Keeping up momentum for patient access in 2020

On July 24, 2019, the National Psoriasis Foundation and 19 groups convened for our annual State Access to Innovative Medicine coalition meeting. The SAIM coalition is composed of patient advocacy organizations, health care provider societies, and biopharmaceutical companies that help ensure patients across the nation get access to the treatments they need. This is one of many coalitions NPF works with to advance our legislative priorities at the state level. 

This year’s planning and strategy meeting highlighted victories in eight states that passed step therapy reform protections, strategized how to approach out-of-pocket costs for chronic disease patients, and looked at areas across the nation where we could continue or efforts on out-of-pocket costs and remove barriers to care through utilization management reform. 

State of interest

Delaware, Georgia, Maine, Ohio, Oklahoma, Virginia, Washington and Wisconsin passed step therapy reform, ensuring better access to care for over 1.2 million residents who are living with psoriatic disease in those states. Minnesota extended access to step therapy reform by including their Medicaid population.

The coalition finalized its new out-of-pocket principles document, which NPF helped craft. With the development of this new document we hope to engage states, meeting them where they are  and tackling rising out-of-pocket costs for residents living with psoriatic disease.

Overall last year, NPF, in conjunction with SAIM, helped expand access to treatment for nearly 1.5 million people living with psoriasis or psoriatic arthritis. 

What’s on the horizon?

Moving into 2020, NPF and SAIM coalition members will continue to focus on removing barriers to care for our patient populations. For step therapy reform we will focus on Arizona, California, Colorado, Kansas, Massachusetts, Maryland, Nebraska, Pennsylvania and Tennessee. With our newly developed out-of-pocket principles document we are meeting with agencies and legislators to see how to best support local efforts.

We are hopeful that the momentum we created through our advocacy efforts in 2019 will set us up for a successful session in priority states and federally. Our top two priorities for 2020 will be step therapy reform and out-of-pocket costs, both of which significantly impact our patient population. 

Get involved

The driving force of our work is your stories as patients. As we continue to plan and look towards the upcoming sessions in 2020, we need you to educate lawmakers on the importance of access to treatment. Find out how you can get involved with our advocacy work. 

Share your story or learn about our current and upcoming activities. For real-time updates, follow us on Twitter via @NPF and #NPFadvocacy. Please visit our webpage for more information or contact Brittany Duffy-Goche at [email protected] or 503-546-8364 to discuss the many different ways you can get involved. 

Driving discovery, creating community

For more than 50 years, we’ve been driving efforts to cure psoriatic disease and improve the lives of those affected. But there’s still plenty to do! Learn how you can help our advocacy team shape the laws and policies that affect people with psoriasis and psoriatic arthritis – in your state and across the country. Help us raise funds to support research by joining Team NPF, where you can walk, run, cycle, play bingo or create your own fundraising event. If you or someone you love needs free, personalized support for living a healthier life with psoriatic disease, contact our Patient Navigation Center. And keep the National Psoriasis Foundation going strong by making a donation today. Together, we will find a cure.

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