Over 1,000 Patients Join Largest Independent U.S. Psoriasis Registry
PORTLAND, Ore. (March 28, 2016) — The Corrona Psoriasis Registry, a joint collaboration between the National Psoriasis Foundation (NPF) and Corrona, LLC, a health research company that sponsors disease registries to advance medical research and improve patient care, is approaching the one-year anniversary of enrolling its first patient in April 2015.
To date, the registry has enrolled over 1,000 patients from 100 sites, where dermatologists assess patients every six months during routine visits and fill out a comprehensive questionnaire. Patients participating in the registry will be tracked for at least eight years, and the information collected will be used by researchers to compare the safety and effectiveness of psoriasis treatments, study diseases associated with psoriasis, and better understand the natural history of the disease.
"The achievement of these milestones demonstrates the potential impact of this unique resource for the psoriasis community, providing us with real world data on novel psoriasis treatments,” said Dr. Mark Lebwohl, scientific co-director of the Corrona Psoriasis Registry, and chairman emeritus of the NPF Medical Board.
The registry continues to recruit dermatologists who are treating people with moderate to severe psoriasis with biologics or systemic medications. Please email [email protected] for more information. Through this registry, Corrona LLC, expects over 200 dermatology sites to be added to their expansive network of sites.
“We are honored to have the commitment and active participation of 100 dermatology practices across the United States,” said Dr. Jeffrey Greenberg, chief scientific officer of Corrona, LLC. “The contribution by dermatologists collecting data will allow us to study comparative effectiveness and safety of newly approved therapies for their patients with psoriasis."
Psoriasis is a chronic, immunodysregulatory disease that appears on the skin. It occurs when the immune system sends out faulty signals that speed up the growth cycle of skin cells. Psoriasis is not contagious. Psoriasis is the most common autoimmune disease in the U.S. As many as 7.5 million Americans have psoriasis.
About the National Psoriasis Foundation
Serving its community through more than 50 years of patient support, advocacy, research funding, and education, the National Psoriasis Foundation (NPF) is the world’s leading nonprofit fighting for individuals with psoriasis and psoriatic arthritis. The NPF mission is to drive efforts to cure psoriatic disease and dramatically improve the lives of more than 8 million Americans affected by this chronic immune-mediated disease. As part of that effort, NPF created its Patient Navigation Center to offer personalized assistance to everyone with psoriasis or psoriatic arthritis. To date, NPF has funded more than $21 million in research grants and fellowships that help drive discoveries that may lead to more and better treatments and ultimately a cure. Learn more at www.psoriasis.org.