Leading the way for a life free of psoriatic disease and its burdens

| Steve Bieler
In 2008, thanks to many years of hard work and your support, NPF began planning further ahead than we had ever planned before: We created a five-year strategic plan for the years 2009 to 2014. Two strategic plans later, we have a lot to be proud of.
 
In recent years, we launched advocacy campaigns that have helped to pass step therapy legislation in 26 states and supported federal efforts on psoriatic disease, including the first ever U.S. Food and Drug Administration patient-focused drug development meeting. We created the Patient Navigation Center and the Chronic Pain Management Hub, developed the Treat to Target recommendations, dedicated ourselves to finding a diagnostic test for psoriatic arthritis (PsA), and developed psoriasis treatment guidelines in collaboration with the American Academy of Dermatology and PsA treatment guidelines with the American College of Rheumatology.
 
We received the accreditation we required to offer continuing medical education to health care providers – training them to provide better care for you. We expanded our patient education programming, offering free health webcasts, a site for children and teens, Our Spot, and a podcast, Psound Bytes. And we invested $15 million in research and research-related activities.
 
“We’ve been performing at a high level for many years,” says Randy Beranek, NPF president and CEO. “There’s no reason to back off now.”
 
A look ahead
 
As NPF began the final year (2018 to 2019) of what had been the most ambitious strategic plan in our history, a committee was formed to develop the next plan – and to set the bar even higher. We worked with patients, caregivers, clinicians, researchers, nonprofit consultants, a former industry executive and board members to assess how we did during the 2014 to 2019 strategic plan, consider today’s opportunities and challenges, and then develop the 2019 to 2024 plan. That plan launches today.
 
(Note: NPF operates on a fiscal year rather than a calendar year. Thus our current fiscal year begins on July 1, 2019, and ends on June 30, 2020.)
 
Here are our three main goals for the next five years:
  1. Lead collaborative, transformational research in psoriatic disease.
  2. Increase the lifespan and health of individuals living with psoriatic disease.
  3. Secure the human, technological and financial resources necessary to achieve NPF’s mission-related goals.
And here’s how we’ll measure success, come June 30, 2024, having achieved all of the following:
  • Reduce to zero the burden of psoriasis on the skin. 
  • Reduce by 50 percent the time from when individuals living with psoriasis first exhibit symptoms of psoriatic arthritis until their diagnosis.* 
  • Develop a diagnostic test for psoriatic arthritis. 
  • Establish a multi-institution, multi-disciplinary research team with the aim of identifying an intervention that will prevent the onset of psoriatic disease.
  • Improve by two years the lifespan of individuals living with psoriatic disease. 
  • Improve by 50 percent the quality of life of individuals living with psoriatic disease.
*According to the 2018 NPF annual survey of our community, 80 percent of people exhibiting symptoms of PsA are diagnosed after six months. The rest are diagnosed more than five years later. Waiting years to be diagnosed through a process of elimination is not an effective treatment strategy.
 
Of course, you can’t set goals without considering the steps needed to reach those goals. We’ll take many exciting steps in the next five years, including conducting the first Treat to Target clinical trial, conducting the Cure Consensus Initiative to identify the mileposts on the path to a cure for psoriasis, improving access to treatments and lowering out-of-pocket costs, and educating dermatologists and rheumatologists on the new psoriasis and psoriatic arthritis guidelines, therapies and comorbidities, and promoting a Treat to Target approach.
 
You can help us reach our milestones
 
Every five years, our strategic plan evolves and reaches ever higher, but our vision remains the same: a life free of psoriatic disease and its burdens. We’re committed, as we were at this organization’s birth, to finding a cure for psoriasis and psoriatic arthritis. With your support, we know we’ll succeed. Welcome to day one of NPF’s next five years.

Driving discovery, creating community

For more than 50 years, we’ve been driving efforts to cure psoriatic disease and improve the lives of those affected. But there’s still plenty to do! Learn how you can help our advocacy team shape the laws and policies that affect people with psoriasis and psoriatic arthritis – in your state and across the country. Help us raise funds to support research by joining Team NPF, where you can walk, run, cycle, play bingo or create your own fundraising event. If you or someone you love needs free, personalized support for living a healthier life with psoriatic disease, contact our Patient Navigation Center. And keep the National Psoriasis Foundation going strong by making a donation today. Together, we will find a cure.

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