Help advance research by joining the NPF/Corrona Psoriasis Registry
If you have psoriasis, you may be eligible to participate in the Corrona Psoriasis Registry. The registry is a joint collaboration between the National Psoriasis Foundation (NPF) and Corrona, LLC, a health research company that sponsors disease registries that aim to advance medical research and improve patient care.
To join, you must:
- be at least 18 years old,
- have been diagnosed with psoriasis by a dermatologist and
- have started on an eligible psoriasis systemic medication within the last 12 months.
To date, the registry has enrolled thousands of patients from sites across the country. Dermatologists and their patients with psoriasis fill out questionnaires approximately every six months during routine office visits. Patients participating in the registry will be tracked for at least eight years, and the information collected will be used by researchers to compare the safety and effectiveness of psoriasis treatments, study diseases associated with psoriasis, and better understand the natural history of the disease.
If you’re interested in joining the registry to help advance research into the disease, contact your dermatologist today to find out if they’re an Corrona Psoriasis Registry site*. If you’d like information on the registry or if you’d like to find a registry site in your area, contact the NPF Patient Navigation Center, the world’s first, personalized support center for psoriatic disease.
Your healthcare provider must be an active registry site in order for you to be enrolled in the registry.
What is a Corrona Registry?
The Corrona Registry non-interventional research program is a coordinated effort to collect information directly from physicians and patients who are at least 18 years of age or older and have been diagnosed with an immune-mediated disease, such as psoriasis and psoriatic arthritis.
Why should I participate?
By completing Corrona questionnaires, you provide a living history of your disease. The questionnaires you complete provide your doctor with additional important data which may not otherwise be collected during a typical clinic visit. This helps your health care provider to better understand you and your disease and possibly result in better care provided to you. With your help, findings from the Corrona Registries will help doctors treat these diseases. Patients, like you, who participate in the registry will directly contribute to the health and well-being of others being treated for an immune-mediated disease like psoriasis.
How much time will this take?
It is estimated that it will take you about ten minutes to complete these questionnaires at your regularly scheduled visits, about every six months. Your participation is voluntary and you can withdraw at any time.
What type of information is collected?
This information is gathered during routine office visits with your dermatologist where you will be asked to complete a questionnaire about your health, such as symptoms you are experiencing and medications you are taking.
Your dermatologist will also be asked to respond to questions about your health such as your laboratory results, hospitalizations or drug reactions. All information collected for the registry is kept confidential. Complete details about how your information is protected is described in the consent form that you will be provided to read and sign before your participation can begin.
Who is participating?
The Corrona registries have enrolled over 50,000 patients from different states across the US, and include a mix of academic, private, and hospital affiliated clinical sites.
How can I learn if I’m eligible to participate?
For more information speak with your dermatologist today, or contact the NPF Patient Navigation Center for more information.
What other ways are there for me to participate in and encourage more research?
NPF offers a variety of ways to participate in and encourage more research to advance science into psoriatic disease. You can join a clinical trial, participate in NPF’s Citizen Pscientist (the first-ever global online research network designed to increase knowledge and give researchers new information and leads), or join our team of advocates by urging your lawmakers to increase federal funding on psoriatic disease research. You can also participate in a fundraising activity like TeamNPF, raising funds to help make the world understand psoriatic disease and help scientists find a cure.