When you have no tools, you have to invent your own

| Randy Beranek CEO

There is a lot we do not know about psoriatic arthritis (PsA). But here is one thing we do know: The more time it takes to reach a diagnosis, the more time PsA has to run unchecked through your body.

People with PsA can experience pain, joint stiffness and swelling, and extreme fatigue. If we can reduce the average time to diagnosis, we can reduce the damage untreated PsA does to your joints.

Why do so many people report lengthy delays in getting a diagnosis of psoriatic arthritis? The problem is not necessarily the health care provider. The problem is more likely the health care provider’s lack of tools. There are tests for rheumatoid arthritis and osteoarthritis, but not for psoriatic arthritis. Waiting years to be diagnosed through a process of elimination is not an effective treatment strategy.

The National Psoriasis Foundation is deepening our commitment to finding a cure for psoriasis and psoriatic arthritis. We cannot yet envision all of the mileposts on the road to a cure for PsA, but the first one has to be the creation of a diagnostic test. If your doctor can order a blood test to check your cholesterol or diabetes, why not a similar test to check you for PsA? We call this the PsA Diagnosis Project.

To achieve this, we are committed to funding research in 2019 that will get us to a cure, or as a first step a diagnostic test. Pursuing an interesting idea just because it is interesting is not enough. We need researchers who are willing to take risks. They may fail, but their failures will bring us closer to tools that succeed and treatments that cure.

Are we raising your expectations? Yes. Are we being unrealistic? We do not think so. Improving health outcomes for people with psoriatic disease is at the heart of our mission. To do that, we have to aim higher. You should expect the best from us. We are committed to giving you our best.

Help us fund this pioneering research

Every year, NPF invests millions in research, advocacy, education and patient services to help the people who live every day with psoriatic disease. We couldn’t do any of this without your support. Please consider giving generously to help fund the PsA Diagnosis Project.


Driving discovery, creating community

For more than 50 years, we’ve been driving efforts to cure psoriatic disease and improve the lives of those affected. But there’s still plenty to do! Learn how you can help our advocacy team shape the laws and policies that affect people with psoriasis and psoriatic arthritis – in your state and across the country. Help us raise funds to support research by joining Team NPF, where you can walk, run, cycle, play bingo or create your own fundraising event. If you or someone you love needs free, personalized support for living a healthier life with psoriatic disease, contact our Patient Navigation Center. And keep the National Psoriasis Foundation going strong by making a donation today. Together, we will find a cure.

Recent Advance Posts

NPF Researcher Charlotte Read
In this Q&A, 2018 NPF Psoriatic Disease Research Fellowship recipient...
Charlotte Community
Researcher Charlotte Hurabielle-Claverie, M.D., finds joy in unraveling the...
NPF Early Career Research Grant recipient Holly Anderton chats about how she...
Anthony Getschman
NPF Early Career Research Grant recipient Anthony Getschman discusses his...
headshot of Nsarg Shah
This chemical engineer approaches psoriatic arthritis from a whole new angle.
Headshot of Lourdes Perez Chada
Scientists are building tools that will someday help people sleep better –...
cartoon of scientists and patient against giant tablet
A New York researcher wants to gather every smart person he can to help build a...
There are more treatments now for PsA, but we still have a long way to go. NPF...