Advocates join forces at our 14th annual Capitol Hill Day

On March 20, more than 30 advocates – patients, health care providers and researchers – are heading to Capitol Hill to raise awareness and support for priorities that matter to those living with psoriatic disease. 
Every year at our annual Capitol Hill Day, volunteers convene in our nation’s capital to meet with their elected officials about key issues important to our community. It’s a chance to gain cosponsors for critical legislation, discuss the importance of increased research funding and build Congressional champions on the Hill. 
This year, advocates are urging support for federal step therapy reform legislation that will improve “fail first” insurance protocols, which create barriers to accessing important treatments. We also will discuss the need to increase public health research funding for psoriasis and psoriatic arthritis to improve lives and advance efforts towards a cure. 
While we know each of you brings a unique story and perspective to our advocacy efforts, unfortunately, we can bring only a small fraction of our incredible volunteers to D.C. for the event. However, you can still add your voice to the conversation! There are various ways you can engage with the NPF Advocacy Team today – and throughout the year – to advance public policy reforms that drive efforts toward a cure and dramatically improve the health outcomes of individuals living with psoriatic disease. 
In particular, here are two easy things you can do today to support your fellow NPF members as they advocate on behalf of the psoriatic disease community before Congress: 
  • Email your elected officials through our Take Action website. This will raise the profile of our issues across the Capitol and increase our reach into additional Congressional offices. 
  • Join the conversation on social media. This will amplify our collective voices and let your fellow advocates know you are with them in spirit. You can find sample posts below, and don’t forget to tag your elected officials and #NPFAdvocacy! 
Communication from constituents is the most powerful way to influence Congress, and we hope you will join your fellow advocates in supporting our federal policy priorities. We know today is going to be an incredible success but we can’t do it without you.
If you are interested in getting more involved with NPF Advocacy activities, email [email protected].  
Sample social media posts: 
Proud to join my fellow #NPFAdvocacy volunteers on Capitol Hill in supporting federal #steptherapy reform and increased psoriatic disease research funding.
My fellow #NPFAdvocacy volunteers are on Capitol Hill discussing #steptherapy reform and research funding. I pledge to make my voice heard and encourage you to add yours to the conversation. 
Read other stories in this series about Capitol Hill Day 2018

Driving discovery, creating community

For more than 50 years, we’ve been driving efforts to cure psoriatic disease and improve the lives of those affected. But there’s still plenty to do! Learn how you can help our advocacy team shape the laws and policies that affect people with psoriasis and psoriatic arthritis – in your state and across the country. Help us raise funds to support research by joining Team NPF, where you can walk, run, cycle, play bingo or create your own fundraising event. If you or someone you love needs free, personalized support for living a healthier life with psoriatic disease, contact our Patient Navigation Center. And keep the National Psoriasis Foundation going strong by making a donation today. Together, we will find a cure.

Recent Blog Posts

Achieving clear skin after 40 years of living with psoriasis can have...
For guest blogger Melissa Leeolou, growing up with psoriasis means constantly...
Guest blogger Sabrina Skiles offers seven easy tips to help you keep your...
Our guest blogger takes action based on his personal mantra, ‘Don’t give up!’
A married couple tells their story about raising children while managing a...
Blogger invitado Lester Motes Triana encuentra esperanza, respaldo y recursos...
Guest blogger Lester Motes Triana finds hope, encouragement and access to a new...
Musician and guest blogger Frank Doris knew that he was at risk for diseases...
A former model fights back against PsA and embarks on a new life.