strict enough, and therefore is a sightly weak posisition to support not going on a strict diet.
I agree that people will not want to try this diet because it restricts them so much, and they will feel they will be missing out on a lot. I feel though, that i will come to enjoy the food i eat on this diet asmuch if not more so, than food i used to eat, this is already showing itself a bit.
I am going to start following this diet, as even if it doesnt help my p (which i belive it will help), it will help my alround health, being as it is, a very healthy diet.
Other things mentioned in his book, most of us would agree help p, so i am going to try as much of it as possible
I will keep you informed!
I hope you all have a happy new year
take care of yourselves, and have fun
:)
Mark
GitOverIt
12-28-2003, 05:42 PM
I'm almost ready to join you on the diet....what a blasted eating holiday I just did.....ugh!!!............I'm sick of food
it is only hard if you think it is...its getting the "mind set".......:D
and the proper shopping done for the right foods..... its either Pagano or Atkins...and with mad cow disease scareing us I think I'll go with Pagano.....plus when I was on Atkins is when I first came down with P....don't know if that was a factor or not....but I was on a forum with all these Atkinites and there were a couple others that mentioned P also......? maybe it was my trigger, didn't know that bugger gene was hiding in my dna.........no clue from family......will keep you all informed if I can do it....;)
moviemuffin
12-28-2003, 09:54 PM
I eliminated nightshades from my diet a few years ago. It had absolutely no effect on my skin but completely eliminated my psoriatic arthritis.
Occasionally I cheat and have some potato. The second I do I notice leg cramping comes back (lack of magnesium). I take a magnesium supplement and it goes away.
As for "not following strictly enough" or other thoughts... I think it's important to remember that everyone has a different body, metabolism, and experience. On this message board (of all places) we should never assume anyone is doing something wrong or misunderstanding procedure. That doesn't mean nobody here ever does, just that we hear enough of that sort of thing in our day-to-day lives.
Just a personal opinion. :) Certainly no offense meant or anything. I'm going to give every single user here the benefit of the doubt and assume that if whatever we are discussing didn't work it was just one of those things... not lack of willpower, failure to follow directions, or anything else.
Good luck to everyone in any event.
GitOverIt - Exelent, we will have to keep each other informed on how its going (and any recipes you have / find, that are vegan would be a great help :) im living on veg soup, veg stir-fry and salads at the moment!) Also (from my limited knowledge) i would advise against the Atkins diet, coz some recent studies have shown it puts to much pressure on the liver, hence possible toxin buildup (which according to pagano is what causes p!) Possible link there?
moviemuffin - i agree that everyones different, but that still doesn't mean there cant be a common cause, the 'not following it strict enough' comment came from ChaimFL saying he experemented with diet and from the results decided not to follow a strict diet, i was in noway saying that it didnt work coz ChaimFL was doing anything wrong, only that it wasn't a strong argument against going on a strict diet. I mean no offence! but in being unbias in looking for a solution, sometimes possible mistakes may have to be pointed out. I think you are all great people, and i think just being able to live with p is a hard thing to do sometimes, but none of us are omnipotent or omniscient, and im not about to assume that I, or anyone else, is. Thou i do think respect is due to all. :)
Again, no offence ment :)
good luck yall . remember it took me 9 months to clear and i got worse befor i got better. and dont forget the teas and the shakes and all the rest that goes along with it . i never felt better.
Originally posted by jrs
good luck yall . remember it took me 9 months to clear and i got worse befor i got better. and dont forget the teas and the shakes and all the rest that goes along with it . i never felt better.
Thank jrs! :)
I bare it in mind!
:)
chaimFL
12-30-2003, 04:58 AM
Hey Mark......
Regarding my past diet attempts, I will be the first to say that they were not restrictive enough, but that's because I chose to do an elimination diet as opposed to a restrictive diet. There is a great link that Ed posted to another thread that is probably the best discussion regarding P and diet that is available on the web. I'll post it here as well so everyone can see it http://www.healthtalk.com/psoriasis/talks/edition11/index.cfm
Mark, whatever you decide to do regarding diet please don't forget to give us the regimine and progress.
thank you chaim , what a awsome resorce you are for many of us here and also just a nice pleasant person to talk to . here's to you bro.
dottym
12-30-2003, 08:21 AM
I read Dr. Pagano's book 2 yrs. ago and decided to give it a try. BUT i didn't follow it to the letter. Stayed on it for about 6 months and saw some improvement. One connection that I made is a link to constipation. i've always had a problem with this and figured there might be a link. Began taking a product called Super Cleanse that made me quite regular. Saw some marked improvement. Took for about 1.5 yrs. then found out (doesn't say on the bottle) that it should only be used for a few weeks at a time. Switched to Colace and i'm still better than i was. For me, there is definitely a link to foods, too. Red meat, red wine...big no, no's.
