Welcome to Week 1 of Psoriasis Awareness Month

| Kathryn Jones

Hi, everyone! Thanks for joining us for our Psoriasis Awareness Month (#PsAM16) kickoff.

Throughout the month, we’ll introduce weekly themes to teach you everything you need to know about psoriasis and psoriatic arthritis, while motivating you to help spread the word that psoriasis isn’t contagious – awareness is! 

We have some entertaining challenges to partake in and awesome prizes on the line, but first you should do these five things:

  1. Bookmark our PsAM16 website and come back to it every week to unlock a new challenge. 
  2. Some of these challenges have a social media aspect, so be sure to like us on Facebook and follow us on Twitter and Instagram to participate. 
  3. Keep your eyes on Advance Online and NPF Blog for weekly updates and clues. You’ll need them to earn a chance to win the ultimate grand prize – a trip for two to attend the 2017 NPF National Volunteer Conference in Chicago next August. 
  4. Read our PsAM16 terms and conditions because … laws.
  5. Put on your thinking caps because it’s time to get started.

Week 1: Get Informed

It doesn’t matter if you’re newly diagnosed or have been living with it for years – there is always room to expand your knowledge about psoriasis and psoriatic arthritis

Scientists make discoveries every day about the havoc psoriatic disease wreaks on our immune systemswhy we get it in the first place and what needs to be done to effectively treat symptoms and find a cure. There is much more for all of us to learn. But in the meantime, we can tell you everything we know so far. 

Psoriasis is not contagious – obviously! But it’s not just a “skin condition” either. It’s a complex immune-mediated disease that affects people differently, which can sometimes make it tough to find the right treatment. But if left untreated, it can lead to related medical conditions, or comorbidities, that run the gamut from cancer and cardiovascular disease to diabetes and depression. 

The good news is that psoriatic disease research has evolved at a remarkable pace. We now have more treatment options than ever before, and we’re seeing some good results. Plus, there are things you can do to take control of your disease and not let it impact your quality of life. It all starts with getting informed.

Learning made easy

Think of our website as a portal for everything you need to know about managing psoriatic disease. Click the hyperlinks above for a crash course on the disease, ways to treat it and how to minimize its impact on your physical and emotional health.     

Then keep coming back to the site for updates. Advance Online is your best bet for staying on top of the latest news in psoriatic disease research and treatments. NPF Blog has inspirational stories written by and about people just like you who are living with psoriatic disease.

Looking to multitask and get the most out of your busy life? Put on one of our free health webcasts while you’re making dinner or doing chores. Here we ask leading psoriatic disease experts your most pressing questions about symptoms, side effects, natural therapies and everything in-between.

Still have questions? You can ask them in person at two NPF-sponsored educational events that take place nationwide. (Bonus: You can meet other people in your community living with psoriatic disease.) But if there isn’t one near you, don’t worry – we have webcasts.

More Than Skin Deep, which took place earlier this spring, is a chance to meet the experts face-to-face and learn about new drugs and strategies for managing psoriasis. For a recap, check out the 2016 webcast. Be Joint Smart, which kicks off Sept. 10 in Jacksonville, Florida, follows a similar format but is focused specifically on psoriatic arthritis.

And for personalized support, contact our Patient Navigation Center. Our specially trained staff of Patient Navigators can help you at home by answering your questions via phone, text, email, instant message and Skype.

They’ll chat with you about your symptoms and treatment options, connect you to health care providers, help you prepare for medical appointments, assist you in obtaining prescribed treatments and negotiating your medical bills, discuss financial assistance options, walk you through the health care enrollment process and provide wellness coaching and emotional support

Take the Week 1 Challenge

Now that you’re armed with the resources you need to appropriately manage your disease, let’s put that knowledge to the test. Take the Week 1 challenge for a chance to win a prize.

Good luck, and we’ll see you next week!

Driving discovery, creating community

For more than 50 years, we’ve been driving efforts to cure psoriatic disease and improve the lives of those affected. But there’s still plenty to do! Learn how you can help our advocacy team shape the laws and policies that affect people with psoriasis and psoriatic arthritis – in your state and across the country. Help us raise funds to support research by joining Team NPF, where you can walk, run, cycle, play bingo or create your own fundraising event. If you or someone you love needs free, personalized support for living a healthier life with psoriatic disease, contact our Patient Navigation Center. And keep the National Psoriasis Foundation going strong by making a donation today. Together, we will find a cure.

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