The power of a group with a purpose

| Steve Bieler

Psoriatic arthritis can hem you in. You might be experiencing pain and restrictions on your movement. You might feel isolated. You might be wondering: Does anyone understand what I’m going through?

NPF is here to say that you’re not alone! There’s a whole community of people out there with psoriasis and/or PsA and plenty of ways to connect with them.

TalkPsoriasis is the world’s largest online community for patients, caregivers, family members and anyone who wants to share and learn about psoriatic disease, treatment and support options. TalkPsoriasis was launched in 2014 and already has more than 125,000 members from around the world. This free service encourages members to post questions, read about others’ experiences and find resources to help manage their disease.

Citizen Pscientist is an online community based on a simple idea: Give non-scientists the chance to play with science. Citizen Pscientists are people who live with psoriatic disease. They contribute their data anonymously, work with the data, discuss what they find and give researchers new leads. The more leads we have, the greater our chances of discovering a cure.

To join this global online research network, sign up and answer the questions in a survey prepared by our researchers. Citizen Pscientist launched in 2015 and has 3,300 members, of whom about half have PsA.

Don't stop at our site. We’re all over the web:

  • 65,000 people follow us on Facebook
  • 18,000 follow us on Twitter: @NPF
  • 6,000 people keep up with us on Instagram
  • Our videos on YouTube have drawn almost 300,000 views

Taking part in an online community is fun, but sometimes you just want to talk to one person. Someone who has been where you are and has moved beyond it. NPF can provide that kind of conversation with our Psoriasis One to One peer support program.

Psoriasis One to One can connect you with people with psoriatic arthritis who really get what you’re going through. These volunteers don’t give out medical advice, but they can direct you to the resources you need, help you set goals for a healthier lifestyle and offer emotional support.

We hope you’ll connect with us soon!

Driving discovery, creating community

For more than 50 years, we’ve been driving efforts to cure psoriatic disease and improve the lives of those affected. But there’s still plenty to do! Learn how you can help our advocacy team shape the laws and policies that affect people with psoriasis and psoriatic arthritis – in your state and across the country. Help us raise funds to support research by joining Team NPF, where you can walk, run, cycle, play bingo or create your own fundraising event. If you or someone you love needs free, personalized support for living a healthier life with psoriatic disease, contact our Patient Navigation Center. And keep the National Psoriasis Foundation going strong by making a donation today. Together, we will find a cure.

Recent Advance Posts

With help from his old bike and a biologic, Barry Bonner overcomes PsA and...
Rheumatologists and dermatologists join forces to defeat a common enemy.
Psoriasis updates from the 76th annual meeting of the American Academy of...
Culinary enthusiasts offer grade-A tips for taking the aches and pains out of...
For some psoriasis patients, getting the right diagnosis isn’t always so black...
NPF launches a clearinghouse for clinical trial info, including how to find one...
Clinical trial data show drug may help achieve clear skin.
Cyndi Lauper describes her treatment journey from diagnosis to clear skin.
Researchers examine results from patient-reported data and offer takeaways for...