A Message From NPF’s CEO

Dear Friends,

In these uniquely challenging times, we want to reiterate our support for you and the entire community impacted by psoriatic disease.

Many of you are likely hunkered-down, avoiding crowds and perhaps in self-imposed isolation, but you are not alone. The National Psoriasis Foundation is here to support you, whether it is through connecting you with one of our patient navigators or speaking up on your behalf at a virtual advocacy effort. We will not halt any of our efforts to support those with psoriasis and psoriatic arthritis, and to diligently strive for a cure.

On our website, there is a small line that could easily be overlooked; but in these strange times, it seems to ring all the truer: “We are defined by our actions, not our challenges.”

Our actions will continue, though many will be in new or unique ways. NPF continues to offer you and your community the support and assistance you need. Below we have highlighted a few ways in which NPF programs and services will continue to serve you throughout the COVID-19 pandemic and on into a much healthier future.

I also want to offer a special thank you to those who have donated or fundraised recently and to those who will contribute in the coming weeks and months. Your support allows NPF to take action and make progress, despite the challenges of the current moment.

We Are Thinking of You

Our medical board, scientific advisory committee and board of directors are continuing to monitor the ongoing situations regarding the COVID-19 spread and its myriad implications. Our medical board, a group of more than 30 of the nation’s leading experts in psoriasis, psoriatic arthritis and related comorbidities, just today finalized new recommendations to our community on COVID-19. We do all of this with you in mind. We will continue to support and represent this wonderful community in all we do.

The Patient Navigation Center Is Open

Our friendly and experienced patient navigators are ready to help. We are fielding questions and doing our best to provide you with the most current and accurate information.

As always, navigators are here to offer free, personalized assistance to anyone with psoriatic disease or anyone who supports someone with psoriatic disease. This includes selecting insurance in states with open markets, connecting you with a provider, navigating your disease-related challenges and much more.

Advocacy Goes Digital

Whether at the state level or in Washington, D.C., our advocacy team is continuing their efforts to reduce out of pocket Medicare costs, reform step therapy with the Safe Step Act and secure funding for research related to chronic diseases. And you can tell your story or get involved, right from the comfort of your own home.

If you currently don’t have insurance or have experienced a loss of income or employment you may be able to purchase insurance. Lean more about the rules in your state.

When we cannot be at the statehouse or capitol physically, we can be there virtually, and we continue to do everything we can to speak with and for you.

Team NPF Goes Virtual

We have virtual Pstamp Out events, virtual cycles and a wealth of other chances for you to show your support for folks with psoriatic disease or to fundraise to help NPF accomplish its mission. Find ways to participate. This is a particularly great time to do a DIY Team NPF event – we encourage you to get creative!

Virtual Education Always Available

Whether you are a health care provider or person with psoriatic disease, we are continuing to provide opportunities to further your knowledge and expertise through our dynamic education programs, like our podcastJPPA, and webinars, all offered virtually.

In these ways and many others, NPF is here to help. Wishing you good health.

Sincerely,

Randy Beranek
President and Chief Executive Officer
National Psoriasis Foundation

 


Driving discovery, creating community

For more than 50 years, we’ve been driving efforts to cure psoriatic disease and improve the lives of those affected. But there’s still plenty to do! Learn how you can help our advocacy team shape the laws and policies that affect people with psoriasis and psoriatic arthritis – in your state and across the country. Help us raise funds to support research by joining Team NPF, where you can walk, run, cycle, play bingo or create your own fundraising event. If you or someone you love needs free, personalized support for living a healthier life with psoriatic disease, contact our Patient Navigation Center. And keep the National Psoriasis Foundation going strong by making a donation today. Together, we will find a cure.

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