Everyone receives a number of surveys, but there is an important one asking about what it is like to live with psoriatic disease: the NPF annual survey. And because the data you contribute to this survey will help improve the lives of everyone with this disease, including yourself, we urge you to participate.
You’ll be asked questions about your disease severity, what treatments you’ve tried, what results you’ve experienced, and how psoriatic disease affects your quality of life, not just the physical aspects, but also your emotional well-being. All of the data collected will be kept confidential.
The survey will take you less than 30 minutes to complete. At the end you’ll receive our appreciation, plus a $5 Starbucks gift card.
What’s in it for you
“We all want to do what our part to support research that helps the psoriatic disease community,” says Joseph F. Merola, M.D., M.M.Sc., a dermatologist and rheumatologist at Brigham and Women’s Hospital and associate professor of dermatology at Harvard Medical School.
“Here’s something important you can do that won’t take long and that could benefit you and the larger psoriatic disease community. The survey is anonymous and the information collected will help physicians, researchers and even the broader public better understand that psoriasis is not just a skin condition, but an immune-mediated, inflammatory disease that potentially affects the whole body and has tremendous impact on quality of life. Please take the survey and share your data.”
Dr. Merola points out that the inflammation of psoriasis and psoriatic arthritis has been shown to be associated with a variety of related health conditions. Taking the survey may help you learn something about your own disease, as the survey includes questions about relevant related conditions, such as psoriatic arthritis.
“NPF represents you and your community,” Dr. Merola says. This is a unique opportunity to have your voice heard and to contribute your information. The answers you provide will help the more than 8 million people across the country who have psoriatic disease. Your contribution is incredibly important and a crucial addition to our understanding of psoriasis and psoriatic arthritis.”
You may receive an email or a phone call inviting you to participate in this year’s survey. If you do, we encourage you to take the time, a small commitment, to improve the lives of everyone living with psoriatic disease.
Driving discovery, creating community
For more than 50 years, we’ve been driving efforts to cure psoriatic disease and improve the lives of those affected. But there’s still plenty to do! Learn how you can help our advocacy team shape the laws and policies that affect people with psoriasis and psoriatic arthritis – in your state and across the country. Help us raise funds to support research by joining Team NPF, where you can walk, run, cycle, play bingo or create your own fundraising event. If you or someone you love needs free, personalized support for living a healthier life with psoriatic disease, contact our Patient Navigation Center. And keep the National Psoriasis Foundation going strong by making a donation today. Together, we will find a cure.