A wealth of resources for families affected by psoriatic disease

Last fall, NPF launched Our Spot, a new site for children and teens with psoriasis or psoriatic arthritis. Our Spot, designed with the help of parents, teens and young adults with psoriatic disease, features age-appropriate resources to help support the needs of youth from toddlers to teens as well as parents and other caregivers. 
 
 
Here are some of Our Spot’s features:
  • Stories and tips from kids, teens and parents about what it means to live with psoriatic disease
  • Communication tips for different types of relationships, from family members to friends, and ideas on how to cope with bullying
  • Resources to help navigate laws that apply to schools, as well as education for classmates and school staff about psoriasis and psoriatic arthritis
  • Opportunity to connect with parents who understand what it means to have a child diagnosed with psoriatic disease
  • Tips for college-bound teens
  • How to be yourself when life is turned upside-down by a diagnosis of psoriasis 
  • Interactive activities 
The Our Spot Welcome Kit is for newly diagnosed youth with psoriasis or psoriatic arthritis. Two kits are available – one for kids ages 12 and under and one for teens. Both provide information and tools to learn more about the disease and how best to offer support. The kits include information about psoriasis and psoriatic arthritis, a parent guide, recipes to try at home, a free one-year subscription to Psoriasis Advance magazine, and a choice of either an NPF friendship bracelet or a leopard plush toy. 
 
Explore Our Spot and how you can connect with NPF’s newest community for youth and their families!
 
  
 

Driving discovery, creating community

For more than 50 years, we’ve been driving efforts to cure psoriatic disease and improve the lives of those affected. But there’s still plenty to do! Learn how you can help our advocacy team shape the laws and policies that affect people with psoriasis and psoriatic arthritis – in your state and across the country. Help us raise funds to support research by joining Team NPF, where you can walk, run, cycle, play bingo or create your own fundraising event. If you or someone you love needs free, personalized support for living a healthier life with psoriatic disease, contact our Patient Navigation Center. And keep the National Psoriasis Foundation going strong by making a donation today. Together, we will find a cure.

Recent Blog Posts

Behind the scenes of a video shoot
With help from some crowdsourcing and talented filmmakers, we made two movies...
Guest blogger Julie Greenwood
Our guest blogger uses her voice to help people understand her disease.
Volunteer advocates pose with Assemblywoman Cecilia Aguiar-Curry
Telling our stories and making connections at the 2018 California Advocacy...
Patient advocates at California Advocacy Summit April 16 2018
Controlling out-of-pocket costs – our top priority – gains more followers.
Patient advocates visiting Congress
On Capitol Hill Day, we asked lawmakers for more funding for research and less...
A veteran volunteer recalls her rookie experience with patient advocacy and...
Achieving clear skin after 40 years of living with psoriasis can have...
Our volunteers made waves visiting Congress and learning firsthand how...
In the first installment of a new series, experts share their go-to tips for...