In 2001, the National Psoriasis Foundation commissioned the Benchmark Survey on Psoriasis and Psoriatic Arthritis. The results provided prevalence information, increased our understanding of the impact of psoriasis and psoriatic arthritis, and demonstrated that psoriasis and psoriatic arthritis carry a substantial burden.
The work resulted in seven peer-reviewed publications about the effect of psoriasis and psoriatic arthritis on patients, and one additional publication using the data set.
The National Psoriasis Foundation is grateful for the academic committee and their dedication and perseverance in analyzing and publishing the data.
The results from this survey have made a substantial contribution to our understanding of psoriasis and psoriatic arthritis and the impact of these diseases on patients' lives. The project was sponsored by Biogen and Immunex, Wyeth-Ayerst.
Stern RS, Nijsten T, Feldman SR, Margolis DJ, Rolstad T. Psoriasis is common, carries a substantial burden even when not extensive, and is associated with widespread treatment dissatisfaction. J Investig Dermatol Symp Proc. 2004 Mar;9(2):136-9.
Gelfand JM, Feldman SR, Stern RS, Thomas J, Rolstad T, Margolis DJ. Determinants of quality of life in patients with psoriasis: a study from the U.S. population. J Am Acad Dermatol. 2004 Nov;51(5):704-8.
Gelfand JM, Stern RS, Nijsten T, Feldman SR, Thomas J, Kist J, Rolstad T, Margolis DJ. the prevalence of psoriasis in African Americans: results from a population-based study. J Am Acad Dermatol. 2005 Jan;52(1):23-6.
Feldman SR, Nijsten T, Margolis DJ, Rolstad T. Systemic therapy does not usually clear psoriasis, but treatment success does not require clearing. J Am Acad Dermatol. 2005 Jan;52(1):140-1.
Nijsten T, Rolstad T, Feldman SR, Stern RS. Members of the National Psoriasis Foundation: more extensive disease and better informed about treatment options. Arch Dermatol. 2005 Jan;141(1):19-26.
Nijsten T, Margolis DJ, Feldman SR, Rolstad T, Stern RS. Traditional systemic treatments have not fully met the needs of psoriasis patients: results from a national survey. J Am Acad
Dermatol. 2005 Mar;52(3 Pt 1):434-44.
Gelfand JM, Gladman DD, Mease PJ, Smith N, Margolis DJ, Nijsten T, Stern RS, Feldman SR, Rolstad T. Epidemiology of psoriatic arthritis in the population of the United States. J Am
Acad Dermatol. 2005 Oct;53(4):573.
Nijsten T, Whalley D, Gelfand J, Margolis D, McKenna SP, Stern RS. The psychometric properties of the psoriasis disability index in United States patients. J invest Dermatol. 2005 Oct;125(4):665-72.
