First patient enrolled in national psoriasis registry
Corrona Psoriasis Registry to track treatment safety and effectiveness
PORTLAND, Ore. (May 28, 2015)— The first psoriasis patient has joined the Corrona Psoriasis Registry, launching a project that will be critical to informing the future of psoriasis treatments and patient care.
The Corrona Psoriasis Registry is a joint collaboration between the National Psoriasis Foundation and Corrona, LLC, a health research company that sponsors disease registries to advance medical research and improve patient care. Information collected from the registry will be used to conduct research to better understand psoriasis and hopefully improve treatments. Learn more ».
With a plan to enroll more than 10,000 people with psoriasis and follow them for at least eight years, the registry will collect and analyze data to help clinicians, researchers and the pharmaceutical industry compare the safety and effectiveness of psoriasis therapies. Data will be gathered through questionnaires completed by patients and their dermatologists during appointments.
"We're thrilled to have the first person enrolled in this registry," said Dr. Bruce Strober, scientific director of the Corrona Psoriasis Registry. "We'll use this registry to study the relationship between psoriasis and other health conditions, and examine the impact of psoriasis on quality of life."
The registry is recruiting dermatologists who treat people with moderate to severe psoriasis with biologic or systemic medications.
About Corrona, LLC
Corrona, LLC was founded in 2000 by leading rheumatologists dedicated to advancing and improving the care of patients with rheumatic and other chronic diseases. Corrona's mission is to advance medical research and improve the quality of patient care. Corrona is an independent registry without ownership links to the pharmaceutical industry. Learn more at www.corrona.org.
About the National Psoriasis Foundation
Serving its community through more than 50 years of patient support, advocacy, research funding, and education, the National Psoriasis Foundation (NPF) is the world’s leading nonprofit fighting for individuals with psoriasis and psoriatic arthritis. The NPF mission is to drive efforts to cure psoriatic disease and dramatically improve the lives of more than 8 million Americans affected by this chronic immune-mediated disease. As part of that effort, NPF created its Patient Navigation Center to offer personalized assistance to everyone with psoriasis or psoriatic arthritis. To date, NPF has funded more than $21 million in research grants and fellowships that help drive discoveries that may lead to more and better treatments and ultimately a cure. Learn more at www.psoriasis.org.