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Flu Shot Lags Among People with Psoriasis

...Too many people are avoiding the flu vaccine. [Editor's Note: The current public discussion around the search for a COVID-19 vaccine continues, but we do have a flu vaccine. Preventing the flu through vaccination saves lives.] In 2018, about 80,000 people in the U.S. died from th...

Curing Psoriatic Disease: The Next Frontier

...NPF’s multi-disciplinary Cure Symposium aims to lead the way toward a cure. Flaky, painful skin. Joint soreness and deformities. Social embarrassment. Not only has Fred Finkelstein, a filmmaker with longstanding psoriasis and psoriatic arthritis, lived through these experiences, ...

5 Reasons You Should Do a Facebook Fundraiser

...The social media platform makes it easy to support NPF with your own personal fundraiser – without costing you a dime. Learn how you can make a difference with just a few clicks. Let’s face it – even with the privacy concerns, spambots and endless selfies from acquaintances you b...

Telemedicine Tears Down Barriers to Your Doctor

...No matter how far the distance between you and your health care providers, technology has helped to bridge the gap. [Editor's Note: This article was published prior to the COVID-19 pandemic, so it precedes the advent of physical distancing, but the accessibility to health care of...

Mourning the Passing of Stephen Katz, M.D., Ph.D.

...Longtime NIAMS director was a friend to all he served. During the joy of the holiday season, the NPF family was saddened by the sudden and unexpected passing of Stephen Katz, M.D., Ph.D., director of the U.S. National Institute of Arthritis, Musculoskeletal and Skin Diseases. The...

3 Ways to Fight for Better Health Care – It’s Easier Than You Think

...An NPF volunteer uses her own experiences to make a difference for the psoriatic disease community. Access to health care has sparked nationwide debates, but no matter where you fall on the political spectrum, sharing your voice is a key component to effective legislative change....

Bridging the Gap Between Patient and Researcher

...In her role as a research ambassador for NPF, Carol Selby provides an important perspective to researchers and scientists. The National Psoriasis Foundation was created in 1967 by volunteers. For more than 50 years, patients, families, friends, researchers and health care provide...

Research Initiatives for the New Strategic Plan

...For NPF's new 5-year strategic plan, we're planning the greatest strides we've ever taken in research. Back in 2008, the National Psoriasis Foundation faced a simple choice: keep planning ahead one year at a time or start thinking bigger. NPF chose the latter. In 2009, we embarke...

The Forgotten History of Psoriasis Action Month

...It all began when one small organization broke through the static and captured the media’s attention. The media landscape in 1997 was nothing like the media landscape today. There was no Twitter, Instagram, YouTube or Facebook. There were no memes. Television and printed sheets o...

The Improbable Journey of PsA Maestro Philip Mease

...From barefoot doctor to world-renowned rheumatologist and researcher – meet our 2019 Lifetime Achievement Award winner. It was Aug. 14, 2003, and Philip Mease was on the brink of success. He was trying to do something that had never been done: launch a multi-disciplinary organiza...

Milestones on the Road to a Cure

...The 2019 Cure Symposium offered plenty of reasons to be optimistic about the future of psoriatic disease research. On May 30 and 31, 2019, in Seattle, Washington, the National Psoriasis Foundation hosted its inaugural Cure Symposium. The symposium focused on the prevention of pso...

No, It’s Not Contagious

...A Dominican-American man with psoriasis fends off the usual annoying questions, battles his anger, searches for the right treatment and helps raise awareness. I’ve been living with psoriasis since May 2014. Four years ago I was living a normal life: working, traveling and figurin...

Top 10 Ways to Help NPF Support People With Psoriatic Disease

...You, too, can pitch in to build community, raise awareness and fund cutting-edge research. There’s a lot you can do to help NPF. We’ve put the top 12 together for your consideration. 1. Donate Fill in a few boxes. You’re done. 2. Become a Member You’ll receive our two magazines: ...

Mother and Daughter Bond Against PsA

...Nora Yechou has never known her mother when she wasn’t in pain. Here’s how PsA changed both their lives. It’s difficult to pinpoint the moment when the mother began asking the daughter for help, but both agree on the stack of dinner plates. Julie Greenwood has psoriasis and psori...

4 Back-to-School Tips for Kids With Psoriatic Disease

...The start of a new school year may stir up emotions: fear of what others might say, or feeling self-conscious, lonely or depressed. We can help. Helping you and your child thrive in the new school year is one of the reasons NPF launched Our Spot, a site devoted to the 700,000-plu...

Remembering Robert Ginsberg, an Early Friend of NPF

...NPF's former president and CEO looks back at one man’s lasting contributions to our success. Robert Ginsberg was a man of firsts when it came to the National Psoriasis Foundation. His hope to improve the lives of people with psoriasis led him to join the NPF board of trustees (to...

