NPF helps educate lawmakers on Iowa Fail First Advocacy Day

| MaryAnn McCabe

Every year, the State Government Relations team travels across the country to educate state lawmakers on the barriers people with psoriasis and psoriatic arthritis face when they’re trying to get the care they need – especially when they must fight harmful step therapy practices.

(Step therapy allows insurance companies to require patients to try and fail less costly medications until they can receive the right treatment prescribed by their doctors.)

And boy, did we have a busy March! Not only were we in Washington, D.C., lobbying on the Hill with our patient advocates, we were also in Des Moines, Iowa, where we urged state lawmakers to introduce legislation that will curb step therapy protocols. 

On March 15, multiple patient advocacy groups including the National Alliance on Mental Illness (NAMI), the Arthritis Foundation, the Multiple Sclerosis Society–Iowa, the American Cancer Society and the National Psoriasis Foundation joined the Iowa Medical Society to lobby state lawmakers on the impact of step therapy and “fail first” insurance policies. We also asked them to bring both the House and Senate bills to the floor. 

The day opened with a training session and overview of activities. The coalition then hosted a media advisory with our patient advocates.  

This was a great opportunity for NPF because one of our patient advocates, Cynthia Heaton, was selected for an interview with NBC-TV’s Des Moines affiliate. Heaton shared a moving story about her son’s struggle with step therapy, and the clip ran that night. 

The coalition had the chance to meet with more than 30 lawmakers. We appreciated their time and willingness to listen to our stories. By the end of the event, we knew we were successful because we had helped members of the Iowa State Legislature understand what happens to our community when they are subjected to step therapy protocols. 

Here’s a look at our recent attempts to curb step therapy:

Ohioans for Step Therapy Reform Advocacy Day

Texas Step Therapy Lobby Day

Ready to help support our efforts to reduce step therapy in your state? Please contact State Government Relations Manager MaryAnn McCabe at [email protected] to learn how you can get involved!


Driving discovery, creating community

For more than 50 years, we’ve been driving efforts to cure psoriatic disease and improve the lives of those affected. But there’s still plenty to do! Learn how you can help our advocacy team shape the laws and policies that affect people with psoriasis and psoriatic arthritis – in your state and across the country. Help us raise funds to support research by joining Team NPF, where you can walk, run, cycle, play bingo or create your own fundraising event. If you or someone you love needs free, personalized support for living a healthier life with psoriatic disease, contact our Patient Navigation Center. And keep the National Psoriasis Foundation going strong by making a donation today. Together, we will find a cure.

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