Welcome back, Psuperheroes! We’re now entering Week 4 of Psoriasis Awareness Month (#PSAM16).
Throughout the month, we’ve been introducing weekly themes to teach you everything you need to know about psoriasis and psoriatic arthritis, while motivating you to help spread the word that psoriasis isn’t contagious – awareness is!
We have some entertaining challenges to partake in and awesome prizes on the line, but first you should do these five things:
- Visit the PsAM16 page every week to unlock a new challenge.
- Some of these challenges have a social media aspect, so be sure to like us on Facebook and follow us on Twitter and Instagram to participate.
- Keep those beautiful peepers on Advance Online and NPF Blog for weekly updates and clues.
- Read our PsAM16 terms and conditions if you haven't already committed them to memory.
- Catch up on Week 1’s theme, Get Informed, and take the Week 1 challenge. Then check out Week 2's theme, Get Healthy, and take the Week 2 challenge. From there, move on to Week 3's theme, Get Involved, and take the Week 3 challenge.
Week 4: Get Connected
Living with psoriatic disease can feel isolating, but it doesn’t have to be. There are more than 7.5 million Americans with psoriasis who face the same physical and emotional struggles.
That means there are more than 7.5 million other people who put up with the same rude stares and impolite questions, whose itching and burning skin make it hard to sleep at night or even leave the house, and who know firsthand what it’s like to feel lonely and hopeless.
If you’re one of those 7.5 million people feeling lonely and helpless, guess what? That ends now.
NPF can show you how to tap into the psoriatic disease community for advice and emotional support. But first, we encourage you to connect with your doctor.
We can’t stress enough how important it is to find a provider you trust that specializes in psoriatic disease. Seek out dermatologists and rheumatologists who stay up-to-date on the various methods for treating psoriasis and psoriatic arthritis. Work with them on a treatment plan that meets your needs. Here are some tips to prepare for the appointment.
If you’re newly diagnosed, our Psoriasis One to One program can connect you with a psoriatic disease “mentor” who knows what you’re going through. They can walk you through their own experiences with psoriasis or psoriatic arthritis, while motivating you to achieve your goals for a healthier lifestyle.
The psoriasis digital connection
When you connect with NPF on Facebook, Twitter and Instagram for the latest updates, you automatically connect with other people living with psoriatic disease who follow us online.
We also sponsor TalkPsoriasis, the world’s largest online support community for people living with psoriatic disease, with more than 84,000 international members and counting.
You can post a discussion board on any topic ranging from caregiver challenges to insurance and disability issues, and then watch the replies start rolling in.
Citizen Pscientist is our online, interactive community that allows people with psoriatic disease to connect not only with each other, but also with the nation’s top psoriatic disease researchers.
Here you act as both the subject and the scientist by exploring data relating to triggers, treatments, associated health conditions and lifestyle presented anonymously by others in the psoriatic disease community.
You can then form your own hypotheses and questions, and analyze the data through interactive charts and graphs. That data is pure gold to the aforementioned psoriatic disease researchers who use it to help develop better treatments that could someday lead to a cure.
One of the main reasons for creating these digital platforms was to give you an opportunity to connect with each other. We believe in fostering an open discussion among people with psoriatic disease and urge you to speak your minds.
So think of NPF as a gateway to a giant virtual network of friends where you can vent your frustrations, swap anecdotes and advice, and offer emotional support and encouragement.
Take the Week 4 Challenge
You don’t need a Ph.D. to enter this lab. If you’re ready to blind us with science, take the Week 4 challenge for a chance to win a prize. Good luck, and we’ll see you next week!
Driving discovery, creating community
For more than 50 years, we’ve been driving efforts to cure psoriatic disease and improve the lives of those affected. But there’s still plenty to do! Learn how you can help our advocacy team shape the laws and policies that affect people with psoriasis and psoriatic arthritis – in your state and across the country. Help us raise funds to support research by joining Team NPF, where you can walk, run, cycle, play bingo or create your own fundraising event. If you or someone you love needs free, personalized support for living a healthier life with psoriatic disease, contact our Patient Navigation Center. And keep the National Psoriasis Foundation going strong by making a donation today. Together, we will find a cure.