Top 4 Myths About Fighting for Your Own Cause

...Let’s get to the bottom of what it really means to be an "advocate." Advocating for patients is an integral part of the NPF mission to improve the lives of those with psoriatic disease. Our advocacy and government relations team, powered by a nationwide network of volunteers, fig...

Ready, Set, Walk!

...Team NPF Walk is the perfect way to join a community while supporting critical research initiatives. NPF’s community fundraising events are a driving force behind everything we do. Raising vital research funds and awareness through Team NPF events has a direct impact on tomorrow’...

Searching for Answers Through Science

...Researcher Charlotte Hurabielle-Claverie, M.D., finds joy in unraveling the mysteries surrounding psoriatic disease. The National Psoriasis Foundation was created in 1967 by volunteers. For more than 50 years, patients, families, friends, scientists and health care providers have...

Small Stories, Big Impact

...You can turn your personal experience into a powerful message that effects change for others living with a chronic disease. Storytelling is a large part of our human fabric. It can be a way to share a life lesson, preserve history or just express one’s experience. Many of us can ...

Advocate for Knowledge: Turning Diagnosis Into a Cause

...How a lack of good information mobilized one volunteer to get involved and educate those in power. When Lynne Breaux Arapis started to experience pain due to psoriatic arthritis (PsA), it was yet another complication for her mobility and joints. She had lived with osteoarthritis ...

Remembering Stephen Katz, a Champion for Psoriatic Disease

...Six longtime members of our community pay honor to Stephen I. Katz, M.D., Ph.D., a tireless advocate for our cause and a champion to everyone who faces life every day with psoriatic disease. NPF has been helped over the years by a long line of doctors, scientists and administrato...

This Community Feels Like a Family

...Carol Ostrow backs us with her organizational skills. Today on Founders’ Week we talk to Carol Ostrow, vice chair of NPF’s board of directors. She’s been an NPF board member since 2012. Ostrow is also the producing director of the off-off-Broadway Flea Theater in Lower Manhattan....

Researching a Better Future

...NPF, building on 50 years of history, aims at the future with two transformative research initiatives. The National Psoriasis Foundation is celebrating its history and shining a light on things to come with its inaugural Founders’ Week. During the week of February 16, 2020, we wi...

NPF Salutes the Past and Ensures a Brighter Future with Founders’ Week

...You’re reading this story because of one of the most successful newspaper ads of all time. It was the summer of 1966 and Beverly Foster of Portland, Oregon, was approaching a big birthday: She was about to turn 30. But she didn’t feel like celebrating. It wasn’t aging that bother...

Highlights From the First Year of Psound Bytes

...Our podcasts helps you to stay informed and live a healthier life. Here is just a sample of what we have in store for you in our Psound Bytes podcasts. Each presentation is free, and after the initial date of release, you can listen at your convenience. We hope you enjoyed our fi...

How NPF Empowers Psoriatic Disease Researchers

...Nehal Mehta, M.D., is an NIH researcher with an impressive track record. NPF helped him get there. Interviewing Nehal Mehta, M.D., is like taking a crash course in speed-listening. In one short phone call, he sprinted from the effect of chronic inflammation on atherosclerosis to ...

Finding Relief Through Rejection

...A native Uruguayan man gets help covering his treatment costs thanks to a bilingual patient navigator. Since launching in 2016, the NPF Patient Navigation Center has helped more than 26,500 individuals in managing psoriasis or psoriatic arthritis. Patient navigators work one-on-o...

Help for a Weary Traveler

...An Indian mother visiting her daughter in Seattle turns to the PNC for help with her psoriasis. Since launching in 2016, the NPF Patient Navigation Center has helped more than 26,500 individuals in managing psoriasis or psoriatic arthritis. Patient Navigators work one-on-one with...

How to Set Up a Facebook Fundraiser in Just a Few Clicks

...It’s easy to start supporting NPF research with your own personal fundraising campaign. There’s no better way to support and spread awareness of the National Psoriasis Foundation than with your own, personal fundraiser on Facebook. In just minutes, you could be helping to fund se...

Introducing the New Standard of Treatment for PsA

...NPF and the American College of Rheumatology release a pioneering treatment guideline. At the end of 2018, the National Psoriasis Foundation, in partnership with the American College of Rheumatology (ACR), released a collaborative publication about treating psoriatic arthritis. I...

The Unexpected Dermatologist

...For our inaugural Founders’ Week, our friends reminisce about the NPF of years ago. Founders’ Week 2020 continues with today’s guest, Mark Lebwohl, M.D. Lebwohl is the Waldman Chair of Dermatology at the Icahn School of Medicine at Mount Sinai in New York City and chairman emerit...