ChaimFL - Thanks for that mate! that link looks pretty good, i'll have to give it a bit of a read
Dottym - Have you tryed slippery elm bark? that is ment to be really good for clearing you out and helping your intestines. Pagano recomends it as he was saying about a link between constipation and p, he also recomends quite a few other things aswell that are more natural (less side effects) than medical ones
As for my diet, here is part of a pm i sent to patchsigns about starting this diet and where im at at the moment and anything that may be related. i will keep you all informed on how its going, i'll also try and write down on here what kinda things ive been eatting, and drinks and other things that pagano recomends that i try.
Healthwise, i hardly ever get ill, i am very tall and thin, i dont smoke or drink (much at all) though i do go out clubbing fairly regularly, which may not be the healthiest thing (environment) in the world, thou the socialising is a large/important part of my life. I only have mild psoriasis probably about 4-5% coverage (legs, stomach, top of back, face and scalp), which i have some stubborn spots and some slightly raised red patches that get a bit flaky but not to bad, the main problem being i have psoriasis covering a lot of my face (most the time!), which now although still there, is calmer than it used to be. When i was going though school and when i first started collage it used to be really inflamed and really flakey and as was pointed out to me looked like someone had got a cheesegrater on my face or had spilt acid over it (kids!) I think i coped alright with it thou, but did go through a bit of depression, because of that and other reasons. But i am so so so glad i went through that as it has made me how i am now I would not change one single thing about my life upto now, and thats not saying i had a perfect life, only that it tought me things i needed to know.
Treatment i have used, are steriod creams, coal tar shampoo, dovenex, tryed some m-folia stuff (didnt help at all!) some complex multivitamin things and strong antioxidant things (which i think worked fairly well but cost a bit and it was during the summer!) Stand-up tanning sessions which were really nice and worked fairly well, but cost to much and didnt last and theres the health side of things. Now im using dovenex scalp solution on my scalp and curataderm (sp?) everywhere else (i think they're both vitamin D things but am not sure, do you know them?) they keep it from getting worse but dont seem to get rid of it. Am tempted to keep using them for the moment untill my p starts to go, although is it best to stop using them for the sake of this pagano 'trial'?
I also have joined a meditation / buddhist group, and try to meditate most mornings, am also looking into psychology/philosophy and am looking into any possible mind/body links of which im sure there are some (other than the standard ones)
My diet when i was at school/collage when my p was really bad on my face consisted of, meat and potatoes, banana sandwiches, peanut butter sandwiches, chrisps, biscuits, sweets, Mcdonalds and not a lot else! *PAGANO FAINTS!*. Over the last 2 years my diet got better, but was still not very good, containing a lot of McDonalds and carbohydrates (refined). Over the last 2-4 months my diet has finally got healthy, about 2 months ago i took some of paganos sugestions on board, like stopping eatting tomatoes and mcdonalds and likewise, and also stopped getting irratable flare ups on my face (although it does sometimes go a bit red as if ive been out in the sun) About a month ago i went vegaterian (pretty much vegan) and started trying to balence the 80 20 ratio (though not perfectly) Over christmas ive eaten a fair bit of chocolate and a few puddings here and there. January the first the chocolate goes and the diet becomes strict! (which is not to say i wont enjoy it!)
I have got to order some of the teas of the internet, and i have a bit more of his book to finish reading, but will do that as soon as possible. I doubt i'll be able to have any spine manipulations because its probably not on the nhs and i probably couldnt convince anyone to do, but i will try and keep a good posture (mine hasnt been too good in the past), not sure it will help much, but it certainly wont harm. I will keep you informed about all the things that i do, take, eat or think, that may effect my psoriasis and will let you know how my psoriasis and general health is doing.
npf_reader
08-26-2004, 09:02 AM
In all my six years psoriasis suffering I was completely cleared only once when I was sort of following pagano book contents . I did not follow all his advices , But I used my judgement on top of things he discussed. Things that I did not do as he suggested include,
1. I did not go to chiropractor,
2. NO Spinal adjustments etc ( I dont believe in this)
3. No eneama and all those things.
This happened abt 4 years back
My life style changes included,
1. Completely free from Alcohol( I was kind of drinking about 4 drinks a day minimum)
2. Started working out almost 3-4 times day.
3. Spend 10-15 minutes time in steam room
4. Almost of followed his advice on diet , Fasting , slipper elm and saffron tea. Taking bath in Epsom salt water
5. Bakers P & S Liquid for the Head(Even My derm Suggessted this)
I was completely clear within 6-8 weeks.
