Finding Care

Intro to specialties

Your Health Care Team/Team at Home content

Link to the Health Care Provider Directory with instructions for them to filter by peds specialties.

Video with Jamie Moy about preparing for a health care visit.

Working with the Team at Home

Remember that psoriatic disease affects the entire family – siblings, parents and grandparents, and other caregivers.

Encourage Discussion

In addition to caring and communicating with the child who has psoriatic disease, it’s important to help everyone understand. Encourage family members to open up. It’s likely that everyone will accept the diagnosis differently. Discuss the treatment options and how they may be able to help without placing too much responsibility on them.

Routines

Develop routines and rituals that involve all family members based on what each person may be able to do. Regular routines helps reduce stress.

Care

Above all, treat each child fairly. Make time for them. Let them be who they are.

Working With the Health Care Team

You’ll have the best possible experience with your child's health care provider if you prepare for your appointments. Know going in what you want to ask, including treatment options and goals. If possible, bring someone along to take notes and ask questions that may not occur to you. Don’t understand something? Ask for a clarification.

Empowerment

Your child can learn how to be an active participant by explaining their symptoms, for instance, what a flare is like or how the disease impacts her life.

Strategy

Ask your child ahead of time about discussing certain issues he finds embarrassing. There may be other ways to approach certain issues.

Gratitude

Be assertive on behalf of your child, but always express your appreciation for all that your health care provider does. Your appreciation will be remembered.

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