Coping tips for parents
How other parents cope:
- Educational materials help. There are always new medical discoveries, it is important to not lose hope and to be open to try new treatments.
- I cope by loving my child and letting him know that with medicine you can keep it under control and just by knowing that everyday I am blessed to be his mom.
- We remain positive. I keep myself educated on it and never, ever let my son see that I am frustrated with it or upset when there is a flare up. I'm always showing him articles about psoriasis and the more we talk about it the more we find other people who have it.
Denise, New Jersey
- It is important to find support in other families who understand the physical and emotional pain of psoriasis.
- Our participation in the Foundation has been a great outlet for our energy. Having a positive place to turn where there is hope for a different future helped during our darkest moments.
- I read as much as I can and I connect with other parents who are struggling with this disease. I also try to be an activist. I feel empowered when I am doing SOMETHING to make a difference for my child and the millions of others who are suffering.
- I find comfort in knowing that we are part of a bigger picture and that picture is educating and raising awareness for children and adults suffering with this disease.
Debra, New Jersey
- We try to keep it under control. We always say, "God chose you because you're a tough chick. Tough chicks can handle psoriasis!" We don't want anyone to feel sorry for us (I too have psoriasis—25 years). Life has bigger challenges than our skin. The psoriasis makes us "thick skinned" and able to accomplish our goals!
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