I think I was clear about 6 months, But When I changed my lifestyle, P Came back . But slowly.This time I chose regular Derm and Went back to Clobetsol , Dovonex etc. For the last 1-1/2 years I am on UVB.Still has p about 40-50%. Derm is advising me go for Amevive.
I am seriously considering going back to old tested life style(Including totally free from Alcohol). Before I consider any of the other biologic treatments. I am also considering , Turmeric, Meditation and may be some flaxseed and other omega -3 stuff. One thing is for sure. I am absolutely convinced that psoriasis has something to with whole body well ness.I feel that I need to be in touch with regular derm for some reasons. Things that I kind of like of like include protopic for controlling facial psoriasis.As of now, I am really not happy with the options modern medicine is providing. But I believe that I need to see a derm once in a while just to keep myself updated for the treatment options that are available and to control any huge flare-ups(Hopefully I wont have one..
npf_reader
08-28-2004, 09:05 PM
2. Started working out almost 3-4 times day.
should be Started working out almost 3-4 times a week
Pagano's diet has been my method of healing my p for about a year exactly in a couple weeks time... Last year I went on holiday to Queensland...it was warm and sunny, though that didn't do anything since I was eating anything I bloody well wanted.
When I got back my P was bad and I was dreading going back to school. Dad let me have about three weeks off and for those three weeks I was on the diet. My p first got really bad. The patches I had on my body were really itchy, and the p on my scalp had extended further down my forehead. After those three weeks my p either disappeared, or diminished. On my body it was all gone and the only patch was a small one at the back of my head.
About two months later, still on the diet, my p was virtually gone, and summer came around so it cleared up really well. Then at Christmas and New Year i ate alot of foods I wasn't meant to, mainly because it was a special occasion! That bought the p patch on the back of my head back once again.
It took a while to get back on the diet, because it was hard being at school and eating healthy while your friends eat chocolate and sweets, as well as going to parties on the weekends and watching everyone else drink alcohol.
So I've been on the diet since around this time last year, it got a bit itchier when winter came around but coming towards summer now it's clearing once again.
The diet really helped. I didn't have a colonic, I took laxatives instead, and I have been going to the chiropractor, becauase I believe that helps. It was personally hard for me to keep the positive thinking, because I easily get depressed.
I believe the diet worked for me, but then again, I've only had p for 4 years. This is the only treatment I've been doing. I do recommend the diet but I guess it depends on your condition.
It is fairly hard sticking to a strict diet, but i do believe some people could benefit from it if it's properly done. :)
ericm
08-30-2004, 09:23 AM
In all my six years psoriasis suffering I was completely cleared only once when I was sort of following pagano book contents . I did not follow all his advices , But I used my judgement on top of things he discussed. Things that I did not do as he suggested include,
1. I did not go to chiropractor,
2. NO Spinal adjustments etc ( I dont believe in this)
3. No eneama and all those things.
I just want to add a few notes here:
* In my opinion, general principles and practices of chiropractic does not include the treatment of psoriasis, nor recommend enema as a course of treatment for patients.
* Chiropractic is best utilized for pain managment of muscle ache.
eric
MikeCa
09-09-2004, 01:05 PM
Hi folks, I am new to this. I like to take this opportunity to compliment you on your wonderful communication medium.
I have had Pagano diet book for long time before I decided to follow his recommendations in full. I had about 30% of my body covered with P, although it was not itching. It took me about 8 month to clear completely. I began this diet at least 5 times over the last 4 years, but after my P got worse I quickly went back to my old good dovonex.
This time around I let my P to go wild ...... and it did. It spread like wild fire and it took about 4 month before I began to see significant improvements. After that I continued with program and day by day my whole body cleared.
So here are my key learning:
1. do not become panic after your P get worse.... prepar yourself for that!!!
2. if you are not willing to give it at least 6 month time do not even bother
3. patience will be rewarded
Any questions, I will be happy to answer.
Good luck!!!
MikeCa
Well, I did say I would report back on how i found the diet so here it is! (four years later!)
