Psoriasis and psoriatic arthritis are isolating enough – the stares, the invasive questions, the self-consciousness, the feeling that no one understands what you are going through. Now we face the coronavirus, COVID-19 pandemic. Living through a pandemic and having to practice physical distancing adds a new burden for many people with psoriatic disease.
We launched the Patient Navigation Center in 2016 because we believe that no one with psoriatic disease, and no one who cares for someone with psoriatic disease, should have to go through it alone. Here are all the things a patient navigator can help you with:
- Find a health care provider near you, including dermatologists and rheumatologists
- Learn about the disease and treatment options
- Understand how health insurance works
- Learn about programs that may lower the cost of treatments
- Connect patients and caregivers to other people living with psoriatic disease
Now we are all coping with COVID-19, and the Patient Navigation Center can help you with that, too. “COVID-19: Ways to stay healthy and positive,” is a new guide from NPF for dealing with these unusual times. The topics covered include tips on taking good care of yourself, how to deal with increased levels of anxiety and isolation, and a section on separating fact from fiction. The guide is free. All you have to do is ask your patient navigator for a copy.
You should also check out NPF medical board’s recommendations for patients with psoriatic disease. There’s a lot of misinformation floating around about COVID-19 and people with chronic conditions. It is important that you get the facts. The facts might eliminate a few of your worries.
Remember: You are part of a community, and our community is still here for you, raising money for new research, advocating for better treatment and care, educating our community and the public. Although today we can’t socialize in person as we did just a few short weeks ago, someday soon, we will. Until then, we can still connect.
If you are like most of us, you have plenty of questions about COVID-19. In our Psound Bytes podcast, NPF is doing our best to get you answers from the experts.
Driving discovery, creating community
For more than 50 years, we’ve been driving efforts to cure psoriatic disease and improve the lives of those affected. But there’s still plenty to do! Learn how you can help our advocacy team shape the laws and policies that affect people with psoriasis and psoriatic arthritis – in your state and across the country. Help us raise funds to support research by joining Team NPF, where you can walk, run, cycle, play bingo or create your own fundraising event. If you or someone you love needs free, personalized support for living a healthier life with psoriatic disease, contact our Patient Navigation Center. And keep the National Psoriasis Foundation going strong by making a donation today. Together, we will find a cure.