We’re barely two weeks away from tearing the last page from the 2017 calendar. This is the season when people make their final charitable gifts of the year. Naturally, we’re hoping you’ll choose to support us.
In the fiscal year ending July 2017, we invested $3.3 million in research to find a cure for psoriatic disease. We put $1.2 million behind our efforts to shape the laws and policies that affect the more than 8 million people in the U.S. with psoriasis and psoriatic arthritis. And we poured $3.7 million into outreach, education and patient services to help the people who live every day with these diseases.
We couldn’t do all this without your support.
This year, Facebook launched a birthday crowdfunding feature in the U.S. that has now spread to many other countries. The idea is simple: In the weeks leading up to your birthday, Facebook gives you the option to start your own fundraiser for a personal cause or for a pre-approved nonprofit.
We spoke to two people at opposite ends of the country who clicked this new option, “Fundraisers,” and chose to support the National Psoriasis Foundation. Why did they get involved?
Jose Alberto Barraza, 31, is a chef in Delta Junction, Alaska. “Even though I’d like to help every single association, NPF is the most important for me,” he said. “I have psoriasis, now better, way better than five years ago since I started a new medicine.”
Barraza has tried his fair share of treatments – “dozens of different topicals and creams.” But for him, he said, the worst thing about psoriasis is “knowing that there is no cure for it and we have to live with this.”
His fundraiser ended on Nov. 6. He had been hoping to raise more than the $100 his friends and family donated, but what counts is not the total – it’s the effort. Barraza saw the need and he did something to address it.
Sindhu Gudala is about to turn 25. She’s a computer engineering major at the University of Illinois in Champagne, Illinois. Her 16-year-old sister and dad both have psoriasis. Her dad was diagnosed in his 30s, and her sister was diagnosed when she was in the fifth grade. “Eventually things got bad and there was a possibility she was developing arthritis,” Gudala said. “That was the universe’s Sweet 16 present to her!”
Gudala has always wanted to do more to help her sister. “I left for college and could never be there to support her,” she said. “I have other health problems so I get what it’s like to have a chronic illness really impede your life.” Gudala took a leave of absence from school for medical reasons and spent a year at home with her family in Tampa, Florida. The timing worked out well. “My sister’s skin was getting really bad so I’m so glad I was there to just be with her in ways my family can’t,” she said.
Her birthday fundraiser will end in early January. “I don’t know if I’ll end up raising much money,” she said. “We’ll see!”
There are many ways to support NPF’s mission. You can start your own birthday fundraiser on Facebook. You can participate in a Team NPF event. You can donate directly to NPF. Whatever your choice, you always have our deepest thanks – and the gratitude of everyone trying to live their best life with psoriatic disease.
Driving discovery, creating community
For more than 50 years, we’ve been driving efforts to cure psoriatic disease and improve the lives of those affected. But there’s still plenty to do! Learn how you can help our advocacy team shape the laws and policies that affect people with psoriasis and psoriatic arthritis – in your state and across the country. Help us raise funds to support research by joining Team NPF, where you can walk, run, cycle, play bingo or create your own fundraising event. If you or someone you love needs free, personalized support for living a healthier life with psoriatic disease, contact our Patient Navigation Center. And keep the National Psoriasis Foundation going strong by making a donation today. Together, we will find a cure.