After decades of listening to your needs and concerns, the National Psoriasis Foundation knew how critical it is to offer personalized guidance and support to our community. In 2015, we launched an ambitious strategic plan to improve the health outcomes of people living with psoriatic disease. As part of this plan, we opened our Patient Navigation Center in February 2016.
Now, one year later, we’re looking back at our journey, our successes and our impact on all who are affected by psoriasis and psoriatic arthritis. So join us as we celebrate the Patient Navigation Center’s first year of supporting the psoriatic disease community.
The year in numbers
During our first year at the Patient Navigation Center, we proudly served more than 3,700 people impacted by psoriatic disease. Here’s a snapshot of the people we’ve helped.
The year in people
At the Patient Navigation Center, we know that success isn’t just measured in numbers—it’s measured by our ability to touch people’s lives.
“Every day, I help people overcome the barriers that stand between their disease and living a healthy life,” said Mercy Rivera, NPF’s first bilingual Patient Navigator. “Whether it’s helping someone appeal insurance denials so that he or she can afford prescriptions or just being there to listen, I know that I’m making a difference in people’s lives. They’re happy the Patient Navigation Center is there to support them.”
After one year of serving the psoriatic disease community through our Patient Navigation Center, we know that you feel the same way.
Prior to contacting the Patient Navigation Center, Nedra, a 23-year old student living with psoriasis, had “a lack of knowledge about what resources were available and what [her] treatment options were.”
After speaking to Patient Navigator Ashley Lindberg, her outlook shifted. “Ashley asked me who I am and what my struggles are. She really listened to me,” Nedra said. “Knowing that someone cares about you is what made me decide to move forward.” A month later, she was enrolled in a clinical trial.
Like Nedra, David, who works in nonprofit management, also found an advocate in his navigator. In October, he signed up for a goal-setting session at the Patient Navigation Center and was connected to Patient Navigator Amy Kurtz.
“I’ve always tried really hard to understand my psoriasis and how it affects my overall health,” said David. “When I signed up for this program, I was frustrated with my doctor, my medicines and my insurance. Everything seemed to have stopped working, and I was ready to try something new.”
Kurtz helped David find a new health care provider, shared details about how to obtain a home phototherapy unit and brought him to a place where he feels optimistic about his treatment plan. “When you live with a chronic condition like psoriasis, you get tired after a while. You get frustrated, and it’s hard to find people who understand what you’re going through,” he said.
“From day one, Amy was my support. An intelligent advocate, she provided me with the information I needed to make a change and helped me wade through these materials. Amy motivated me and gave me the confidence to quickly get me back on track. Without her support, I might have given up.”
And then there are those we’ve helped understand their financial assistance options and save money on their prescriptions.
Barbara, a retired school teacher who has Medicare, contacted the Patient Navigation Center because she wanted to understand coverage options for her biologic. When Barbara was connected to Lindberg, her Patient Navigator, she not only had all of her questions answered, she also received words of encouragement.
“The guidance I received has been invaluable,” Barbara said. “Ashley did an excellent job of explaining my coverage in clear language that made sense to me. Having the support of someone who was both helpful and caring made a world of difference during this stressful time. I don’t even know how to begin to thank Ashley for her help.”
Celebrate with us!
To help us celebrate, we invite you to share a question about your life or a family member’s life with psoriatic disease. Your question will be answered by one of our Patient Navigators, who can work with you to build a healthier life with psoriasis and psoriatic arthritis.
From all of us at National Psoriasis Foundation, thank you for letting us serve you through our Patient Navigation Center. As NPF celebrates our 50th year of working to improve the lives of people affected by psoriatic disease, we look forward to bringing this valuable service to even more people around the world. Whether you’re living with psoriatic disease or have a family member who’s affected, contact us today to learn, connect and overcome your challenges. You can reach us by email, text 503-410-7766, or call 1-800-723-9166, option 1 to talk to a Patient Navigator.
Driving Discovery, Creating Community
This year, we’re celebrating 50 years of driving efforts to cure psoriatic disease and improve the lives of those affected. See how far we’ve come with this timeline of NPF’s history. But there’s still plenty to do, and we can’t do it without you! Learn how you can help our advocacy team shape the laws and policies that affect people with psoriasis and psoriatic arthritis – in your state and across the country. Help us raise funding to promote research into better treatments and a cure by joining Team NPF, where you can walk, run, cycle, play bingo or even create your own DIY event. Contact our Patient Navigation Center for free, personalized support for living a healthier life with psoriatic disease. And keep the National Psoriasis Foundation going strong by making a donation today! Together, we will find a cure.