NPF amplifies patient voice with national coalition

On Aug. 22, 2018, the National Psoriasis Foundation and 17 groups convened for our annual State Access to Innovative Medicine coalition meeting. The SAIM coalition is composed of patient advocacy organizations, health care provider societies, and biopharmaceutical companies that help ensure patients across the nation have access to the treatments that they need. This is one of many coalitions NPF works with to advance our legislative priorities at the state level. 

This annual strategy and planning session is designed to highlight victories from our previous year and look at areas across the nation where we can move the needle forward on patient-access issues.

The coalition had three big victories for our patient community this year. 

New Mexico and Minnesota passed step therapy reform, ensuring better access to care for 268,275 residents who are living with psoriatic disease in those states. 

Colorado codified helping patients with high out-of-pocket costs by requiring that 25 percent of plans have a copay-only structure and that no more than 50 percent of the drugs on a carrier’s formulary that are used to treat a specific condition can be placed on the highest cost tier. This will impact 196,245 residents living with psoriatic disease. 

Overall last year, NPF, in conjunction with SAIM, helped expand access to treatment for almost half a million people living with psoriasis or psoriatic arthritis. 

What's on the horizon?

As 20 to 30 members huddled around a conference table, we examined our areas of interest in target states and discussed how to overcome the common hurdles we experience when advocating for patient access. Many of these hurdles included time constraints from short legislative sessions, budget woes that needed mending, and logjams of other health policy issues. Our discussion helped us see that even with these hurdles, we elevated the patients’ voice by telling stories about challenges with access to care. 

Moving into 2019 the SAIM coalition will continue to focus on two pressing issues for our patient populations: step therapy reform and out-of-pocket costs. For patients living with psoriatic disease, we know that these two areas are high priority when it comes to access to treatment.  

Get involved

The driving force of our work is your stories as patients. As we continue to plan and look towards the upcoming sessions in 2019, we need you to educate lawmakers on the importance of access to treatment. Find out how you can get involved with our advocacy work. 

You can also stay up-to-date on our advocacy efforts by following us on Twitter via @NPF and #NPFAdvocacy

Driving discovery, creating community

For more than 50 years, we’ve been driving efforts to cure psoriatic disease and improve the lives of those affected. But there’s still plenty to do! Learn how you can help our advocacy team shape the laws and policies that affect people with psoriasis and psoriatic arthritis – in your state and across the country. Help us raise funds to support research by joining Team NPF, where you can walk, run, cycle, play bingo or create your own fundraising event. If you or someone you love needs free, personalized support for living a healthier life with psoriatic disease, contact our Patient Navigation Center. And keep the National Psoriasis Foundation going strong by making a donation today. Together, we will find a cure.

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