What Can I Do?

Be supportive, but don’t focus too much on the disease.

If you use embarrassed or negative tones, your child may feel that psoriatic disease is something to be ashamed of. It isn’t.

Acknowledge the management aspects of the disease, but focus more on your child as an individual and their day-to-day accomplishments, such as “What happened in school today?” or “Wow, you played a great game tonight.”

Help your child identify and express feelings. Depending on the age, emojis may help. Does your child feel anger, frustration, or confusion as to why psoriasis is flaring again, or like it is their fault because they did something to cause the flare? Does your child ask, “Why me?”

Reassure your child that these emotions are normal. They did not do anything wrong. Talk about potential triggers and make journal notes in a symptom tracker to discuss with your child’s doctor. You could say, “Having psoriasis is just like having blue eyes or brown hair. It’s part of who you are. It’s not your fault,” or “It’s not clear why some people have it and others don’t.”

Be careful what you say about your child covering up signs of psoriasis. Encouraging your child to cover up may make your child feel different and that you are embarrassed by how they look. Let your child decide if they want to flaunt their flares and teach others about the disease. If your child feels more comfortable covering up, let that be their choice to do so. Be patient and encourage your child to build self confidence in who they are as an individual who happens to have psoriasis or psoriatic arthritis. Talk with your child about how to tell others about their psoriatic disease.

Dealing With Your Own Emotions

Sometimes the biggest hurdle in dealing with your child’s psoriatic disease is your own emotions about the diagnosis. You could be feeling a sense of guilt or anger, fear of complications, or what this means for your child’s future. These are valid feelings, but it is the perspective you bring that can make a difference for how you, your child, and your family cope with psoriatic disease.

Here are some of the best tips from families that successfully cope with psoriatic disease:

• Learn to accept the diagnosis. Move on, however long it takes. Your attitude can affect your child if they sense frustration, negative thoughts, or guilt. Focus on what you can do to keep your child as healthy and happy as possible.
• Siblings have feelings too. They may feel scared that they will get psoriasis. Or jealous and angry about the extra attention their sibling is receiving. They may also feel upset if their sibling is teased. Have an honest conversation about what having psoriasis or psoriatic arthritis means for the whole family. Answer questions and listen to concerns. Discuss how you can all help your child with psoriatic disease.
• Learn to divide tasks. Take turns going to the doctor for appointments or involve siblings in tasks. Also, with a little education about the disease, there is no reason why your child can not sleep over at a friend’s house or stay with grandparents for the weekend.
• Do not lose sight of your own needs. Maintain meaningful relationships with other adults, family, and friends. To be strong for your child, you must have a strong inner self. Take care of yourself before you start to feel resentment and anger.

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