About the National Psoriasis Foundation
The National Psoriasis Foundation (NPF) is a nonprofit organization with a mission to drive efforts to cure psoriatic disease and improve the lives of those affected.
Founded in 1966 from a tiny classified ad in a Portland, Oregon, newspaper, NPF has evolved to become the leading patient advocacy group for the more than 8 million Americans living with psoriasis and psoriatic arthritis.
As emerging research continues to demonstrate the serious, systemic effects of these chronic autoimmune diseases, our highest priority is to find a cure.
National Psoriasis Foundation Strategic Plan: fiscal years 2020 - 2024
Our five-year strategic plan, which runs from July 1, 2019 to June 30, 2024, is driven by these goals:
- Lead collaborative, transformational research in psoriatic disease.
- Generate research resulting in higher numbers of patients in remission and identify tools to extend remission periods.
- Fund a diagnostic test for PsA that has broad clinical utility, with the test having been developed, tested and approved for use.
- Identify a reliable, predictive model for onset of psoriatic diseases, the potential relationship to co-morbid conditions and the best treatment practices for cure.
- Establish a multi‐institution, multi‐disciplinary, team‐based, virtual cluster whose stated aim is to identify an intervention that will prevent the onset of psoriatic disease.
- Increase the lifespan and health of individuals living with psoriatic disease.
- By November 30, 2020, develop and disseminate report on the health expectancy and lifespan prognosis for individuals living with psoriatic disease.
- Improve physician awareness and education on optimal care of individuals living with psoriatic disease.
- Significantly raise the awareness of psoriatic disease and its related comorbidities among all affected and activate individuals living with psoriatic disease to better manage their psoriasis and psoriatic arthritis.
- Reduce the proportion of individuals diagnosed with psoriatic disease who report difficulties obtaining medical care and treatment due to access barriers.
- Secure the human, technological, and financial resources necessary to achieve the NPF’s mission-related goals.
- By June 1, 2019, develop and by July 1, 2019 implement a comprehensive revenue generation plan that focuses on maximizing the engagement of individuals, non-traditional and currently unrealized revenue streams and corporate entities who are outside the current NPF constituency. The plan must include a revised organizational structure, with staffing to achieve the revenue goals.
- Conduct a comprehensive assessment of existing volunteer and staff structures, resources, governance and their ability to ramp to the organizational outputs needed to achieve the mission related goals. Identify existing gaps that will need to be filled.
- Obtain a professional assessment of alternative business models by December 31, 2020.
- By December 31, 2021, determine the appropriate course of action and to establish an action plan for implementation.
- A volunteer Board of Directors steers the strategic direction of the National Psoriasis Foundation.
- Our Medical Board, made up of experts in psoriasis and psoriatic arthritis, provides medical guidance, leadership and advocacy.
- An executive staff of seasoned nonprofit leaders drives the organization to achieve its strategic plan goals.