Ummm, it didn't really work for me! I didn't try everything he said but gave the dietary stuff a fairly good go. However, it did start a very long and very interesting journey, one which i'm still on (i've written a bit more here https://psoriasis.org/forum/showthread.php?t=30775)
BTW, a Macrobiotic diet when done strictly did seem to help after a few weeks (in february too!) but the will power to stick to that for ever is at the moment a little beyond me!
light
06-09-2008, 09:16 AM
Interesting thread...if you are motivated enough to try and change your diet you should give it a try. Not just for p, but for general good health. I have been trying to clear my psoriasis through the Pagano diet for the past five months, although I have cheated on occasion, my lesions appear lighter and pink as opposed to thick and red. I have noticed that stress produces flare ups. My unasked for advice is to give just about anything a try, if it is cheap and can't hurt you...what have you got to lose?
light
06-09-2008, 09:56 PM
Well, well, hum guiena pigs...I guess I am one of these. I read Pagano's book and was inspired to change my diet... it has been five months. I cannot boast a total remission of p., but I can boast about the following:
I have lost 40 pounds.
Stomach pain and gas has gone away
No more snoring (happier hushand)
Sense of smell has returned
Family is healthier
Husband has lost 22 pounds
No more constipation
As far as my p is concerned, the lesions are much thinner and lighter. Since I still have not cleared completely, I think what also triggers my p is stress. I will now start to practice yoga. As long as there is a possibility that diet could improve your p, I say try it, what have you got to lose?
atlladyleo
06-15-2008, 03:12 PM
well, i just got dr. pagano's book for the second time (last time just read it, now intend to follow it!). Much of it seems to make sense to me.... as i have gained weight over the last 15 years, my p has gotten SO much worse. It started on my scalp (majorly!), and some tiny spots near my waistline and now it has almost wrapped around my calves and dots my back like some kind of crazy leopard...:(
I am also going to work on getting a theraputic dose of probiotics in me, since ON TOP of having psoriasis, i have hidradenitis as well. (i think i'm cursed!). for those of you who dont know what hidradenitis suppurativa is, i basically get these huge lumps under my arms (like a huge painful boil) which has to be drained, hot compresses, and LOTS of strong antibiotics. hence the need for some probiotics to get my digestive/immune system back in order. BTW, according to my derm, hidradentitis is also hereditary...lucky me.....
I hope you all can offer some support and ideas to deal with crap, because after 20 lonely years with this crap, i'm borderline suicidal!!! :eek:
nina2002nina
06-16-2008, 02:59 PM
Hi,
Good Luck with the Diet :0). I believe a special diet can really help. You really have to stick to it and give time for results.
NIlla
06-16-2008, 04:21 PM
Started the 80/20 diet a month ago and have noticed a difference in my p and to a lesser extent pa. I feel better internally and combined with chewing food properly and eating more often but less vloume has definately worked for me. My plumbing is more regular, I get up earlier while feeling more refreshed and I feel better when i excercise.
Only problem though.. Im getting sick of raw vegetables... I have to get a recipe book because its getting to the point where I rather not eat then have to eat another salad...
mmm broccoli again for dinner!!!!
mickels413
06-19-2008, 01:18 PM
I didn't do the 3day cleansing or the colon cleansings or the spinal adjustments. I've mostly been doing the 80-20 rule and no beef or pork or nightshades. I'm getting GREAT results.
I just had a baby in January and my skin was starting to flare up again. I've been doing the diet in addition to getting some sun whenever I can. For my scalp I use psoroil from garysun.com.
After 3 weeks, my spots are flatter, clearing in the middle, and turning a lighter shade of pink every day. It is hard. I cried on Day 3 but on Day 4, I noticed some improvement. And now I'm used to eating soups and salads and getting really creative with it, too.
It's worth a shot if you are interested in trying it. I love food just like the next person but this time, I can't afford to go to the Dead Sea and this diet seems to have worked for a lot of people. PLUS I'm needing a tropical vacation and when I go, I'm gonna rock a bikini!!
nina2002nina
06-22-2008, 03:32 AM
Awesome! Congrats on your baby and your healing! Enjoy that Bikini because you worked hard and deserve it.
:0)
mickels413
06-22-2008, 09:47 PM
Awesome! Congrats on your baby and your healing! Enjoy that Bikini because you worked hard and deserve it.
:0)
thanks, nina!
also, i think eating a lot of watermelon has been helping me too...i think i read about watermelon in one of these threads before
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