What NPF’s History Looked Like While It Was Happening

...For our inaugural Founders’ Week, our friends reminisce about the NPF of years ago. To celebrate the work of our founders – Beverly Foster and the volunteers who launched a movement 52 years ago – we created Founders’ Week. In honor of Founders’ Week 2020, we asked four of our lo...

30 Years With NPF and Still Going Strong

...Learn about the impact Michael Laub had on the psoriasis and psoriatic arthritis community when he joined the NPF board of directors. Our Founders’ Week profiles of five of our longtime friends continues today with Michael Laub. Since joining NPF in 1991, Laub – who owns and mana...

Finding a Community, Gaining a Voice

...The Kumar family from Southern California discover that they are not alone and unite with others after attending a local NPF meet-up. The National Psoriasis Foundation was created in 1967 by volunteers. For more than 50 years, patients, families, friends, scientists and health ca...

Psound Bytes CME Podcast

...Offering “byte”-sized medical news updates for health care providers. What if my patient has cardiovascular disease? How is mental health impacted by psoriatic disease? Does diet affect psoriasis? Answers to these questions and more can be found by listening to Psound Bytes, a po...

Progress and Success Through Collaboration

...What an Accelerated Medicines Partnership would mean for psoriatic disease. What happens when leading organizations and researchers come together to solve current challenges in research? Faster progress and greater success. That’s what the Accelerating Medicines Partnership (AMP)...

3 Ways to Improve Your Telehealth Visit

...Meeting with your health care provider over video or phone can be a successful experience. When telehealth, also known as telemedicine, began, it was largely a matter of access and convenience. Now, because of the COVID-19 pandemic, telehealth has become more like a necessity. Fo...

Gathering the Data

...Looking to assess the impacts of COVID-19 on those with psoriatic disease. The refrain has become all too common: There aren’t enough data; we need to know more. Yet each moment of each day that passes during the COVID-19 pandemic, patients reach out to their providers for direct...

Honoring the Past and Planning for the Future

...Robert Shoenberg remembers his late wife, Susan, by endowing early career research grants. Susan Schwartz met her future husband, Robert Shoenberg, at the University of Michigan in 1960. They were married in 1962. In addition to the life partner she wanted, however, she also gain...

A Message From NPF’s CEO

...Now, as much as ever, we are here for you. Dear Friends, In these uniquely challenging times, we want to reiterate our support for you and the entire community impacted by psoriatic disease. Many of you are likely hunkered-down, avoiding crowds and perhaps in self-imposed isolati...

Two Centuries of Progress in One Short Timeline

...A look back at the discoveries and the daring ideas that lead us to the current era of psoriatic disease treatments. Research breakthroughs are borne on the back of countless steps, failures, late hours in the lab, struggles securing funding, clinical trials, willing patients and...

A Snapshot of Ongoing Psoriatic Arthritis Research

...Three NPF-funded researchers talk about their work. As our research portfolio, with your help, continues to grow, it’s a good idea to stop and take a snapshot of a few of our ongoing projects. Who are these NPF-funded researchers, and what do they hope to accomplish? In this stor...

One Member’s Experience with Advocacy

...Richard “Rick” Seiden followed the usual trajectory for one of our volunteers: first he was diagnosed, then he discovered NPF, and finally he read something about NPF that clicked with him. What’s not so usual is how long he’s been volunteering with us. “I became involved in NPF ...

New Tools Take on an Old Disease

...Data collection alone won’t find us a cure for psoriatic disease. First we have to figure out what the data are telling us. You are only as good as your tools. In science and medicine, scientists have developed new tools to make sense of the avalanche of data they collect. Many o...

Payers Are Partners in the Care of Patients

...We know they care about cost, but what else? Even a casual observer would recognize that our nation’s health care system has undergone seismic changes over the past several years. While all stakeholders – including physicians, hospitals and other providers, manufacturers of pharm...

Psoriasis Action Month is Here

...This August, we take action together, in support of our community. Each August, the National Psoriasis Foundation (NPF) unites its community in a show of support, celebration and dedication. We come together around a common commitment to finding a cure for psoriatic disease. This...

3 States Pass Step Therapy Laws

...Even during a pandemic, your voice matters. In 2020, three states passed bi-partisan step therapy reform legislation, demonstrating that access to care issues need to be addressed, even during a pandemic. Advocating from afar, patients in South Dakota, Louisiana and North Carolin...

National Psoriasis Foundation Stands with Science

...At NPF, we stand with the scientists and researchers finding new paths to understanding disease and treatment. In these times of uncertainty, we as a society are looking to our scientists, researchers, health care providers and policy experts to guide us leveraging the best info...

Downward Goat

...Julie Greenwood jumps on the latest in fitness trends – goat yoga – to help fund the fight against psoriatic disease. Fads have been sweeping the world ever since the Dutch went crazy for tulips in the 1600s. Bicycles, flappers, Hula Hoops, pet rocks, dot coms – there’s no limit ...

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