Annual California Advocacy Summit highlights continuity of care issues for patients

| Amy Prentice

According to a recent study from the health care consulting firm Avalere, only one-third of enrollees in a 2015 health insurance plan on picked the same plan as the previous year. Between individuals coming in and out of the market and those who switch plans, the majority of people in exchanges are enrolled in their plans for one year or less.

With this high rate of health plan switching, it is critical we work to provide continuity of care by ensuring that patients treating a chronic disease are not facing negative health outcomes due to these changes.  

At our third and most successful annual California Advocacy summit, on May 8, 2017, the National Psoriasis Foundation (NPF), the Arthritis Foundation (AF) and the California Rheumatology Alliance (CRA) headed to California’s capitol building in Sacramento to raise awareness of this issue in the form of Assembly Bill 1353. AB 1353 ensures continuity of care for enrollees who are medically stable on a medication and whose provider continues to prescribe the medication. These safeguards will provide patients with consistent access to coverage and care, even when they change their health plan.  

Specifically, this bill will: 

  1. Establish reasonable and appropriate time-frames for a response by a health service plan when a patient requests an exception to the plan’s regular procedures and prior authorizations;
  2. provide an additional protection for patients suffering from life-threatening or potentially disabling health conditions, 
  3. protect patients who are stable on their prescribed medications, improve patient adherence to their medication schedule, and reduce adverse reactions from changes in the patent’s medication, 
  4. preserve the decision-making power of the patient-provider relationship, and 
  5. reduce overall health care costs through improved medical adherence. 

At the California Advocacy Summit, nearly 50 patient advocates spent the morning learning about existing state laws, how AB 1353 will protect California patients, and preparing for an afternoon full of legislative meetings. After lunch, advocates divided into nine groups to meet with various California representatives and senators. The aims of the meeting were to share their personal stories, raise continuity of care awareness and identify potential co-sponsors for AB 1353. In less than four hours, advocates from NPF, AF and CRA had conversations with over 70 legislative offices.

In addition to these meetings, advocates took to social media to share their experiences throughout the day and thank their representatives for productive meetings. You can see these posts on Twitter, Facebook and Instagram by searching #CASummit17.    

Since AB 1353 is a two-year bill (meaning votes will not take place until the 2018 legislative sessions), advocates are looking forward to resuming their hard work next year. In the meantime, NPF continues to bring attention to this important issue and hopes to identify more California patients and providers to support this tremendous effort. If you are interested in getting involved, please contact Amy Prentice, NPF’s State Government Relations Manager, at [email protected] or 503-546-5551.


Driving discovery, creating community

For more than 50 years, we’ve been driving efforts to cure psoriatic disease and improve the lives of those affected. But there’s still plenty to do! Learn how you can help our advocacy team shape the laws and policies that affect people with psoriasis and psoriatic arthritis – in your state and across the country. Help us raise funds to support research by joining Team NPF, where you can walk, run, cycle, play bingo or create your own fundraising event. If you or someone you love needs free, personalized support for living a healthier life with psoriatic disease, contact our Patient Navigation Center. And keep the National Psoriasis Foundation going strong by making a donation today. Together, we will find a cure.

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